6 yrs ago this month: I was sitting in the... - My MSAA Community

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6 yrs ago this month

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
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I was sitting in the neurologist office with my oldest daughter. Thinking this is all a mistake.

Til the Dr came in and said yes you have MS. And showed me the lesions. So I asked when do we cut them out? You do brain surgery all the time.

That is how little I knew about MS.

Since then I've learned more about it than I probably want to know.

Most of it from here!

I've also learned that the best people that understand are the ones who can relate with what your going through!

Thank You for being the Best People!πŸ€—πŸ’•πŸŒ 

PS.. March is not a good month for me!😐

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Jesmcd2
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Midgey_Midge06 profile image
Midgey_Midge06

Four days from now it will be 7 years when i went with a friend to hear the news. She took me out for a drink after that - had to be 5 o’clock somewhere right?- and i had a Pina Colada while i tried to absorb what i had just heard.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Midgey_Midge06

It was a shocker for sure Midgey! I remember kinda yelling in the parking garage, I'm going to die!πŸ˜­πŸ˜”πŸ€—πŸ’•πŸŒ 

Midgey_Midge06 profile image
Midgey_Midge06 in reply to Jesmcd2

Ya that i s pretty much what was running threw my mind for sure. Now i know it will be a long time before i die as ms messing with my nervous system like a bunch of lil gremlins.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Midgey_Midge06

Nano bots!πŸ˜‚πŸ€£πŸ€—πŸ’•πŸŒ 

Midgey_Midge06 profile image
Midgey_Midge06 in reply to Jesmcd2

Lol! Better descriptive for sure

IFwczs profile image
IFwczs in reply to Midgey_Midge06

7 years for me, next month. I was actually diagnosed over the phone (my MRI results came in). Yes, unforgettable day. First thing I did when I found out was booking a trip to Venice, Italy. I wouldn't have been able to go if I hadn't gone then. Especially now. So you can say it worked out. :)

Morllyn profile image
Morllyn

Thank you for your help and input over the years. πŸ€—β€οΈβ™₯️

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Morllyn

Thank you for yours Morllyn !!🌹 Btw you still have to do the phone post!β˜ΊοΈπŸ€—πŸ’•πŸŒ 

RoyceNewton profile image
RoyceNewton

my condolences, maybe I am not exactly sure what date. At least I can change it according to my whim.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to RoyceNewton

Not condolences, as it figures!πŸ€£πŸ€—πŸ’•πŸŒ 

JSSimp profile image
JSSimp

I was diagnosed March 2, 2020.. Celebrated my 1yr Anniversary with MS on last wk and thanking God for all the wisdom I have gained over the last yr through all the different ppl. Many blessing to us allπŸ™πŸΎ

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to JSSimp

We do learn alot about something when we need to, even when we don't want to! πŸ€£πŸ€—πŸ’•πŸŒ 

hairbrain4 profile image
hairbrain4

It would be nice if they could cut those lesions out so we could move on! But we do move on just not in the same direction we were previously headed. I know I am actually in a better place today because of MS. Yes, I have some physical disabilities (well, some mental ones too) but I am emotionally in a better place. I have learned to enjoy & cherish each day. I stop to smell the roses, I stop to see the beauty in nature and all that God has put here on this earth. In about 3 weeks It will be 16 years since I was diagnosed with MS. That's what I got for my 50th birthday.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to hairbrain4

MS has a way of changing things. As they say, one door closes, another opens. πŸ€—πŸ’•πŸŒ 

rjoneslaw profile image
rjoneslaw

Wow away to come into March

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to rjoneslaw

Your telling me! 🀣 Last March wasn't any better!πŸ€—πŸ’•πŸŒ 

greaterexp profile image
greaterexp

Thanks to everyone here, I was able to absorb the diagnosis over time. I wish it weren’t true, but I’ll probably always remember that September day.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to greaterexp

Pretty sure this place saved my sanity! I was coming out of a deep depression when I found this place!πŸ€—πŸ’•πŸŒ 

kdali profile image
kdali

And just the other day I heard someone say that relapses would soon be in the rearview. So much has happened in 6 years! Not all bad either.

I’m glad you are here, but I also wish you still had no idea what MS was πŸ’

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to kdali

I wish relapses were in the rearview ☺️ but I will take every good day I can get! πŸ€£πŸ€—πŸ’•πŸŒ 

Rjaleen profile image
Rjaleen

September 17, 2020 diagnosed with MS, a day I will never forget. I take one day at a time and trust God through this journey. Yes, I have my days of frustrations, but I refuse to stay there and wallow in it... I shake it off and keep it moving! And I love coming here being able to connect with everyone... We are all in this together... Support is everything! πŸ™πŸ½πŸ’•πŸ˜Š

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Rjaleen

Hi Rjaleen days of frustration are common i think. But you are so right! Shake it off and keep going! Love your attitude!πŸ€—πŸ’•πŸŒ 

falalalala profile image
falalalala

I'm impressed that you guys remember the date or month that you were diagnosed.

I have been saying I was diagnosed 10 years ago for a few years now.

🀣

I just asked my hub when I was diagnosed.

He said Feb. of 2009.

Well,well.Ya learn something new every day.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to falalalala

πŸ€£πŸ˜‚πŸ€£πŸ€—πŸ’•πŸŒ 

JTZES profile image
JTZES

At least it was found and DMT's could be started and hopefully have been beneficial.

I hope things are going well and will get better. πŸ™

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to JTZES

That it was! And dmts were started... And beneficial? Well.. they slow them down!😊

So far so good! Hope you are doing well!πŸ€—πŸ’•πŸŒ 

kycmary profile image
kycmary

I was DX in March of 94 so I understand & I also have learned lots from the wonderful people on this site & I thank them all for being here & willing to answer questions. Love you all very much. Mary

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to kycmary

πŸ€—πŸ’•πŸŒ 

ahrogers profile image
ahrogers

I work in radiation oncology and my fellow nurse asked if they can radiate the lesions 😁 even us in the medical field don't know if it isn't our area of expertise.

I did a lot of reading after my diagnosis as my only experience was with people who were admitted to the hospital and had it but it had been several years since I worked inpatient.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to ahrogers

See?!? Just get rid of them! Problem solved! πŸ˜‚πŸ€£πŸ˜‚πŸ€—πŸ’•πŸŒ 

twooldcrows profile image
twooldcrows

i agree i to have learned more about it from all of you on here and how is to cope with it ...thank you all....

Sezlatham profile image
Sezlatham

Next March will be better because you will fight to be back in some control. Chin up we’re all here and I know you must be devastated, but you’ve got this and I’m new to this site but the people on here are amazing and will be there for you no matter how little or big. I’ve got to know them in a week and I am ever so grateful that I was given this chance

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Sezlatham

I have to agree, this place is pretty amazing and the people are awesome!πŸ€—πŸ’•πŸŒ 

Di01 profile image
Di01

Can i pick any of ur brains plz ?...i'm really struggling & my dr isnt helping me & now i've got to wait 8/10 wks to get somewhere

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Di01

I gotcha Hun! πŸ€—πŸ’•πŸŒ 

carolek572 profile image
carolek572CommunityAmbassador

March is not a good month for me either but it is almost over, Jesmcd2 Keep Smiling :-D

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