Do you have a Tribe?: So MSAA_Staff 's... - My MSAA Community

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Do you have a Tribe?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’16 Replies

So MSAA_Staff 's post says close to 70% of us have felt isolated and loneliness in the past 6 months....

Oh what do, what to do..

Seriously! I'm asking, how do we fix this? What do you do? πŸ€—πŸ’•

J🌠

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Jesmcd2 profile image
Jesmcd2
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16 Replies
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falalalala profile image
falalalala

In my real life I have friends and family that I can rant to.

None of them can run fast. :D

When it comes to finding others that understand what MS can do,this site is very good.Especially for those who are home-bound.

I think any fix lies within the individual.

Pursue hobbies, interests, exercise, good diet-all of which can help lift one's state of mind.

Raingrrl profile image
Raingrrl

I’m lucky that my family and close friends are all comfortable with technology. We use technology to stay in touch throughout the day which helps me feel less alone in my confinement. Sometimes a brief text exchange is a good mood boost and sometimes a phone call is needed. Just depends. It was my saving grace when I was stuck in the ER for 6 1/2 hours on Xmas Eve. I was texting with 3 friends throughout so I didn’t feel alone.

I also have one small group of long time friends that have a Zoom happy hour once a month. It’s definitely not the same as meeting up for brunch but it’s better than nothing. 😬

Sezlatham profile image
Sezlatham

Ah , the big question, ms is lonely but not. You have us here, the ones that do not understand will learn, adapt or you will find a stronger support group

pamgarner profile image
pamgarner

I really try to keep my life as normal as it was before ms.but nobody expected covid,and my tribe including the chief(my husband are very supportive

mrsmike9 profile image
mrsmike9

I read. It's like trying on someone else's life for awhile.

rjoneslaw profile image
rjoneslaw

ur part of my MS tribe

Sandydemop profile image
Sandydemop

keep typing. stay in touch.

6092177588 profile image
6092177588

Thanks. So important! Can you tell me about cmt I think you said about your genetic?

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply to6092177588

CMT? Or DMT? I'm not understanding the question... But it's early!πŸ€—πŸ’•πŸŒ 

carolek572 profile image
carolek572CommunityAmbassador

I have been alone for the past 10 years or so, Jesmcd2

Alone but not lonely, as my hubs is always here for me. Never would have put this on anyone, yet here we are...

:-D

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tocarolek572

I have been alone 55 yrs! πŸ˜‚πŸ€£πŸ˜‚ It's all good!

carolek572 profile image
carolek572CommunityAmbassadorβ€’ in reply toJesmcd2

You have a friend in me πŸ€—

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tocarolek572

Toy story!!!

Doubled51 profile image
Doubled51

Me to.πŸ˜‚πŸ˜‡πŸ˜‡πŸ˜‡πŸ˜‡.

Donnie

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toDoubled51

Stop your nonsense Doubled51 πŸ˜‚πŸ€£πŸ˜‚πŸ€—πŸ’•πŸŒ 

Doubled51 profile image
Doubled51β€’ in reply toJesmcd2

Trust me Jes. Loneliness is the last thing to worry about when these 2 kids are here.πŸ™ƒπŸ™ƒπŸ™‚.

Donnie

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