Age 56. Diagnosed May 2021. Started Vumerity October 4, 2021, full dose October 11. Other than blisters appearing on my ears the 2nd week(supposedly coincidental) I’ve had no problems.
December 2021, MS specialist at UTSW believes I may be primary progressive. Stay with Vumerity
March 7, 2022 MRI of the brain shows active lesion. (Still not sure of the ramifications)
MD has ordered Ocrevus. Initially, I and my husband heard him state I would be off the Vumerity for a time, to get it out of my system & rebuild immunity. Though when I double & triple checked, he now says I’ll stay on the Vumerity till the day of my first infusion, once approved.
Has anyone else been down this road? Thoughts or suggestions? Unfortunately life this past month has been so busy, I’ve not researched any of this how I would like to. Thank y’all for any input.
Written by
SandraKOE
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Hi! I’m so sorry you’re having to go through this. I’m not familiar with this, but if you’re unsure, I’d definitely ask your neurologist more questions ❤️
I was never on Vumerity but when they changed my DMTs in the past they did have me stay on the previous one until I started the new one. I don't think they want your immune system to rebuild since it is what's causing the damage.
I haven’t being down the road with the change yet. In the event my insurance expired and I will be changing from Dimethyl Fumarate(Tecfidera) to Vumerity soon. Praying my response will go well. Praying all will go well with you also🙏🏾
I am not familiar with Vumerity. What I do know if you have been on it and still have active lessions then it's not working for you.There are so many DMT's out there you may need to change medications several different times till they find the one that works best for you.
with you still have lots of activity i would be asking the doctor why am i not changed the meds to something better with so much out there and i didn't have to stop the other meds i just had to keep on them till the new meds came in.....good luck and keep asking the doctor lots of questions for this is YOU LIFE ...don't let anyone tell you anything different for it is your life and you want to live it for as long as god lets you ....love and happiness is great medicine....laugh and smile ....
I guess I don’t understand, something better? I thought Vumerity was something better. It’s newer, I had no side effects and it is by mouth. But evidently it’s not working. The MD just said Ocrevus since I may be primary progressive. I can swallow meds but I’m very adverse to anything with a needle. We are also having trouble finding an infusion center near me (small town).
i am so sorry about all of this ....it is confusing and we are at there beck and call if we don't stand up and tell them what we want and if they don't want to do what you want make them show you why you can't do what you want...i have a great doctor that has done lots of medical specializing in MS so i don't have any problems with her , she usually will tell me about something to think about before i even ask ...is your doctor specialized in MS if not that is part of the problem ??? so many don't know much about it and want to treat like they do with anyone else in their profession ...ask the MS Society for any questions that you have for they are great for answering any for you ....good luck stay strong....
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Blood Test & Ocrevus B-cell repopulation & Covid immunity 
Changing to Ocrevus. 
Help- Ocrevus with spms?
