4 Jan 2024 YOU of all people can do t... - My MSAA Community

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4 Jan 2024 YOU of all people can do this.

RoyceNewton profile image
6 Replies

G'day sisters and brothers. Just taking a holiday, YOU, well know I can never leave YOU, YOU are my family and always will be. Sometimes YOU upset me but a few days and some lateral thinking and YOU are forgiven We ALL have some for of ms, and it is predominantly a Central Nervous disease (CNS) and a lot of your CNS is in your brain. That fatty lump between your ears and above your shoulders.

Okay this is all about newbies (newly diagnosed), that is new to this journey or new to coping. Get on a Disease Modifying Therapy (DMT), there are lots of them. As non medical professional, I strongly support OCREVUS. I use it and it is number 4 I think. At least 3 or 4. Do not bother lying to me as there is I believe around 20 medicines available these days. YOU could not have tried them all. BUT, do give them a try and find what works for YOU. Do NOT totally rely on your Neuro (neurologist), they may get it wrong and in 20 years they retire wealthy and YOU my family still have ms. Having said that. DO listen to them. There is no cure, hopefully just slow progression until YOU get planted (DIR)

I was up most of the night trying to think of how to paint this verbal picture so here goes.

YOU are on top of a mountain. YOU are told that You have ms, Relapsing Remitting ms RRms) actually, and there are two paths. One a slow steady walk downhill with hopefully just a few boulders that yOU have to cross and the other a terrifying steep downhill toboggan tide with nonhand grips. YOUR choice, which do YOU choose ?

Come on, make a decision YOU do not have all year.

DMT, good job, good choice. Which one? Ocrevus, it's effective and only two infusions a year. Really boring but something that YOU CAN DO.

Enough for today buy always remember good choices, ask questions and my 20+ years says that YOU can do this.

Royce :-)

and smile, it makes people wander what YOU ARE UP TO.

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RoyceNewton profile image
RoyceNewton
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6 Replies
NorasMom profile image
NorasMom

Good to hear from you, Royce! I'm just back home from seeing a new doctor for my recently-diagnosed gastroparesis. I was referred to him because my surgeon thought there might be a drug they can give me. Nope. Apparently the best drug for it causes increased problems for people with neurological diseases. So, I'll just be grazing from here on out and try to keep it under control that way.

RoyceNewton profile image
RoyceNewton in reply to NorasMom

All that you can do for a lot of things. Good luck and try to be well.

whwiechm profile image
whwiechm

Good to hear from you again. It has been a while.

AquaZumbaFan profile image
AquaZumbaFan

It’s good to have vacations now and then.. I think it just helps you appreciate what you have at home that much more! Happy new year Royce

RoyceNewton profile image
RoyceNewton in reply to AquaZumbaFan

that is a very good point, appreciation. Hmm yes good point. Have a great year this year, look after yourself and enjoy life.

AquaZumbaFan profile image
AquaZumbaFan in reply to RoyceNewton

Just remember what Dorthy said in “ the wizard of oz” there’s no place like home! 🤗

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