Changing to Ocrevus. : I have been on... - My MSAA Community

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Changing to Ocrevus.

Clynnkir profile image
6 Replies

I have been on Aubagio since 2013.

Now it's causing my blood pressure to stay too high

My neurologist has suggested Ocrevus . I have not made a decision yet .

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Clynnkir profile image
Clynnkir
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6 Replies
greaterexp profile image
greaterexp

After being on Copaxone for a couple of years and tolerating it well, my doctor suggests that I switch to Ocrevus, which she feels may slow my progression better. I keep reading more and more to feel comfortable with that suggestion. It's always a little scary to change to the "unknown." Ocrevus is well studied, but it's still new to me.

Let us know what you decide.

rjoneslaw profile image
rjoneslaw in reply to greaterexp

As u know Ocrevus has been a hot topic lately on the forum from me and others.

I actually made my decision to switch from Tecfidera to Ocrevus from this group and the Ocrevus group on Facebook.

I also ordered material from Genentech the company the makes it. They have info on their site that was helpful as well, I called the 800 number because I had some additional questions I wanted answered.

I plan to go to Genentech info diner to talk to them and hear what they have to say.

I start Ocrevus in June. I have to b off tecfidera for a month because that's how long it takes for it to b out of my system

hairbrain4 profile image
hairbrain4

I love being on Ocrevus. I just had my 1st full dose last week and I feel great! Since I started I have not had any relapses and most of the pain is gone along with the muscle spasms. I no longer have to take 30 mg. of baclofen. My energy is up as if I have never had any fatigue. I think it also helps with the mental state too because I feel good rather than lifeless and in pain. I had been on Copaxone for 10 years except for a 2 year period that I was on Tecfedera which didn't work well for me at all. Good luck with it.

dailygrump40 profile image
dailygrump40

I go for my 1 year infusion on May 22. Because I'm having some issues with my walking and balance and my stepdaughter is getting married on May 11. I'm getting some Somedral pills to relieve the stress. If I could've made the trip to my nueros practice they would've put me on the 3 day steriod plan to work on setting the nerves down. Other than the past week of these issues I've been improving. Slowly, but improving. Walking was getting better. Memory has greatly improved. Balance is improving. Other then Tysabri which lasted 3 yrs until it wasn't fully effective anymore. After a week I would feel like needed another dose of it. But Ty and Ocrevus have been the only 2 I've had anu success with. I've been on Avonex and Tecfidera also. Tec gave me vivid dreams and my body didn't agree with the side effects of Avonex. Good luck amd I hope ot works for you.

stam profile image
stam

I've been on Ocrevus since it was approved - I'm the first of my neuro's patients to go on it. For the first few months I couldn't tell a difference and was a bit disappointed. But now I feel really good. We just received devastating news about my husband's health and I handled that without going into a flair. I'm very pleased with this treatment so far and highly recommend it.

Btrix1234 profile image
Btrix1234

I started Ocrevus 2 months after it became available in the US and haven't had any problems with it. I personally love how infusions are just needed twice a year and I no longer have to self-inject.

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