MS...NOT FOR WHIMPS!

[robster1]

This week has been a wonderful week (even w/all the stress that’s generated for obvious reasons).

Today is another story. I couldn’t sleep good last night. I would fall asleep for an hour then wake up for an hour (not good for us MSers). When I crawled out of bed this morning at almost 9am (I NEVER sleep past 7am EVER)...I noticed my walking (hobbling) was very labored and tiresome. I said to myself “ I need some good strong coffee and my wide assortment of dope that usually is part of my daily ritual like most of us. I did all I said I was going to do and patiently sat down & waited for all to kick in. In reality the “kick in” never kicked!

All that being said it still (after 3 yrs) blows my mind just how challenging, difficult, confusing, confounding, frustrating, maddening & humbling this MS thing can be. Not just weekly...we’re talking daily, hourly & yes even minute by minute.

Thank you all for allowing me to vent. Lol

I’m thankful for everyone I have the pleasure & opportunity to experience life w/though our post & replies. I love you all dearly, but God loves you more.

[twooldcrows]

ha welcome to my world without the sleep for the last couple of days ...i figure something is going to happen or already has ....ahhahahaha.....we think to much ...ahhahahha...have a great day ....

[robster1 in reply to twooldcrows]

Well twooldcrows i think you’ve got a good point. Over analyzing is one of my many character defects!🤪

[greaterexp]

The roller coaster is maddening, but it’s made so much more bearable by everyone here who props me up. I thank God for you all!

[robster1 in reply to greaterexp]

Exactly. With the lack of proper support no individual can overcome. Like you greaterexp I’m forever grateful for all!

[mrsmike9 in reply to greaterexp]

Amen, sister!

[pamgarner]

my favorite is "this too shall pass" but we know with ms,you never know how that day is going to go.Alot of mine are very tiring,frustrating,but I also have to think about how I am going to get a certain job done and I am forced to come up with another way to do it,now all of it gets done,might take 10x as long but it is done and i am accomplished

[robster1 in reply to pamgarner]

Amen Pam. We must keep moving forward more at the speed of a turtle. It just takes more planning.

[jimeka]

Never give in. Have hope, have faith and love. 😊

[rjoneslaw]

ur welcome

[4fishylady]

Hey, we may be a little slow at times, but remember the old story of the Tortoise and the Hare - the turtle wins, every time! Praying for God's good blessings to you all today and until this nightmare ends!

[carolek572 CommunityAmbassador]

I cannot continue without a little help from God, loved ones, and my friends. For that, I am eternally grateful. Keep Smiling, robster1

[robster1 in reply to carolek572]

Thank you carolek572. My thoughts exactly. God bless you & yours.

[carolek572 CommunityAmbassador in reply to robster1]

We shall get though this together

[jeffsgirl]

Hang in there! Stress is making us all a little crazy right now. I'm so used to keeping busy by volunteering as much as I can so not being able to do anything is driving me up the walls...lol.

I've learned to try and manage my fatigue around the events I have planned so I'm able to enjoy them. I've never been a good sleeper, even before my MS, so it's getting even worse now. I've been reading late into the night or early mornings ... I figure if I can't sleep than I will catch up on my reading. Stay healthy!

[robster1 in reply to jeffsgirl]

Thank you for the encouragement jeffsgirl!