Copaxone : Just out of curiosity, what... - My MSAA Community

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Copaxone

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’32 Replies

Just out of curiosity, what time of day do you take and/or recommend taking your Copaxone shot?

I take mine in the morning. :)

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Jesmcd2 profile image
Jesmcd2
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32 Replies
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I have always done my shots early in the morning. I get it out of the way and don't think about it at all. The evening gets busy and I don't want it hanging over my head! It has always worked well for me! When do you prefer doing the shots? Have a great Monday!

erash profile image
erash

I used to do it in evening so I could rest and relax afterwards. Haven't been on DMD tho for 6yrs

txcg152 profile image
txcg152

I take mine at night usually right before I go to bed

agate profile image
agate

I took Copaxone for 3 years and always did the shot in the evening, not long before bedtime. It was easier that way since I was undressing anyway and wouldn't have to remove clothes just to do the shot.

rogerwil profile image
rogerwil

I always take my shots in the evening just before bed like agate does.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

I have the Copaxone app that has the alarm, l would be lost without it. I think taking it at night would be to hard from me, when the Modafinil wears off lm out like a light. Oye! I'm always more active in the mornings anyway. :)

erash why arnt you on a dmt? I'm sure you probably told me, but my memory sucks, sry :)

txcg152 , rogerwil doesn't it bother you sleeping on the shots? And do you have any reactions?

agate l take them after a shower, which using an ice pack after isn't a bright idea lol

starlight5 and Hidden do you both use the Copaxone app alarm? Copaxone seems to be having a problem with it. I kind of miss the way it was. Besides the small bumps with the shots l have had no problems with it. I have also changed the depth too.

β€’ in reply toJesmcd2

I do use the alarm on the app but it just gives me a reminder text. I always set my shot out front the night before so I see it in the morning.

Do you guys belong to the copaxone Facebook page? Lots of talk and helpful tips on there:) i know this is hard to believe since I am 44, but I JUST got Facebook 😁😜. I only got it to follow all the good MS pages! Happy Election Day! Can't wait till it's over! Have a good Tuesday everyone πŸ˜€

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply to

Hahaha Hidden l used to have FB but my girls said l was "spying" on them lolol l was keeping an eye on them, lm a mom what was l supposed to do? But FB started getting to many adds and ppl were putting videos on my pg. So l just don't bother with it anymore. Besides l do everything with my phone, and it would muck up my phone.

So you are going to have to be the go between for us and give us the helpful hints :)

Start sharing... :)

Mikey for President yeah! ;)

β€’ in reply toJesmcd2

Well absolutely we have to spy on our kids 😜 Before I actually got my own FB I got on my daughters who is now 18. I have Twin boys who are 15! It is our duty to spy, follow, creep, listen in on phone calls and follow them on any social media possible πŸ˜€ We need to kinda know what's going on right?! I feel like as a 44 year old mom I am somewhat hip and with the times. I am on most social media except FB(now I am). We gotta do what we gotta do! My twin boys tell me how weird it is that I snapchat and that I am too old for that...whatever!! Anyways, will keep you posted on MS stuff I see on FB that is interesting! Have a great hump day!

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply to

Oh l did when my girls were younger. now they are 27, 25 and 24. All grown up, so they say :) β™‘ Now 2 grand babies 6 and 7 β™‘ All my angle monster's

And definitely get the info, much appreciated. :)

txcg152 profile image
txcg152β€’ in reply toJesmcd2

It doesn't bother me taking the shot, it's the very first medicine I started on when I found out I had ms in 2001! I've been on & off several different ones since then but got back on the 3 times a week Copaxone when nothing else was working for me.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totxcg152

txcg152 that's awsome that the Copaxone works that well for you. Why would they take you off it though, and then switch you back? I'm just curious.

Why do Dr's change meds that are working to something else? My Dr's seem to like to do that to me, and l end up having an allergic reaction. Drives me insane.

txcg152 profile image
txcg152β€’ in reply toJesmcd2

The doctor took me off of it when some new meds came out & I started to have seizures on a few of them so I think that was kind of one of the main reasons he put me back on the copaxone & the other reason I think is because of the just 3 times a week script now.!

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totxcg152

txcg152 seizures not good. I hope the Copaxone keeps working for you and you continue not having a reaction to it!

txcg152 profile image
txcg152β€’ in reply toJesmcd2

Thank you Jesmcd2, it worked for me at the very beginning & it's working for me now with no problems like the other meds did to me!

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totxcg152

I hope you continue to have positive results with it txcg152 :)

RobertCalifornia profile image
RobertCalifornia

I started taking at night because I was working full time. Now that I am retired on disability I still take it at night.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toRobertCalifornia

Well that makes sense RobertCalifornia . How long have you been on disability? And have to ask where in Cali are you? And what did you do?

RobertCalifornia profile image
RobertCaliforniaβ€’ in reply toJesmcd2

I have been on disability for 18 months. I live in Orange County. I was a sales engineer for a national refrigeration company. Can't climb ladders go on job walks,etc. I basically could not do my job anymore.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toRobertCalifornia

Another Californian, how l miss it *sigh* Although lm sure it's changed a ton by now lol

Going on disability is always hard to do. And never an easy decision to make. I was forced. My Dr actually had 2 papers made up cause he knew l would rip up the 1st one, which I did. :D But l couldn't do my job anymore and was putting myself and others in danger.

I hope your filling your time with fun :)

RobertCalifornia profile image
RobertCaliforniaβ€’ in reply toJesmcd2

Most days I try to do something fun, something productive and something for my health. I do miss work, but not on Monday morning. My doctor told me she is glad that I "retired" and it was certainly the right decision.

Mccabetp profile image
Mccabetp

Hi fellow Copaxone injector. I take mine at night so I can put some ice on the site and have overnight to have the site heal. Sometimes I am tender. β˜€οΈ

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMccabetp

Hi Mccabetp it's been awhile since you have spoken up :) lm glad you did. How do you deal with the tenderness? And sleeping? ? I have a hard enough time going through the day if my shot is along the belt line. (I try to avoid that area at all costs lol)

So glad your getting back in the conversations. Please don't be a stranger here. We are all family :)

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

starlight5 lm like you l have the settings a bit deeper than what they gave me also. Less itching, and less of a bump. I also use ice before and after then warm then ice again. It can be time consuming but it works. :)

Mccabetp profile image
Mccabetp

I first use a warm compress then injection then ice. I also found that it's better without the injector. Less lumps. Also I had necrosis. By injecting at night the belt issue is mostly resolved. I don't inject my arms and legs. Too thin. Thks for the shoutout. β˜€οΈ

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMccabetp

Mccabetp no need to thank me, like l said we are all family here :)

I'm so sorry about the necrosis. Just what you need on top of MS. Or was it because of? I don't know that much about it.

I tried the hot pack 1st and that didn't work for me, but lm so glad it worked for you :) And seriously l dont blame you about the arms and legs. They hurt lol

Mccabetp profile image
Mccabetp

It was because of Copaxone. That why I don't use the injector.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMccabetp

Oh no not a good thing. I guess if it comes down to it, l wouldn't use the injector but the thought makes me cringe. I still hate taking the stupid thing.

Mccabetp profile image
Mccabetpβ€’ in reply toJesmcd2

I am using the gripper which helps. I did some fat transfer so it doesn't look so bad. I am still vain.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMccabetp

Mccabetp what is the gripper? And being a little vain is a good thing ;)

Mccabetp profile image
Mccabetp

A gripper is a plastic piece you put the needle in which assists in holding it. Especially helpful for hard to reach places. Shared solutions will send them to you free.

We do still need to care about ourselves. So easy to give up. Yes there are days but on the good ones we need to put the makeup on, dress well and march on.πŸ‘ΈπŸ’

TracyBelle profile image
TracyBelle

I get my shot at night about 1 1/2 hours before bed. That way I sleep through the hypersensitivity of the injection site. It is also better in case you have a reaction, I don't think you would feel like working after a post injection reaction. I know that I just want to go to bed after I have a reaction.

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