Post 592 A little lost 1 Feb 2020 - My MSAA Community

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Post 592 A little lost 1 Feb 2020

RoyceNewton profile image
13 Replies

Are "YOU" a little lost, a little confused, a little in despair, very scared. Welcome “YOU” are a part of the family, “YOU” are one of us. This is life with Relapsing-Remitting ms (RRms). that is normal, “YOU” are normal there is absolutely nothing to panic about. In MY NON-MEDICAL OPINIONPERHAAPS “YOU” DO NOT NEED ANTI-DEPRESSANTS, DRUGS, ALCOHOL. Maybe there is a very good reason that “YOU” feel the way “YOU” do. I will take a stab in the dark here and say “YOU” feel the way “YOU” do because “YOU” were just diagnosed (Dx’d) with a chronic progressive incurable medical condition that nobody can fix, let alone treat really effectively.

AM I RIGHT?

Or perhaps “YOU” have had it for a while and are just flat out tired. The endless embarrassments. The non-stop having to ask for help, the uncertainty, it is a challenge. One that “YOU” must face. Physically alone, unfortunately. We as a social species, we do our best in groups. RRms demands that we do life alone. We do not have to be totally alone, we have this family, we have other groups. Some even have ms partners. As great as they can be we still need to be strong in ourselves. Have the tenacity and willpower to take that next step. Rest awhile, if we need to but eventually get up and keep walking. RRms does not end, it never goes away it will be there until we pass. Is it your intention to make that journey as miserable as possible for yourself, OR is it to do the absolute best that “YOU” can. To look ms squarely in the eye, and cry out NO NOT ME. RRms may have a tight hold on “YOU” but “YOU” can still wiggle squirm and loosen its grip in someway if even for a little while. R Rms may have caught "YOU” but “YOU” do not have to allow yourself to become its a powerless prisoner.

Eat healthily, exercise, have positive influences. Look for the bits in life that are not so colourless and dark. Try to find the light even if it is just a dim hazy blur. Go that way. We are sick, I doubt we will ever be healthy again, but there is no need to be the cold dark cellar crying. Stand up, pull your shoulders back be proud. “YOU” can do this. RRms does not have to rule “YOU<YOU” still have a will, a light within “YOU”. A dim flame that burns and gives “YOU” strength and the will to face another 10 seconds. “YOU” can do that cant "YOU". Now another then another.

Royce (the ms writer)

I can do 10 seconds that is all I need

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RoyceNewton profile image
RoyceNewton
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13 Replies
twooldcrows profile image
twooldcrows

saying everything i agree to and know what i have to do to enjoy my life with our monster but yes we all will find a different ways of working with it for i will never let it will i want to see my children grow old with us and all of my great grand children that are fabulous and i want to watch all of them grow up and have a wonderful great life for doing what they want to show we can all do what we want if we work at it and if so need help to ask for it if needed ....wow ..sorry about going on but i do feel i will see all of them grow up...grand children,great grand children..they all are very special to me and my children know that too ...love them all and want the best for all of them ....love and much happiness to all hope you believe in our lives as much as i do ...this monster wont stop me ...lets all keep fighting the monster ...we are all warriors....

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

A great and worthy goal, to pass on your strength and c ourage to your family, might I say that is a goal worth living for.

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Royce YOU are definitely the Writer! You caught me on an afternoon where I'm running around like witless idiot. Nervous, angxious, Trying to get a few things done now so I won't worry about them the next few days. You see, I will enter the hospital at 6:00 AM for a left hip replacement,surgery at 9.00 AM. Not related to MS. I've had very aggressive osteoarthritis that began in my late 30's. I will post sometime soon after with an update!

2littletime profile image
2littletime in reply toCalfeeChick

I will have you in my thoughts & prayers.

RoyceNewton profile image
RoyceNewton in reply toCalfeeChick

I hope it goes well for you and you recover fast

IFwczs profile image
IFwczs

Wonderful post, thank you. It also pertains to progressive MS.

RoyceNewton profile image
RoyceNewton in reply toIFwczs

I did not know that, thankyou

2littletime profile image
2littletime

Lots to think about...

RoyceNewton profile image
RoyceNewton in reply to2littletime

always the goal to give you something to think about

carolek572 profile image
carolek572CommunityAmbassador

Some days, grayer than others, but I do believe that the sun will come out tomorrow! :-D

RoyceNewton profile image
RoyceNewton in reply tocarolek572

isn't that a song?

carolek572 profile image
carolek572CommunityAmbassador in reply toRoyceNewton

In a musical called Annie, I believe :-D

RoyceNewton profile image
RoyceNewton in reply tocarolek572

okay thanks

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