Injectable for MS: Has anyone been on... - My MSAA Community

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Injectable for MS

bug54 profile image
5 Replies

Has anyone been on Kesimpta for their MS ?

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bug54 profile image
bug54
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5 Replies
jimeka profile image
jimeka

Hi and welcome. Congratulations on over coming breat cancer, that sure is a relief for you and hopefully your ms is more stable now. A couple of members are currently trying Kesimpta so hopefully they will come forward. It is a relatively new treatment and an alternative to Ocrevus. I hope that you get the help you need. Blessings Jimeka 😊

CV97 profile image
CV97

If you search the site for Kesimpta, you can find several posts about it from various people.

I am currently taking Kesimpta. I started it in mid-April. I took Aubagio for about 2.5 years prior.

kdali profile image
kdali

Welcome! I started it in Jan and my last shot was about 8 weeks ago (had weird accumulated side effects). I thought it was easy, zero site reactions, and am pretty bummed my body didn’t react well to the drug. Alongside Kesimpta is very helpful with information and fighting insurance if needed. It provided my shots for free until insurance took over, and then paid the copay in a way that met my deductible also 👏👏

Sandydemop profile image
Sandydemop in reply to kdali

hi kdali what were the accumulated side effects?

kdali profile image
kdali in reply to Sandydemop

Increased spasticity, hair loss that didn’t stop, and skin issues that worsened with each dose (red burning itchy face, burning eyes and tears, a stye and boil that wouldn’t heal). The face was the most bizarre of all of those, and despite peeling around the 3rd week, I did not have a glowly post chemical peel fresh look. Drug interactions were questioned by Novartis, but I really don’t much and don’t drink. B cell depletion was been questioned also, but I’m only 8 weeks out and feeling fabulous. It’s a mystery that I’m going to blame on abnormal drug metabolism. 🤷‍♀️🤯

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