NERVE PAIN--ANYONE ELSE HAVE THIS?

[Sukie427]

I have this horrendous nerve pain behind my left knee, and sometimes through my left palm of the hand and inside the elbow. I have some cerebellar lesions, some in the cerebrum, but most are on the spinal cord. I have a nasty little sucker right on the brain stem that causes mobility and balance problems and I have had way too many intimate encounters with my floor. I also have the mother lesion at C-3 which travels all the way to T-3 and picks up again at T-10. The nerve pain feels like it's on the sciatic nerve running through my knee and it feels like the inside of my knee is being shredded with hot razor blades. It is a stabbing pain, not an ache, and it seems to come in waves. As soon as it hits I hit the floor. I find that neither the cane nor the walker helps because my left leg just crumples, and in addition I find that using these assistive devices puts too much strain on my arms, neck and back. I had an MRI of the T-spine just recently and the idiot radiologist missed the lesion entirely. I saw a pain dr because my neuro doesn't give nerve blocks, and he gave me 3 consecutive shots in my back, which helped and stopped the pain, but now it's back. My pain dr is out of town so I saw a spinal specialist (he looks like he's 12 yrs. old) and he had me take x-rays of the T-spine through the L, C and S spine. He said that the curvature of the spine was correct, and he was not that impressed by the spinal stenosis such that it could cause these kinds of nerve issues, so he said that it was--guess what---the MS. He also said he saw some spinal fluid somewhere but I don't recall where. Anyway, he is going to get with his partner about doing some local nerve blocks to stop the pain, because I am basically unable to walk--the pain hits and I just go down screaming. Not cool. I can't ride my horse, exercise, or anything. But I was wondering if anyone else had anything like this, and what was done for you? Misery loves company, after all. Sukie427

[Kenu]

I have similar problems in my left thigh, both feet and back. I do have two herniated disks, 4&5, and #3 bulged with four bone spurs. The feet and thigh are from MS and some back. I had a pain pump put in seven years ago and that has helped a lot 👍 it keeps the pain at 4-5 and bearable compared to 10 like it was. The back issue came from the hobble walk from MS. 🤬 Seems like a lot more issues come about all related to the monster🤬Hope you can get some help for the pain 🙏 At least we can vent here 👍👌🐩🐶🐾🙏🙏 Ken

[jimeka]

Sukie427 all I can say is my prayers are with you. Hugs Jimeka 🤗 🍫 🙏

[janetb1968]

Big hugs Sukie427 MS is a bloody stinker! XXXX 😯😯😯😯

[Doubled51 in reply to janetb1968]

Sukie427 . I’ve got unbearable nerve at the tip of my left shoulder blade. My pain dr did a facet injection last February that was a waste of time. They diagnosed it as arthritis after an mri on it in Jan. After my MS diagnosis in April my pain dr said they’d been treating me for a lot a wrong things for awhile it seemed. I have to agree. I have an appt with them Feb 4 and I can’t wait to see what they come up with. But I must say that the cymbalta added to my gabapentin seems to have helped if he will raise my doseage.

Donnie

[CalfeeChick CommunityAmbassador in reply to Doubled51]

I was put on permanent disability many years ago, 2 back surgeries 1 fusion, am now mostly pain free in back. twinges when I over=do. Hand are dis-formed, but I adapt.. I take 8-10 - 200mg a day now and currently have request in to doc to increase Baclofen.

[Sukie427]

Thank you all so much for your answers and good wishes. Somebody has to make this stop or I will end up with broken bones and in a psychiatric ward someplace as this pain drives me absolutely crazy. Hugs, Sukie427

[CalfeeChick CommunityAmbassador]

For two days, I have been pretty much bed-ridden with exasperated numbness/Tingling in my legs and feet. Worst it's ever been. I was almost in tears last night and took extra dose of Baclofen to help get through the night. It helped about 4 hrs.. Anyone have any suggestions?

[dogdaddy in reply to CalfeeChick]

you may be having an exasperation...see your neuro