Vumerity : I started the new treatment... - My MSAA Community

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Vumerity

nicoly3467 profile image
6 Replies

I started the new treatment Vumerity two days ago (Thurs) and so far, it doesn’t seem to be working well for me. It’s an oral capsule form and I was on Tecfidera (capsule) before this for over a year and that was my best Treatment. Yesterday, I had much less energy than usual even with my daily intense MS fatigue. I get that there’s a period of adjustment in beginning of starting a new medicine or doing a switch like what I’m doing to Vumerity, which is very similar to Tecfidera in composition and function, but I don’t recall ever feeling so badly after starting a new treatment. After an infusion, I’d always feel really tired day of infusion, which is to be expected and around third day like getting over the hump, but after that it was great. This am, I felt extremely tired and hardly wanted to get out of bed. I got a cup of coffee and went back to bed; That’s not me! Usually, first few hours in morning are my best and I have the most energy. Now it’s almost 1 pm and I feel very weak and still lying down in bed. I know something is not right. I called my Neuro’s urgent line and left VM. The weekend on-call doc (not my Neuro) will give me a call back soon. Now, just waiting for call back on what to do, ugh!!! This sucks.

Thanks for listening today! I hope and pray I get an answer soon.

Nikki

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6 Replies
jimeka profile image
jimeka

Sorry that you are feeling rough Nikki, I hope and pray that this is only temporary. Please keep us informed as to how you are. Blessings Jimeka 🙏

greaterexp profile image
greaterexp

I sure hope you hear back from the neurologist quickly. I'm sorry you're feeling so rough. Please let us know how you are.

rjoneslaw profile image
rjoneslaw

I hope you back soon I what’s going on now really sucks for you. I hope they call you soon

bxrmom profile image
bxrmom

nicoly3467 I'm sorry you are not feeling so good after taking your new rx. Hope you have heard back from the oncall Neuro by now. Keep us updated when you can.

Jessie

mrsmike9 profile image
mrsmike9

Hopefully it is just an adjustment time. Hope you perk up soon!

Frances_B profile image
Frances_B

If Tec was working well for you then why did you get changed over to Vumerity (which is still a fumarate medication)? How long did you have off Tec before starting the new meds?

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