G'day ms friends and family. That is all of YOU. BIGGISH NEWS. Ocrevus is officially started my next infusion will be in October or Novemberish. Seeing if I can work every 5 months. My research does not say every 6 months and have read of people having issues after 5.5 months. having had issues in my 20+ years I am pretty sure I do not want to start now. Of course, if YOU find something different please let me know.
I felt so sorry for the nurses, they were nice older ladies, doing their best. My veins for some reason just wouldn't cooperate. Bloody-minded things, anyway finally got it in my hand, and all was good. Being a Sunday I could hear the radio and enjoyed walking laps around the infusion room with no looks from people. So all went well. I still suggest the medicine but it is your body and if YOu do not want to do the best that YOU can for yourself that is your choice.
Personally, I would like to make the next 20+ years better than the first 20.
Have a good day and only push yourself to a 3 level, not overboard we are a little sick after all.
Royce
Be good.
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RoyceNewton
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Hi Royce glad you had no problems, I just last Thurs started my 7th year. I have a question about how you can get the infusion at 5.5 months that would really help me as this time I was drained the last 2 weeks. I'll talk to my Dr. & see what she says.
Remember to hydrate before your appointment, it helps your veins cooperate better Learned that lesson from going for an MRI, and they had a hard time getting a vein for the dye. Glad your experience was good! Good luck at your next one! Keep us updated!
I have been doing every 5 months last few infusions So much better! Still notice it’s “time” but not as long or strong. kycmary just ask neuro! Mine took a few times but finally agreed. I don’t mind being persistent 😂 Now we are trying no steroids in Aug as well.
fantastic ...so glad all went well and i to have in my hand ....so wonderful ...so glad you were able to walk around the room ....yayayyaya....love and happiness for you ....
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Learned that lesson from going for an MRI, and they had a hard time getting a vein for the dye. Glad your experience was good! Good luck at your next one! Keep us updated!
G'day again All
