Pain help

[Mosmom33]

I have RRMS since 2007. I am in pain every day....shoulder, back, legs. I take Tylenol and Advil which helps a little. I walk with a cane which I think contributes to the problem, but I can't get around without it. I lean on it a lot. Going to see neuro on Monday. What do you take for pain?

[AquaZumbaFan]

Hopefully when you go to the neurologist on Monday he/she can help you find the source of the pain whether it is neurologically based or whether there is another source like a problem with your spine or musculoskeletal. I have been taking gabapentin/tizanadine since about 2015. It was more for spasticity the restless legs that I would have at night. Sometimes my legs would feel like I would be walking 45 miles..It was so exhausting. I have found the most pain relief though hands- by doing my classes in the water.. I get the best stretch is very low impact on your. Now I’m only pain if I miss classes.. if I closer, I would do more than the four classes a week, but it is quite a hike to and from class. PT has also helped a lot with specific areas that I have pain. Best of luck let us know how you’re doc says after Monday if you share.. ps when I was medically allowed to take NSAIDS - naproxen worked best for me when I would take for aches and pains..I would take two in the morning with my breakfast and two at with my dinner..

[AriSmyelin]

CBD. (It's NOT pot) I get the deodorant sticks or lotions or really anything CBD and it has helped wonders. For the tingling I do a tincture. Yes, I admit I do have a medical card but I can not smoke it and I don't use it for the high effect just for the overall numbing effect if the cbd tincture isn't helping. So I get thc/cbd combo. I am in no way promoting pot. The CBD covers the pain so much I don't need it often. The other thing is Yoga (I know I sound like a meditating, drug addict "hippie". 😜)I used to turn down yoga with a passion until I found out it worked. Find someone on you tube who helps you at YOUR own pace. "Yoga with Kate Amber" has been wonderful. You do you. I hope nothing I said offended you.

[Mosmom33 in reply to AriSmyelin]

Not offended at all. I've been wondering about CBD, I have no idea where to start or what to trust. Do you mind sharing what brand you use and where you get it?

[Carlrossi94 in reply to AriSmyelin]

Very interesting to hear I’m recent diagnosed with MS last year and just got my medical card as well. I don’t want the head high affects so I slowly been trying things to see if it will help. I tried some cbd/thc patches. I bought a thing of the tincture but it tasted so bad and upset my stomach lol. I would love to find some combo that works for me. If you try anything else and thinks it’s affective please let me know!

[MSFlea in reply to AriSmyelin]

I also have a cbd deodorant stick looking thing, that I just recently got, I use a heating pad, as I'm able (I don't do well with heat... or cold.. very temperature sensitive!) and the heat helps it soak in good. It really helps! A lot more than the Aspercreme I was using (which I still use when I don't feel like smelling like the CBD stick smells, it's not awful, but it is different)!

[Robsmom]

I take Ibuprofen, but I also use THC cream. I take the THC tincture, but I also have a cream that I use on my back and knees. In GA, you have to get a license from the state, but MS qualifies for the license. Gabapentin didn't really work for me and Tizanidine made me hallucinate, so no thank you.

[AquaZumbaFan in reply to Robsmom]

I am fortunate that it has been effective for me.. but I’m really happy you have something that works for you 😊

[Trickysite]

I would be wary of leaning on your cane too heavily. At the least, use two canes so you are shifting the pressure of the weight. Better still get a rollator which takes the pressure off your back. I was leaning too much on my cane because of heavy legs and ended up hurting a vertebrae in my upper spine, not walking at all for 2 months, and now using a rollator at home and outside. best wishes, Emma

[NorasMom in reply to Trickysite]

I was just getting ready to post a similar comment. A rollator makes a big difference in the way you can walk, and many now come with a folding seat so you can rest when you need to. If you can't afford to buy new, I see them regularly in charity shops for only a couple dollars. Mine was less than $5.

[Helpmeup in reply to NorasMom]

Hi NorasMom. We had the same thought! I used a cane for years, but leaning on my left side for years really messed up my spinal alignment and hips. I switched to a rollator about seven years ago, and it makes a big difference. Distributing my weight evenly on both sides really helped me and having the seat is an absolute life saver for me! Got mine on Amazon seven years ago and it's still going strong. Take care. 🤗

[KGrayiskindaok]

Hi- I just thought I’d throw in my two cents worth although my situation is a bit different. I have PPMS that started as RRMS. I started with a cane when I was working and due to pain and weakness leaned on it heavily every day. It ended up contributing to a curved back scoliosis. Now my right hip is an inch higher than my left and this causes a lot of back, hip, and leg musculoskeletal pain as well as ongoing MS pain. Definitely get a walker. It has helped so much! You can distribute your weight more easily and sit anytime you need to. Pool therapy and yoga are excellent ideas. I always feel much worse when I stop exercising and stretching. For when the pain is too much I use a combination of baclofen and Tizanadine. Tizanadine makes me sleepy so I use that at night. I recently also had several shots of Botox in my right leg. It sounds strange but almost completely eliminated my leg pain for about 3 months. The problem with that is that it is temporary relief so you have to keep doing it. It was fantastic for me. I also have Tramadol which can be addictive so I only take when pain is so bad it brings me to tears. I also use Salonpas pain patches. I’m not sure if they work that well but the smell is a nice distraction lol. CBD is helpful too. It can really help you relax, but some brands upset my stomach. You may need to try a few brands. I like putting it in tea or cocoa when I have it. Magnesium is helpful too and I heard it’s a vitamin in dark chocolate😃😋. Best of luck to you. Just don’t stop trying new things until you find what works for you. Sorry I’m so long winded lol.

[sashaming1]

Take CBD?

[MSFlea]

I'm rather new to MS, Been diagnosed almost a year, but am walking with a cane, and have some awful pain. I use Baclofen, small dose, which I thought was not working at all... till I stopped taking it. Because I thought it wasn't working. Oops. It was working. I just needed to talk to my neuro about possibly taking a 3rd dose or upping it a little. I also take Gabapentin, but that is for a back problem, but was told it would help my MS as well. I can't take NSAIDS, but was told if I could they would help. So I use Aspercreme (the unscented kind) and now as I mentioned in another comment, a CBD stick that really helps with targeting areas that are really hurting. But it has, not an unpleasant odor, but one I'm not fond of, and so I only use it when I'm going to be home (which is most of the time 😂). The Aspercreme stays in my 'to go' bag of meds. I also use Penetrex, if you are looking for another creme that doesn't have an odor. It has a slight peppermint odor at first, and then it goes away. The Aspercreme smells like.. well, itself, but if you get the unscented kind, the smell vanishes when it dries. I get the one with lidocaine in it. Hope that helps!! 🧡It is rather unpleasant to be in pain, but there are lots of things out there that can help!🫂

[Tazmanian]

Might meloxicam help? You will need a prescription for it so ask your neurologist

[Neworleanslady]

ibuprofen worked great for me but started messing with my fingernails so i switched to tylenol but that doesn’t work even half as well for me. Baclofen worked pretty well for me but did a job on my legs. They (my legs) became so weak and spaghetti-like when i took baclofen. I stopped taking baclofen a long time ago because of that

[AriSmyelin]

Of course! Whish I could just send you a picture! First: (Deodorant stick type) Recovery CBD BALM. 2: Cream: Pain relief CBD penetrating pain cream with icy hot. 3:Lotion pump: Lotion Pump CBD cream with ARNICA

[MSbeGone]

medical marijuana making CBD .