Introducing MS self to you: Hello to all... - My MSAA Community

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Introducing MS self to you

KC0808 profile image
28 Replies

Hello to all MS warriors I've been reading the posts for sometime now and I'm finally going to introduce myself to y'all. I'm 54 was diagnosed immediately with MS in 1991 the doc's thought I herniated a disc in my neck after an MRI then spinal tap bingo MS. 2017 had a real bad relapse after more testing they found not only did I have plaque on cervical spine but now the lesions in the brain I'm now labeled with SPMS. I went about 25 years not really thinking about my MS and now my balance is shot to hell, pain but the fatigue is so hard to manage. I know I'm not alone I have y'all to keep me sane.

Thank you to each and every MS warrior for your knowledge and sharing. I have learned so much from reading your posts. I truly wish all of you the very best.

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KC0808 profile image
KC0808
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28 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

So happy to meet you! KC0808 😀 I'm glad you posted. So you know your already family.😀

Post and ask away!

Although, I'm wondering where your finding the sane part...🤔🤣😂🙃

J🌠

KC0808 profile image
KC0808 in reply toJesmcd2

As long as there is love, kindness and humor I'll stay sane.

MS_Indestructible profile image
MS_Indestructible in reply toKC0808

you will find that here on this site, oops wrong reply, just kidding. Thanks for your post please feel free to join in the fun ~ ;) :0 terry ;)

KC0808 profile image
KC0808

Thank you lois 52 I really do love this site I don't feel so alone since I started to read that other people felt the same both physically and mentally.

Sukie427 profile image
Sukie427

Welcome, KC0808 . You've come to the right place.

KC0808 profile image
KC0808

Thank you for the welcome Sukie427 glad to meet you not glad of the circumstances that brought us together

greaterexp profile image
greaterexp

Welcome to a really great group. We’re more like family and appreciate each member.

KC0808 profile image
KC0808 in reply togreaterexp

Thank you for the welcome feel really bad that my new family has MS....funny but not :)

Sherrea1 profile image
Sherrea1

I understand how you feel. I'very had MS for 20 years and did pretty good. I had a attack that lasted for 2 months. Now I'm left with nerve pain, numbness MS hug that no one enjoys and my legs are weak and screwing up my walking. So I will finish with MS sucks

KC0808 profile image
KC0808 in reply toSherrea1

Sherrea1 You are so very right MS sucks big time!! You never know what will happen next you always hope for the best but it's like a scary movie you don't know what's around the corner probably why I don't enjoy watching scary movies.

Wishing you everything that is good!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toSherrea1

Agreed Sherrea1 welcome. Sry I'm a bit late.🙃

J🌠

Linda3579 profile image
Linda3579

Welcome. It’s nice to meet you. I’m sorry you are dealing with MS. It is a challenge, for sure. I don’t like scary movies either, and i try not to think about what might be around the corner. MS or no MS we can never predict what’s down the road or around the corner. Wishing you the best, Linda

KC0808 profile image
KC0808 in reply toLinda3579

Thank you Linda3579 life is what you make it regardless of what it throws at ya good or bad. Nice meeting you and I hope you have a fantastic day!

Linda3579 profile image
Linda3579

So true. A good day to you too.

Peruzzot profile image
Peruzzot

Welcome to the group. I battle the fatigue too.

KC0808 profile image
KC0808 in reply toPeruzzot

Thank you for the welcome does anything help your fatigue? I feel strongly that if we could feel less fatigued we could handle all the other MS crap so much better. As I type this I realize this is just common sense :) Take care of yourself and I would send you energy if I had any.

Peruzzot profile image
Peruzzot in reply toKC0808

Walking and swimming seem to help a little. I've also tried vitamins that claim to help with giving you more energy and for a few weeks it seemed to help a little. But after that I'm feeling the same fatigue as before. I've been fighting the z monster since about 4 today.

KC0808 profile image
KC0808 in reply toPeruzzot

Yep fatigue hit me real hard this afternoon too. You know it's bad when you have to pee and the thought of getting up and walking to the bathroom seems to be more than you can handle.....but I did get up I just stalled until I couldn't stall any longer :)

hairbrain4 profile image
hairbrain4

Welcome to the family! My motto is..."Everyday is a new adventure!" Keeping positive helps to keep me from being depressed because I can't do the things I want to do because I have MS. That's the key, I have MS it doesn't have me. Glad to have you in the family hope to see more posts from you!

KC0808 profile image
KC0808 in reply tohairbrain4

Thank you for the welcome you have a really good positive attitude. I wish you a wonderful day :)

Babslover profile image
Babslover

Hello 👋 glad to meet you. This is a great place for venting and learning. We like to be as much assistance as we can.

KC0808 profile image
KC0808 in reply toBabslover

Thank you for the welcome Babslover. I like meeting a lover and not a hater....lol Sorry couldn't help myself :) I hope you have a really good weekend!

Babslover profile image
Babslover

Thank you ☺️ babslover is because I love Barbara Streisand. She has such a remarkable voice. Talented actress. She has a cd called on higher ground that is wonderful that mellows me when I get a little angry 😠

KC0808 profile image
KC0808 in reply toBabslover

You have good taste.

jackiesj profile image
jackiesj in reply toBabslover

did you know her sister has that voice as well?

jackiesj profile image
jackiesj

Very glad to meet you KC08080!Welcome to our multi functioning group that talks about and any range of ideas on MS, furr babies and the gathering of minds hearts and souls...JJ

Bonnie1960 profile image
Bonnie1960

Your story and mine ate almost identical. Prayers for us all👐🏻👐🏻👐🏻👐🏻👐🏻

Bonnie1960 profile image
Bonnie1960

Sorry, that should of read ...ate almost the same

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