Just a little background, I was diagnosed with RRMS this past August. I’ve had 2 appts with neuro. Both were by video conference due to Covid. I have my three month follow up on Wednesday and it will be in person. I am on Copaxone. Brain MRI showed 22 lesions and neuroquant showed bilateral atrophy of my thalamus. This will be my first appt post diagnosis.
I have a list of issues that I want to ask about, but are there certain things that I should be asking about? Diet, vitamins etc.?
Definitely have your blood work done. Have your vit D levels checked and ask your neurologist how much you should take. Let us know how you get on, Blessings Jimeka 🤗
It does help to have your questions written down. I always imagine that I will remember questions, but always forget something if I don't have my list in front of me. Make sure all your symptoms are addressed to see what can be done about them.
Let us know how it went.
have all your questions written down don't lrt the dr gloss over anything
if u dont understand make the explain it
Hi our stories are similar. I too was diagnosed with MS August 2019 and I’m on Copaxane. I have had numerous neurology appts and three MRI since being diagnosed. If I were you make that list of all symptoms even from the ones that don’t affect you much to the ones that can alter your day. I used to always forget to and have to wait for my next appt or leave a message to speak with my Neurologist which could take forever.
Definitely write your questions down and bring someone else with you. Get yourself a calender to write things down every day
Hi Tulip77,
You don't say how long you've been on Copaxone but if your diagnosis was in August, my guess is that you've been on it only a few months. If you have any concerns at all about the Copaxone--side effects, how to do the injection, etc.--this is the time to bring them up.
Good luck with the appointment! I hope that the neuro will be helpful.
Hi Tulip77, sorry to hear about this diagnosis, it's alot to take in, when it's all new news! I did take Copaxone twice, once was in 2002, my first diagnosis. I had eye problems and it went away in about 8 months. I stopped Copaxone after my prescription ran out. I had no relapses until 2015. I got Trigleminal Neuralgia and was diagnosed with MS again. I was on Copaxone again for 2years then my Neuro Doctor switched me to Gilenya(Fingolimod). I had no bad reactions with either one of these meds. I hope some of these helps you. Please ask if I can answer anything else. Take Care.
My appt went well. Dr spent about an hour with me. Some of what was said about my MRI was difficult to hear, BUT my neuro exam was perfect and there was no noticeable weakness detected. They switched up my muscle relaxer to Baclafan and I will start that tonight. They educated me a whole lot about what has happened in body and what to do moving forward if I start having a relapse.
It sounds as if you have a supportive neuro on your team, and that is very good news. A person does learn to live with MS, but it does help to touch base with the neurologist periodically or if there's a problem. I hope you won't have problems.
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