Copaxone sites are gone..

[tripalot]

I have been on Copaxone forever...no more sites to stick...thinking bout just stopping copaxone----any feedback appreciated. Thanks or replying with your advice. Judy (tripalot)

[KBDComedy]

I was on the injectables for years. I switched to Aubagio a few years ago and it is amazing!! Taking a pill once a day is so much better than an injection. I got to the point where the smell of alcohol swabs was making me sick. Aubagio is a life saver and the manufacturer even has a co-pay assistance program! It is a company that truly cares about us!!

[mrsmike9 in reply to KBDComedy]

Amen, sister! I was so glad to have an allergic reaction to that. Aubagio for me!

[RoyceNewton]

she who must be obeyed has been on it for 21 years, last year on 3x weekly how long for you?

[DM0329]

Yeah, the "pin cushion club" is the club that no one wants to be a member o, too. I've been self-injecting Avonex for 22 years (I'm a huge needle weenie and the IM injections are the worst!) but my slow progression and stable MRIs have me "sticking with it." Pun intended.

Perhaps a new oral DMD is an option for you? May I suggest consulting with your neuro?

Hang in there!

[greaterexp]

How stable is your MS? Even if it’s “stable,” it sounds like it’s time to discuss a different DMT with your neurologist. You have my admiration for being able to stick (pun intended) with the same injection for so long!

I hope you let us know what you choose with the help of your doctor.

[tripalot]

Thank you very much for your quick response about stopping copaxone. I will be visiting my Dr. Nov.27, 2020. Will discuss his thoughts. I haven't had an attack for many yrs. Been blessed so much. Being 67 yrs old and having having MS for 47 yrs. still able to work part time..RR was my diagnosis. I am NOT complaining, just wanted your thoughts on Copaxone injection sites. With this being said-everyone have a good day today and a better one tomorrow. Judy (tripalot)

[hobby1966]

Talk to your doctor about different options.

[TexasLawman]

I did copaxone for 2 weeks. Burned so bad I stopped and didn’t do another for 13 years!

[sashaming1]

Depends on if it is working or not. Copaxone company may have a phone number to call for advice. Or on-line advice. Or Neurologist advice. You could change DMTs.

[LJMC]

I've been on Copaxone since 2003. I've never cared for taking injections, but Copaxone is working for me to keep my M.S. in check without having any major side effects, so there isn't much reason for me to switch to trying anything else for now. Being on a DMT is important. There are many DMT's now-a-days. However, none of them work for everyone. What works for one person might not work for another. So, each must seek a DMT that works for them. In my small M.S. Connection Group ( about 20 or so of us), there are people using different DMT's. Some people have been on their same DMT for a long time. Some have had to try 2 or 3 different DMT's. I don't think that people should switch from one to another just to switch, but if one isn't working, then seek another that does work. Just considering Copaxone, there are a couple people in my M.S. Group who, like me, have been on Copaxone for a long time and it is working fine. However, there are a couple others who had to switch off of Copaxone, one because it just wasn't working for her, and another because it caused rashes & hives too much. So, in any case, you need to do what is best for YOU.

[Hidden]

I have been on Copaxone for 21 years. Are you having lumps form so you are running out of sites? I can not do my arms and I have not run out of sites. But my skin reactions are always temporary.

I did speak to my neurologist because in the 6 months I have been on Medicare, I have paid over $5,000 for Copaxone. He said that usually after age 60, MS tends to not be as active. Which explained to me why some doctors stop prescribing DMT's then. You might want to consider discussing that with your neuro. Due to cost, I am considering stopping too.

[Manos]

Hi Judy.

Many people with MS say Copaxon is like plain water and didn't offer them any cure.

I am in Copaxon injections for 5 years and I am happy with it.

6 MRIs since 2015 showed NO new lessons, no new symptoms. Just foot drop and fatigue as from the beginning (5 years ago).

My neuro told me "the only way to check if Copaxon works for you or not is to stop it". That is a try and error procedure. But since Copaxon is a long tested medication for MS and I did not have any side effects I continue using it.

I have recently started a metabolomic treatment. Dr. Tsoukalas in Athens Greece and his team helped me a lot to reduce fatigue following a complete blood and urine exams set (150 exams).

It seems mitochondria and metabolomics is a promising medical sector for many autoimmune disorders.

He follows 90% the US Dr. Wahl's protocol and provided me with supplements and vitamins I needed Omega-3, B7(biotin), C, D and others.

NO sugar (0%) stop it completely. It is poison even in coffee or drinks.

I am feeling much better now.

I hope the above were helpful to your question.

Best regards and God bless you

Manos

[bxrmom]

Hi tripalot I was on Copaxone for over 10 years and ran out of locations to do my injections as well. That is why I switched to Tecfidera. I'm doing great on it but may have to switch because my white cell count keeps dropping and I am now positive for the JC Virus

Good luck on finding another med to switch to as there are so many out there now. Keep us updated when you can.

Jessie

[PWilli]

Hi tripalot, I wish your name means you travel frequently but guessing another meaning. Copaxone was my second DMT after Tecfidera and before Plegridy and now Aubagio. I still have scar tissue in my abdomen from injections that hurt occasionally. After experiencing so much pain and localized allergic reactions we decided to switch to oral Aubagio. I've been on it for almost 2 yrs. So much easier to swallow a pill than inject 3x a week or even every 14 days. I love it! I did experience 2 of the side effects that are less frequent, excessive hair loss that's been slow to regrow but hey, it's not stick straight anymore! I also developed high blood pressure which is controlled with meds.

If you (and your neuro) are looking for something else, I'd at least check out Aubagio.

Let us know how things go!

Pam

[tripalot]

Hello everyone.. apologize for not being active on this site. I decided to stay on copaxone. One question... how is everyone dealing with the vaccine?