Just say a prayer for me. I am on steroids, haven’t them in over 5-10 years, I don’t know. My neurologist says if I get worse or no improvement, IV steroids (higher dosage). Me and steroids are not friends. Some point in my life, steroid just aren’t the magic elixir, my body just doesn’t get the bang for the buck. I also need Botox injection, dah! I went end of December, they were afraid of weakening me. But I can’t move in comfort or very far, We have our adult son who can plow snow, and he even washed my clothes and straighten up my room I wish I can vie for my husband’s attention. I pray dear Lord for relief. I think he is afraid seeing me this ill; he was either at work or I had parents or some else to help me. With having MS for 32 years with many relapses and ACTH/solumedrol/prednisone, I was doing fine. Copaxone is the safest DMT with Covid Pandemic, I have been toldd. Yes, I am beyond the Tin Women of my unpredictable world. May be my spine and tail bone is the source of my pain from traveling traveling back forth to Long Island NY - 3 hour trip. I helped and tried to guide my younger brothers. Go figure why two co-executors need to attorneys to settle an estate that consists mainly of a house any mmother’s collectibles. I am in agony. So I need prayer, I need Jesus every hour, minute and second.
Severe spasms and rigidity - say a littl... - My MSAA Community
Severe spasms and rigidity - say a little prayer for me ...
Will be praying for you Tonyia
I'm so sorry you are going through this. I hope the steroids help you and give you some releif soon. Virtual hugs your way.
Will do.
I hope you feel better soon.
Thank you. I counting on your prayers.
Sorry you are having so much trouble. Prayers going up 🙏🙏🙏
Thank you. In this state, there isn’t much to do is to be patient and pray. Pray it doesn’t get worse or is an indication that my MS progressing. Being doubly isolated is getting wearisome as well as this relentless discomfort and pain. I keep singing the secular song Dione Warwick song “ I Say A Little Prayer” - for you.
When I need to sing “I need thee every hour”. But I was doing that much earlier in the day. With some Black spirituals.
Sorry for all you are going through. My prayers are with you
🙏💖...prayers & love coming your way.
I am starting to feel a little better today. Not as much pain than these last 2 weeks.
Love and prayers for you. I took IV steroids for many years, and they helped me.
I pray that you feel better soon!
I am so sorry for all your pain, physical and emotional.
I am so sorry you are in such pain.I will pray you feel better.
Leslie
Leslie, thank you for your prayers. I am feeling a little better as the day goes through. Did more activity but unfortunately I still have a ways to go. But God hears every prayer. I am so grateful meeting new people as well the ones I have made friends for support, walking with me through this MS journey. I am not alone, and that is comforting.
I have RRMS and when I had legs rigidity, I also had a fever and when I took a fever reducer, it went away. FYI. Take your temperature.
Thank you for your suggestion. Still 97.6°F. Even check to make sure I didn’t have a urinary infection. I think I have narrowed it down to a back strain, MS flareup with settling my mother’s estate with a middle brother that is being a rogue and not being a coexecutor with our youngest brother. He just he hurt/jealous thar my parents trust his younger brother over him. And he was given more than the rest of us. He is manipulate, transparent or honest. So I will write down our understanding and verbal agreement to avoid confusion and discord
I am praying that Jesus wrap you in His arms and give you peace🙏🙏🙏🙏😇😇
I definitely need Jesus to wrap his arms around me. And definitely peace of mind, body and soul. Thank you dearly
many prayers and ask them if someone has something like a motorhome so you could lay down on the next trip you have to go or just a car with a back seat so you can lay down during the long trip...so sorry you are in such pain ...have you tried laying on a heating pad so it can warm you back up really good ...that is what i have to do when i have rode in the car to much...many prayers that it does ease up for you ...god bless you ....
Thank you your compassion and care. Well It is not practical or ideal for us to have a motor home. I have tried laying in the back seat of the car for long trips, but it also my husband’s driving style - speeding, and our roads are under construction. And if I fall asleep, I am home hurting. So I just spoke with him how crucial this is for my spine. Actually, to stop the pain, I had to ice my spine to numb the pain receptors. I think after I was able to get my pain under some control that I strained my back. For the spasms; not thrilled about ice but less pain and tightening of my my muscles. I just had to have a hard conversation and will have to right the issues and resolution we agreed or understand.
You are in my thoughts and my prayers.
Thank you for supporting me through this difficult part of my MS journey. I cherish all your prayers and earnestly take all your suggestions seriously. I have tried some that were feasible for me to do. I am blessed and humbly feel so grateful for you reading and responding to my post. I know I am not alone. And that is comforting and healing in its own way
Saying prayers that you will find something to help. I have tried many meds for spasticity. One day I was talking to another lady that has MS at the infusion center. She had recently switched to a new neuro and said that her spasticity issues were gone since he had put her on magnesium. I upped my dosage, and it sure is making a difference for me. If you haven't tried it yet, maybe you could ask your Dr. if magnesium may benefit you.
I'll be praying continually.
I know you are. You came out of hiding ♥️
Part physical and depression (from pain, and finalizing my mother’s estate. I took some things but I have to leave so much behind. Some are things we purchased together, gifts I gave her, ... memories associated to her. I hope my cognitive skills remember them. Some photos and words. Plus I needed a break from my brothers. They don’t share the same feelings.
My prayers go to you, TonyiaR7
Thank you for your prayers. I cherish your prayers. I think some of my pain is due to depression of selling Mom’s home and auctioning her belongings. The funeral was much easier because I know she believed in Christ and served him. The memories are there. Just hard to walk from a house where I have been for 54 years.
Thank the Lord that milder temperatures are coming! I can walk outside. Get reassessed for Botox injections.
I understand, TonyiaR7 Have faith that God will help you through this. I certainly have faith that He is there to help in every way. I am in the process of selling my home of 25+ years, and I know what you are going through! 
Solumedrol
Crazy week for me and the hubby...
I fired my neurologist!
Got my Ocruvus yesterday!
