New Blog: My Unspoken Strength

[MSAA_archived]

What lessons has living with MS taught you? This week's blog post features both the struggle and the unspoken strength one can gain while dealing with an MS diagnosis. Read more: blog.mymsaa.org/my-unspoken...

[falalalala]

Patience and mindfulness are the first two to come to mind.

I get tested all the time.!@#$ 😅

[MSAA_archived in reply to falalalala]

Yes, I agree!

[Jesmcd2 CommunityAmbassador]

That everyday is a new MS day... It is what it is🙂🤗💕🌠

[Helpmeup]

Had to learn patience and how to let things go. And every day is full of MS=Multiple Surprises!

[anaishunter]

(1) Resiliency: MS throws many surprises at your life and you learn to deal with them.

(2) It's ok to ask for help. Because you'll need a lot of support with ms.

(3) Don't wait to do the things you want to do in life because tomorrow you might not.

[AquaZumbaFan in reply to anaishunter]

True words!! I have tried to live with these words in my head for a very long time!

[ahrogers]

Perseverance mostly. More recently I learned I should have been fighting harder sooner than now to maintain function as long as possible. I am fighting now to try to regain more function but if I was more diligent about exercising from the beginning I know I would have better function now.

[falalalala in reply to ahrogers]

You and I are in the same boat.

I am trying to regain strength after being sick over the last two years.

Before that, I worked out daily with either weights or aerobic activity for the last 30 years and am sure that has helped me function well since being diagnosed with MS about 15 years ago.I was very strong.

I might not be able to carry my husband around anymore,😅 but if I could regain even half the strength I had, I'll be happy.

My neuro seemed to think I could get it back as long as I didn't wait too long, so there is hope.

Good luck

[falalalala in reply to falalalala]

Had to edit from 37 to 30 years as I just learned how to do math this morning.😂😂

[ahrogers in reply to falalalala]

sounds like we do have a lot in common. I didn't work out daily in my pre-MS life but did have periods of excellent exercise routine, was actually doing P90X at the time of diagnosis and should have continued with it longer. Initially my body didn't malfunction until I had been exercising at higher intensity for more than 40 minutes. I too think that is why I did so well for so long considering the burden of lesions I had at diagnosis.

I was making some strides with PT earlier in the year but got Covid again in July so was down for a few weeks and lost almost all I gained. Getting back to the exercise routine again now and starting to get some back. It is just such a slow process now. Some things I didn't even realize were affected until I went to PT. When they had me lift my heel up toward my butt I thought "no problem" then I tried to do it and barely got my foot up in the air. The saying is true- you don't know what you got 'til it's gone!

Glad there is still hope! I plan to keep fighting now.

Good Luck to you!!

[falalalala in reply to ahrogers]

Thank you!

[AquaZumbaFan]

I have learned this week that having MS is challenging enough in any given week… But throw in a near septic UTI and severe nerve pain in my thigh into the mix when you are battling insurance companies for various reasons..YIKES it has been making it tough on those around me and my sense of humor has taken a beating .. but storms don't last forever.. today is a much better day ☀️

[Jesmcd2 CommunityAmbassador in reply to AquaZumbaFan]

Feel better soon AquaZumbaFan 🤗💕🌠

[AquaZumbaFan in reply to Jesmcd2]

Thanks a lot! Today is light years away from where I was earlier this week 🤗

[Fancy59 CommunityAmbassador]

Quite simply, survival. Despite the pain, despite the depression, despite the everyday challenges of simply being able to live an assemblence of life. Fancy59.