Leg Pain: Unaccustomedly, I've had a brand... - My MSAA Community

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Leg Pain

gracy225 profile image
14 Replies

Unaccustomedly, I've had a brand-new type of leg pain. Although I have always had pain from MS this is different. I can best describe at as someone broke both legs then put them back together the wrong way. Especially, my knees. Any one similar? Fire, too I would say; when in pain they feel on fire as well as put together wrong. Any help out there?

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gracy225 profile image
gracy225
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14 Replies
jimeka profile image
jimeka

Hi Gracy, have you told your doctor or neurologist? I hope you get some answers, it’s awful when your muscles burn 🔥 blessings Jimeka

gracy225 profile image
gracy225 in reply tojimeka

Hi jimeka, thanks so much for replying! I have not told my dr. yet as I do not like nor find helpful the current facility I go to. Her answer will be, I can almost guarantee it's "the nature of MS". either that or a stronger muscle relaxer (which would make me feel like an over cooked noodle). xgracy

Sandydemop profile image
Sandydemop

Hi gracy225 i have had a burning pain in my calves. For one side i added magnesium capsules and the spasms went away. YAY. i was putting all my weight on my stronger side which led to achilles tendonitis on the other side. It burns a lot. i've tried lots of things. Today i put on a lidocaine patch which seems to be helping. I have a long list of what didn't work.

gracy225 profile image
gracy225 in reply toSandydemop

Hi Sandy, thanks so much for replying. Although I do plan on telling my neuro dr., the sad truth is she'll tell me "it's the nature of MS". helpful, right?

Sandydemop profile image
Sandydemop in reply togracy225

not necessarily. there are things you can do. Doctors call it interventions. did you try icing it?

Mb2112 profile image
Mb2112

I’ve had the burning sensation and by itself is enough. Thankfully it went away on its own. I can’t imagine what you must be going through with both issues. I agree that you should tell your neurologist. I just sent a prayer your way.

gracy225 profile image
gracy225 in reply toMb2112

Hi Mb...thank you for the prayer! It meant a lot to me and by the way, today is so much better! xgracy

Sandydemop profile image
Sandydemop in reply togracy225

so glad you are having a better day. do you notice if it is tied to the weather?

Mb2112 profile image
Mb2112

God is good!

Mb2112 profile image
Mb2112 in reply toMb2112

thinking back I believe my burning sensation was caused by an issue with inflammation in my hip. Please check with your neurologist.

Cutefreckles72 profile image
Cutefreckles72

Hi gracy225, I have a burning sensation in both of my legs as well. My burning didn't start until I was diagnosed with MS. Now I take Gabapentin to come it down. I suggest talking to your Neuro. Everyone with MS is different.

mrsmike9 profile image
mrsmike9

Ow! It sounds terrible! Don't discount the neuro without giving him/her a chance. As if the reply is what you expect, put your foot down and advocate for yourself!

pamgarner profile image
pamgarner

myself my legs have felt like over the years pins and needles and complete numbness,switches up.haven't found a med yet, good luck to you and if you find it please share...

BlanketTime1 profile image
BlanketTime1

unfortunately i don't have any answers. i spent the first year of my life as a disabled person convinced i just had a broken foot and once it healed, everything would go back to normal. i had countless scans where they looked for a tiny fracture. the thing was, on some days it felt odd, but more or less okay, then suddenly it felt broken again. i started hearing, 'what are the symptoms of ms,' from doctors talking to each other around the corner.

i ignored them and kept hoping... until i started having trouble holding my urine. then i was more willing to listen. sad to say, sometimes it still feels like i have a broken foot and now it's moved into the ankle on the same side.

i'd definitely go see your doctor as it might be something like avascular necrosis, which can be treated, and since we've all taken entirely too many steroids, is a possibility. or it could be like mine, or something else entirely. i hope you can see a doctor soon.🤗

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