13 Jan 2023 You can: G'Day friends and... - My MSAA Community

My MSAA Community

9,441 members21,224 posts

13 Jan 2023 You can

RoyceNewton profile image
6 Replies

G'Day friends and family, especially you newly diagnosed (newbies). Take a moment or three, wipe away this set of tears. Relax there will be more to come, they will not go away for awhile, mine lasted a few months I think way back when, 20+ years ago. You will survive this, it will just take a lot of changes,maybe even a divorce. This too is sadly normal. One day look at our divorce rate, it is pretty high. In sickness and in health does not mean what it used to.

Anyway the important stuff. Try not to waste your time on cures, THERE IS NOT ONE OUT THERE,

, THERE IS NO CURE. Yes I yelled that, just making a point. There are on the other hand treatments, the Disease Modifying Treatments (DMT). Not a cue, but the best available today, Take the stress off choosing and just start Ocrevus and no I do not work for them but do take its.

Will I have 1700 other post that give a good idea what to do next so have a read of a few. There is still no cure but with a little planning and a lot of mistakes YOU my friend can live this life.

Go on, live it,

Royce

YOU CAN.

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Frances_B profile image
Frances_B

For the newly diagnosed newbies - please ignore Royce's advice on which medication to choose, and be guided by your own medical practitioners as to what may be best for you in your situation. Generally the more recently approved meds will be more effective than the very old ones, so do some "homework" using reliable websites set up and run by the many reputable MS organisations around the world. This way you should be able to have a reasonable conversation with your own doctor/s who are real doctors with real qualifications (even if some may be a bit arrogant or not as well informed as they perhaps ought to be!)

There is nothing wrong with using a forum such as this one for seeking information on other people's real life experiences with various meds, but other individuals' experiences will generally influence what their thoughts and recommendations might be, and objectivity and impartiality may sometimes be in short supply.

starlight5 profile image
starlight5 in reply toFrances_B

Well stated, thank you😊

RoyceNewton profile image
RoyceNewton in reply toFrances_B

Gee Frances B excellent advice, you are being helpful to people and that if not unusual is at least helpful, keep it up. O and read more carefully before you post,

Frances_B profile image
Frances_B in reply toRoyceNewton

Despite more people than just me asking you to stop telling people to choose Ocrevus you have yet again told people to choose Ocrevus - and there is is no other possible interpretation when you have written "Take the stress off choosing and just start Ocrevus...".

And please explain what you mean by "...and read more carefully before you post."

kdali profile image
kdali

Please seek professional assistance if you are crying for a month, going through a divorce, or making a decision about taking or stopping a medication.

RoyceNewton profile image
RoyceNewton in reply tokdali

more excellent advice we are on a roll today.

Not what you're looking for?

You may also like...

Post 752 3 Feb 2023 A great source of information

G'Day, my Relapsing Remittg ms (RRms) family. Actually, YOU can be any kind I suppose, but I have...
RoyceNewton profile image

4 Jan 2024 YOU of all people can do this.

G'day sisters and brothers. Just taking a holiday, YOU, well know I can never leave YOU, YOU are...
RoyceNewton profile image

14 Jan 2024 Newbies mostly

G'day friends and family. Good Sunday morning to you, if it is Monday good week to you. Any...
RoyceNewton profile image

19 June 2023 The day at LAST

G'day ms family, All are well I hope, living your best life. Good morning so far, workup at...

27 Jun 2023 Take it sloooow)

G'day my RRms ( Relapsing-Remiiting ms) Sisters and Brothers. Brand new to this life? The major...

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.