One Thing You've Learned: What is one... - My MSAA Community

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One Thing You've Learned

greaterexp profile image
41 Replies

What is one thing you've learned from this site about MS? I've learned so much, I hardly know where to start. The "School of Hard Knocks" has taught me a lot about my own MS, but I've certainly learned that this group has been a wealth of knowledge for me about MS in general.

One thing I've learned, for which I am so grateful, is that my MS is not someone else's MS.

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greaterexp profile image
greaterexp
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41 Replies
jimeka profile image
jimeka

Never take it for granted 😊

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

LOVE LOVE LOVE THIS POST! greaterexp !!

I learned that I'm not alone, even when I feel alone.

Only one thing huh? There is sooooooo much!! 🤗💕🌠

1more, back in the day, they treated MS with arsenic! 🤔 We come along way,baby!😂

greaterexp profile image
greaterexp in reply toJesmcd2

It’s very difficult to narrow it down to one thing. I could go on for days!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply togreaterexp

I know!! There is so much!! 🤗💕🌠

Midgey_Midge06 profile image
Midgey_Midge06 in reply toJesmcd2

Holy crap! Wow. No wonder people think MS is a death sentence.

Here. You have MS. Drink the poison and have a nice day!!

🤣🤣🤣🤣🤣

I dunno y but that made me laugh when i read it!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toMidgey_Midge06

I could go on Midgy!! 😂🤣😂 How about some Night Shade? It grows on the side of the Rd. You didn't hear it from me!😉🤣 Midgey_Midge06 🤗💕🌠

Midgey_Midge06 profile image
Midgey_Midge06 in reply toJesmcd2

Lol!

rjoneslaw profile image
rjoneslaw

I have learned about O before I started to take it.

I have learned so much that I could write a multi volume reference guide do you remember encyclopedias? It would be updated every 2 seconds because I would've learned something new

falalalala profile image
falalalala

I have learned that there are lovely people here with a generous, caring , spirit that make time to help & support others in spite of their own daily struggles.

You guys are truly amazing to me:)

greaterexp profile image
greaterexp in reply tofalalalala

...and who will share a laugh with us. Good, clean humor goes a long way in lightening the load.

falalalala profile image
falalalala in reply togreaterexp

I couldn't agree with you more!

agapepilgrim profile image
agapepilgrim

I e learned that no matter how weird my symptom is someone n this forum has already experienced it. That is so comforting, especially when the neurologist tells me that symptom is not MS. One time I told him quite a few people on the MSAA forum experience the same symptom and he said you better be careful reading those forums you can’t trust them. I quit seeing him and found another doctor. Didn’t like him anyway. This site has helped me through some depressing times. Thanks, everyone. Love and prayers to all.

bxrmom profile image
bxrmom

I have learned so much from this group, and I'm always learning all the time. I have learned to take a list of questions/symptoms with me to my appts so that I don't forget to ask the dr. I have learned about more medications than I have knew about and know I can ask more questions if I have them ;)

Great question greaterexp

Kenu profile image
Kenu

This site is so relaxing 😌 with honest friends, right, wrong, or not indifferent. Love hearing how everyone is doing and how there doing it 👍. Along with the smiles and jokes 🙏😉😊 Ken 🐾🐾

Midgey_Midge06 profile image
Midgey_Midge06

I have learned it is ok to go radio silent for a needed period of time and still be accepted back when u jump back in.

Or something to effect.

I am tongue twisted & tied today!

greaterexp profile image
greaterexp in reply toMidgey_Midge06

I'm with you there on being tongue tied. Unfortunately, I just keep talking anyway sometimes!

I hope everyone feel the same way about resting for awhile and coming back whenever it's best.

Midgey_Midge06 profile image
Midgey_Midge06 in reply togreaterexp

I appreciate that more than u can ever know.

BigMar7 profile image
BigMar7

I was diagnosed in 2005 and have been enjoying this forum a few months after it started. After much thinking, I think the most important thing I have learned is I am not alone with this disease. ❤️

Midgey_Midge06 profile image
Midgey_Midge06 in reply toBigMar7

Amen to that!

Christina49 profile image
Christina49

For me this forum is God sent! There was know one in my circle who had experience with this condition. You guys have taught me so much. I learn more from you than the doctors. Who knows better than those who live with it. So grateful for you all😊

greaterexp profile image
greaterexp in reply toChristina49

It was for me, too. Just searching on the internet led to mostly "scientific" information, but not the real nuts and bolts of this disease and how to live with it. This group gave me the information I really needed and the emotional support I craved.

Kenu profile image
Kenu in reply togreaterexp

You really got the nuts here 😝😂🤣😁🤗 CB Ken 🐾🐾

Amore55 profile image
Amore55

One of nanny, countless things I have learned is that this is truly a family here. We love, laugh, and share our ups and downs with one another with no judgement. You are so filled with love. And so many answers. Thank you. Kelly xx

greaterexp profile image
greaterexp in reply toAmore55

And you are definitely one of the great family members!

Amore55 profile image
Amore55

Meant to say many, not nanny.

JTZES profile image
JTZES

This group feels like family to me. After nine years I still haven't accepted the fact that I have this. When reading through everybody's posts it helps me to accept things and this is where I belong.

With Thanks I try to respond to those in need. Using what I've learned over the years.

Thanks to everyone.

greaterexp profile image
greaterexp in reply toJTZES

I so agree with your thoughts that this group feels like family. Wonderful people!

Midgey_Midge06 profile image
Midgey_Midge06 in reply togreaterexp

and it does make it easier to accept things. The 3 months i have been staying locked down with family - i have heard “u did this to ur self. No sympathy here”.

Jaw drop.

But i stand tall in the face of their ignorance knowing i have all of the MS’ers here at my back!

greaterexp profile image
greaterexp in reply toMidgey_Midge06

It breaks my heart to hear the mean things people can say. Sometimes, I wonder if the ignorance isn't on purpose, but we can't educate people who refuse to be educated. Maybe it's fear that make them respond in that way, but I'm sorry you have to listen to that.

I'm so very glad this group exists to provide support to all of us who don't have people around us who truly understand.

Midgey_Midge06 profile image
Midgey_Midge06 in reply togreaterexp

I have learned my man was doing a better job supporting me than i ever thought! Now i have learned to appreciate him more. Maybe thats why God had me come out here. And he learned to miss me cuz he said we r getting married FINALLY this year!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toMidgey_Midge06

MIDGY!!! CONGRATULATIONS!!! 🎉🎉🤗💕🌠💍

greaterexp profile image
greaterexp in reply toMidgey_Midge06

That’s marvelous! Congratulations!!

carolek572 profile image
carolek572CommunityAmbassador

I have learned so much, and I have found many kindred spirits on this forum! Together, we are all stronger, greaterexp Keep Smiling :-D My wish is that I contribute just as much as I receive. Thank you so much, everyone, for just being here for me...

greaterexp profile image
greaterexp in reply tocarolek572

You are a wonderful contributor is so many ways!

bavery207 profile image
bavery207

greaterexp I learned we are all different and yet all the same. When I was first dx I didn't know that and felt so alone.

greaterexp profile image
greaterexp in reply tobavery207

I felt the same way until I found you all.

kathyrags profile image
kathyrags

I love you all! What I've learned is that you're always here and always supportive and informative.

greaterexp profile image
greaterexp in reply tokathyrags

That’s what we hope for. I thank MSAA and HU for providing this site for us.

mrsmike9 profile image
mrsmike9

I love this group. When I was first diagnosed I knew only one person with it and she's had it a very long time and uses a motorized scooter. I was so scared thinking that there I would be as well. I have learned that it may not happen to me but if it does, I can adjust, just like many of you have. So far I'm doing pretty well, but if things go south I have all of you who understand and can give me pointers. Thank you all!

greaterexp profile image
greaterexp

It was so reassuring to me when I read all the stories here, instead of the gloom and doom on many websites. I'm just on Copaxone, along with alpha lipoic acid, Vitamin D, N-AC, but I'm doing well. Yes, there are days when I use crutches or a cane, and I have a few "commercial days," as my friend puts it. (Those are days she stays in bed or on the couch, and just gets up to do something small when there are commercials.) But I'm not wheelchair-bound as I'd pictured, and even if I do get to that point, I've realized that life can still be very good. This group has shown me to think about ways to adapt, instead of giving up.

6092177588 profile image
6092177588

Thanks ,I try to find about multiple problems with Ms. I have other questions that you can have beside Ms. Hard to to deal with multiple issues not related to ms

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