Got my Ocruvus yesterday!: And my PPSV2... - My MSAA Community

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Got my Ocruvus yesterday!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’21 Replies

And my PPSV23, I would have waited a few weeks, but my town is dumb.. and won't get vaccinated... Enough of that... Anyway.... πŸ˜‚πŸ€£ I also had the nurse that had to triple check that I don't take steroids πŸ˜” and waited an hour for the meds... So I just didn't careπŸ˜‚πŸ€£ Cause I knew there was no way she was going to let me go early!πŸ˜”πŸ™ƒπŸ˜‚πŸ€£

Those that have been on Ocrevus for a few years, do you still have to stay an hour? Or do you get to go a little early? What do you think about it? Just curious... πŸ€—πŸ’•πŸŒ 

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Jesmcd2
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twooldcrows profile image
twooldcrows

still have to wait for they say they have to for to make sure you don't have any reactions ....not shorter either like they say they can make it ...i guess they are worried but i would rather be safe than leave early ...that is my way for i do have a kind of long drive home so i wonder if maybe that is why they make me wait...i don't know ...take care and be safe....

kwhompus profile image
kwhompusβ€’ in reply totwooldcrows

Yes, I still have to wait an hour after my infusion and I've been getting infusions since "O" first became available. What we have done is make my bi annual consultation to follow the infusion. Yea there's still some waiting,but at least it is somewhat fruitful.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tokwhompus

I got to do that once πŸ€£πŸ˜‚ kwhompus then never again πŸ˜” πŸ€£πŸ€—πŸ’•πŸŒ 

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totwooldcrows

Have you asked about the shorter one twooldcrows ? I'm sorry about the long drive! It makes it for a long day! πŸ€—πŸ’•πŸŒ 

twooldcrows profile image
twooldcrowsβ€’ in reply toJesmcd2

it isn't to bad for it lets me do some shopping in this town for i don't go except for doctor appointments or business of course to see our son at times....who doesn't like shopping for things i can't get in my little town...of course i will sleep really good when i do get home ....hahahahhahah....have a wonderful day and have some fun ....have done this since starting Ocrevus in 2017..i can't imagine not getting the infusions ...i am to get mine this month but just waiting for the day ...i guess it is a little messed up for i usually know a long time before when i go in ...so just waiting ...called yesterday and they said they are waiting for the update from the provider ,so i called my doctors office and she said she would take care of this bs...ahhahahahaha...haven't heard anything yet ...so i guess i will have to call again...i am persist....till we talk again..hahahahhahahahahah...have a good laugh or two ....loves....

twooldcrows profile image
twooldcrowsβ€’ in reply toJesmcd2

can't remember what they said so i guess i should ask again and i will have more time to shop...ahhahahha especially now with winter it gets dark so much earlier ...i am always home before dark unless something that has happened that made me late for it is hard to see at night for we don't have all the lights along the way home for they don't want all the lights to keep us from seeing the stars ...can't remember what it is called ,i just say they want to be able to see the stars for if there is lots of city lights you can't see the beauty of the stars it is as if you could touch them they are so close for our altitude is so high...they are very beautiful...just wish i could figure them out for i can't see them so good like they show on paper .....take care and enjoy the life we all have no matter what is going on around us ....be safe .....loves to all ....

Redken007 profile image
Redken007

Hi Jesmcd2, yes, post dose all the patients need to stay in at least an hour and be observed.This is for a safety reasons and in case of unexpected derious reaction which might occure easily they would be in real trouble.It's unpredictable... so safety comes first.How do you feel anyway? Do you get any sore throat, headache, migrene, muscle pain?? How fast was your drip?2hrs?

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toRedken007

Hi Redken007 I received the 2hr drip.. and I usually feel achy for a cpl days after. I take Flexeril if it gets to bad. Thank you for asking! How long have you been on Ocrevus? Do you get symptoms?πŸ€—πŸ’•πŸŒ 

Raingrrl profile image
Raingrrl

Hi Jes! I’ve going on 5 years on Ocrevus. My last 2 infusions have been the rapid method which makes the infusion part go much quicker but I still wait after the infusion to insure there isn’t an a reaction. I think they are only having me wait 30 minutes though. Overall, if the pharmacy mixes the Ocrevus right after it’s ordered, (which isn’t always the case), I’m out in about 4 hours total compared to over 6 before.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toRaingrrl

Yup, the other nurse let's me go about 20-15 mins early Raingrrl πŸ€£πŸ˜‚πŸ€—πŸ’•πŸŒ 

kdali profile image
kdali

Yay! Mine are given at home, so I don’t pay attention 🀣

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tokdali

Hook me up kdali !! πŸ˜‚πŸ€£πŸ€—πŸ’•πŸŒ 

kdali profile image
kdaliβ€’ in reply toJesmcd2

It wasn’t my decision 🀣 My insurance doesn’t want to pay more for it, so we do home care. Maybe you can ask your MD if they have anyone getting O at home! I think it costs me $5.

I take the pre-meds at home of Claritin and Pepcid three days before day of & two days after. Do not take any pre-meds at the infusion center except for the steroids I have the quicker infusion but I do still have to wait an hour afterwards. I will be starting a five month rotation instead of six months beginning with the next infusion. What is PPSV 23?

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toGoldilockssearching

Hi Goldilockssearching it's the mega pneumonia shot.. I have the paper here, under some boxes of pictures that need to go into an album πŸ€£πŸ˜‚πŸ€—πŸ’•πŸŒ 

Cutefreckles72 profile image
Cutefreckles72

Hi Jesmcd2, I have had six infusions of Ocrevus and I still have to wait an extra hour to make sure everything is ok before I leave. My total time at the hospital is six to seven hours.

pamgarner profile image
pamgarnerβ€’ in reply toCutefreckles72

there is a new infusion with ocrevus of 2 hour,the long version is 30 drops of iv per minute,the new is 300 drops per minute.talk to your dr about it.i have had it 2x now or call ocrevus they will give you info

pamgarner profile image
pamgarner

no,after 5 years,it is 30 minutes.but I tel my nurses i have never had a reaction after 5 years ,but make sure you have had no reactioni i am good, and leave after about 15 minutes,

ahrogers profile image
ahrogers

I have been on it since 2016 and they keep me for some amount of time after the infusion but I don't pay attention for how long. I need time for the Benadryl to wear off so I can drive home so am never in a hurry to get out. I did get the shorter infusion last time.

Trucker97 profile image
Trucker97

It took 45 minutes the second time I went

Spanishpopmama profile image
Spanishpopmama

I have been on Ocrevius for years and go to Dartmouth Hitchcock Medical Center. They made me wait after the first two initial doses and then after that I don’t have to wait any longer. This is since I’ve never had any symptoms or side effects.

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