My new life

[MrsDenny17]

Hi all. I was diagnosed with MS in November of 2017. The fatigue was hard but Nuvigil has helped. My emotions go crazy...which sucks. Looking forward to meeting ya’all and learning.

[Royjr]

Welcome and glad to meet you.

[janetb1968]

Hi MrsDenny17 lovely to meet u xxx

[Fancy1959]

Hello MrsDenny17, it's Fancy1959 nd I would like to officially welcome you to this incredible chat room. You have found a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand what you are going through. This chat room is full of some of the most caring, compassionate, and kind of people I have ever met. I can't wait to learn more about you and get to know you better. Simply post to us any questions or concerns you have or even fun facts about you and we will quickly learn more about you and in the process you will learn more about us.

The fatigue you are experiencing is very very common and one of the hardest things to overcome about MS. I am glad that the Nuvigil has helped you conquer parts of your fatigue. As far as emotions going haywire, with what we experience on a day-to-day basis and how this monster progresses and steals away, little by little, pieces of our self, how can our emotions not be affected. 😲😬This Monster puts his on a roller coaster ride 🎢so hang on, and be ready for both the ups and downs of our disease and know that we are simply opposed to away when you need us. Until we speak again please take care and know that together we are stronger!👭👬👫💪

[MrsDenny17 in reply to Fancy1959]

Thank you. I appreciate the information and the friendly words.

[SometimesCrazy]

Greetings & Salutations,

Put your seat belt on because you are going on a roller coaster ride. Sometimes it's good (aka new normal) and sometimes it sucks. Depends on the day, minute, hour or second. My emotions, except maybe frustration or anger, I have decided to hide for my self preservation. I'm going to try to work on that. The name I picked, SometimesCrazy, is totally me depending on the hour or minute. Were here for you.

[MrsDenny17 in reply to SometimesCrazy]

I love the name! My best friend and I have been joking about our crazy lately!

[Tracy79]

I just joined this site as well. I was diagnosed in 1995 and have lived well with the disease. My emotions are up and down and the fatigue is frustrating but I have a great neurologist.

[MrsDenny17 in reply to Tracy79]

I’m so glad to hear. It gives me hope!

[ssdw1958]

Welcome to the pack I hope all goes well with you.

[Morllyn]

Welcome to the group MrsDenny17 !

[gatorman15]

Welcome MreDenny17. Glad you are getting some positive response from Nuvigil.

[kdali]

Welcome crazy emotions! 🎉😵 I'm glad Nuvigil is helping you.

[greaterexp]

MrsDenny17 welcome to a great site. It's been a huge blessing to me! We look forward to getting to know you better.

[Peppard]

Welcome! I’m new to this site too. Everyone has been very welcoming.

[pihokken]

Welcome! I just joined also. The way I describe the fatigue to people is imagine you take a shower and you have to lay in bed for a good while before finding the strength to get dressed! Best of luck!

[kdali in reply to pihokken]

Ain't that the truth!

[Doubled51]

Welcome MrsDenny17 . Glad you found us. I was dx April 2017 but this site has helped me so much.

The fatigue is terrible. I take modafinil and it’s a great help. I always describe the fatigue as a lamp that gets unplugged. Absolutely no power.🤗🤗

Donnie

[MrsDenny17 in reply to Doubled51]

That is a great explanation of fatigue.

[Doubled51 in reply to MrsDenny17]

It was the best way I could explain it. That’s how bad it is so much of the time.

Donnie

[SometimesCrazy in reply to Doubled51]

That's a GREAT analogy. I think I might even remember it. Maybe, hopefully... l 9l

[Doubled51 in reply to SometimesCrazy]

That one I can remember.😋

Donnie

[Texascubbie]

HI there-- I hear you on emotions--mine are playing up the last year or so, and fatigue is an absolute KILLER. Switched to modafinil/provigil I think is brand name last few months, and it's less effective than the Adderall generic I was on. When I first took ocrevus back in 2009 as a clinical trial participant, I noticed it really helped fatigue. I've just had my first full infusion of it in January and I hope it helps out there too. When I was Dxed and got into the clinical trial, I was walking very slowly, with a cane, and so tired it was hard to wake up, even. Within a few months of ocrevus then, I was feeling SO much better. So I'll have to give it time, get back on adderall for fatigue, and be more patient with myself!

[MrsDenny17]

Yes I have learned that patience with ourselves is so important. Where in Texas are you from?