Upcoming Appointments?: Do you have... - My MSAA Community

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Upcoming Appointments?

greaterexp profile image
85 Replies

Do you have appointments in November you'd like to share? Sometimes, doctor appointments seem like a side job for us, don't they?

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greaterexp profile image
greaterexp
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85 Replies
anaishunter profile image
anaishunter

I'm supposed to see the neuro next week for the 6-month checkup but I might postpone because I have a new health insurance and have not received the cards yet.

There's nothing urgent to really which is always a good news. But I need to write down the list of updates, and list of questions.

greaterexp profile image
greaterexp in reply toanaishunter

It sure helps to be organized, doesn’t it? I hope it goes well whenever you get there.

Goldilockssearching profile image
Goldilockssearching in reply toanaishunter

If you rather not miss your appt:

Call the insurance company, they can give you the info you need to relay to the dr office that they need to submit the claim. Just let dr office know you haven’t received a card yet but here is the info. Usually your effective date, member #, group # and a phone # for providers.

Doubled51 profile image
Doubled51

Had ophthalmologist yesterday and Neuro appt November 18 th for 2 month Gilenya checkup. That’s all I remember for now. It I’m sure there is some I’ve forgotten. If that’s all it will be the best month I’ve had in several.I think the new brain lesion I had last month was memory.

Donnie

greaterexp profile image
greaterexp in reply toDoubled51

No kidding! You could use a full time secretary to keep all these appointments straight.

I hope the DMT is working well.

Doubled51 profile image
Doubled51 in reply toDoubled51

I forgot I have a follow up appt with dermatologist November 7. Way down yonder. They’re in same building as my pain management and across the street from my Neuro but no way to get 2 in one day because they all stay so busy.

Donnie

greaterexp profile image
greaterexp in reply toDoubled51

Can you at least drive a classic car there?

Doubled51 profile image
Doubled51 in reply togreaterexp

I actually sold my gto and bought a 87 Chevrolet Silverado truck. But it’s a pretty nice old truck. To answer your question I’ve put 2000 miles on it in the last 2 months going to those drs.😁😁😁

Donnie

greaterexp profile image
greaterexp in reply toDoubled51

Old trucks are great! I'm sorry you have to travel so much to see your doctors.

Doubled51 profile image
Doubled51 in reply togreaterexp

If

It gets tiresome but if the problem is fixed it will give me the season to work

Peruzzot profile image
Peruzzot

For now I only have one. Chiropractor who I trying to fix my neck. The curvature goes in the opposite direction than it should. December is full of appointments for the first weeks. The first week of December has at least one appointment per day.

greaterexp profile image
greaterexp in reply toPeruzzot

Oh, my! I hope they go well.

Peruzzot profile image
Peruzzot in reply togreaterexp

Me too.

jimeka profile image
jimeka

I dislike this month.

November 6th physiotherapy

13th ms nurse

15 th incontinence nurse

19th dentist for filling

22 nd rehabilitations doc

27th occupational physiotherapy

Such a happy month but it finishes well with our anniversary on the 30th.

Blessings Jimeka 😊

erash profile image
erash in reply tojimeka

Wow! You do need an executive assistant to manage your appts. Hope all goes well.

kdali profile image
kdali in reply tojimeka

This post makes me tired 😵 I hope they all go well for you!!

hairbrain4 profile image
hairbrain4 in reply tojimeka

October was like that for me. I had 5 different appts & of course they were all out of town 2 hours away. I spent more than my share supporting gas station & restaurant owners.

Texandyroe profile image
Texandyroe in reply tojimeka

Wow, girl! You do lead an exciting life 😍

greaterexp profile image
greaterexp in reply tojimeka

What a beautiful ending to a hectic month! Congratulations!

mm1527mm profile image
mm1527mm in reply tojimeka

At least you have an anniversary celebration to look forward to at the end of the month! That is always nice. Blessings

jimeka profile image
jimeka in reply tomm1527mm

Thank you 😊

Texandyroe profile image
Texandyroe

Qi have a Tysabri infusion in 7 hours (yes. I should be asleep and yet I’m not). My 6 month neuro appt is mid December. Just had MRIs done and the neurologist called to tell me that there are No new lesions and no change in the current lesions so all is goodA

greaterexp profile image
greaterexp in reply toTexandyroe

I'm thrilled to hear there are no new lesions! Hope the infusion goes well.

RoseySawyer profile image
RoseySawyer

I get a check up and my infusion November 18, 2019. ♥️🌹

greaterexp profile image
greaterexp in reply toRoseySawyer

I hope all goes smoothly.

erash profile image
erash

Neuro follow up on the 7th. Debating if I’ll ask about making Ocrevus infusions every 5 rather than every 6 mos.

I started to have symptoms creep before the last infusion and haven’t bounced back completely. I wonder if preventing that crap gap with earlier infusions would help...

My nutrition has been slipping. That’s probably the first thing I should address.

The 2nd is the Florida weather...looking forward to some cooler temps someday...

Thanks! For listening 😊

kdali profile image
kdali in reply toerash

Might as well try for 5! Let us know what they say.

Juleigh21 profile image
Juleigh21 in reply toerash

There is another pharmaceutical company that is working on a monthly injection that will rival ocrevus. The company is going for FDA approval at the end of 2019. I really don’t want to go back to self-injections but I’d consider it to avoid the gap. Meds name is Ofatumumab. (I hope my info is correct and I understood it correctly. My brain isn’t as reliable anymore.)

erash profile image
erash in reply toJuleigh21

I read about this. I think that there was something about it but I don’t recall that didn’t seem like it would be quite as good. It might’ve been something about wearing off before the next injection but I honestly don’t remember… We can be helpful

Juleigh21 profile image
Juleigh21 in reply toerash

I did 44 doses of tysabri and the last week was always a rough one b/c the med was wearing off. I’m use to a rough week. I’ve only done the 2 half doses of ocrevus so far and I’m definitely worried about the last 6 weeks before the first full dose. Christmas could be awful. Jan. 23rd is my first full dose. I’m meeting with my neuro next Friday to discuss symptom control until the first full dose. I really want to avoid steroids if possible!

greaterexp profile image
greaterexp in reply toerash

The earlier infusion sound likes a good idea. Come visit me here, and you'll have lovely temperatures.

Raingrrl profile image
Raingrrl in reply toerash

Let us know what your neuro says about infusions every 5 months. I’m going to try and remember to ask my neuro the same. I’m having the worst fatigue. I’ve always had fatigue but this is ridiculous. I used to have this same problem for the week prior to my Tysabri infusions. One week is tolerable...this is not.

erash profile image
erash in reply toRaingrrl

How far from your next infusion are you?

Raingrrl profile image
Raingrrl in reply toerash

It should be the first week in Dec. so about 5 weeks.

pamgarner profile image
pamgarner

I am suppose to go to neuro for blood test.my dr.wants to see if ocrevus is still in my system,my next infusion is january ,but if drug is gone,then we can ask insurance to pay for it earlier than 6 months.I feel like I need it at 5 months.it is going to depend how I feel,do I or don't I ?

greaterexp profile image
greaterexp in reply topamgarner

I'm hearing more and more that folks tend to need it before the 6 months mark. I hope you can get it changed, if necessary.

OKgal profile image
OKgal

October, November, and December is what I call “year end whirlwind of white coat visits.” Ugh! I only have one for November though, which is my annual well adult exam. I’ll have my lipid panel checked and the flu shot. No anti-vaxxer comments please. My sibling gets the flu every year and he refuses to get the flu shot. Someone has to stay healthy to drive him to the doctor. Tag, I’m it. 🙄

greaterexp profile image
greaterexp in reply toOKgal

I get a flu shot every year now, too. I hope your lipids are better than mine!

kdali profile image
kdali

2 week baby checks! I have to schedule eye and PCP but keep forgetting 😬🤦‍♀️

erash profile image
erash in reply tokdali

Every 2 weeks...the stork is coming 😊

kdali profile image
kdali in reply toerash

I’m ready to hold her!! That’s about all we have ready 🤣😬

greaterexp profile image
greaterexp in reply tokdali

It's really getting close! I can hardly wait, but I know you are a thousand times more thrilled.

kdali profile image
kdali in reply togreaterexp

Yes!! 🥰 She’s also sitting on my guts, eating and sleeping is getting tricky 😵

greaterexp profile image
greaterexp in reply tokdali

Remember that once she's born, you should send her here to "Grandma" so you may have naps.

carolek572 profile image
carolek572CommunityAmbassador in reply tokdali

Wait until she plays Hackensack with your bladder! :-D

kdali profile image
kdali in reply tocarolek572

I don’t know what she’s doing with my bladder but it’s a sudden thing and I can’t stand up straight or I’ll burst. Only happens when I’m comfy 🤦‍♀️

carolek572 profile image
carolek572CommunityAmbassador in reply tokdali

Not funny, but funny ~ all at the same time! Wear your protective underpants :-D

erash profile image
erash

I read about this. I think that there was something about it but I don’t recall that didn’t seem like it would be quite as good. It might’ve been something about wearing off before the next injection but I honestly don’t remember… We can be helpful

southernsullivan profile image
southernsullivan

I have two more dermatology appointments - Mohs surgical procedures to remove basal cell carcinomas - in November. I just had two this week...I already look like I'm wearing a custom made Halloween costume with the stitches and bandages.

Just curious, has anyone else have any basal cells pop up while on Gilenya?

greaterexp profile image
greaterexp in reply tosouthernsullivan

I'm sorry to hear about the cancer. You're smart to take care of them.

southernsullivan profile image
southernsullivan in reply togreaterexp

Thanks, I agree. I do wish my neurologist had suggested regular dermatology skin checks when I started Gilenya - and helped me get in to see a dermatologist a little sooner. Basal cell carcinomas are easily manageable if you stay on top of them :).

carolek572 profile image
carolek572CommunityAmbassador

November appointments:

Cracked tooth filling on the 20th (I will be thinking of you, jimeka )

Senior flu shot before Thanksgiving (Gobble, Gobble)

Keep Smiling,

Carole :-D

jimeka profile image
jimeka in reply tocarolek572

Senior flu shot, what’s all that about? It was only your birthday on Wednesday, you are a spring chicken 🐓

carolek572 profile image
carolek572CommunityAmbassador in reply tojimeka

Senior flu shot recommended by my neuro. Apparently the regular flu shot will not elicit a strong enough response to protect me from the flu because of the Ocrevus. I am not entirely a Spring chicken, but I am not a tough bird, either. :-D

greaterexp profile image
greaterexp in reply tocarolek572

Late happy birthday!!

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

Thank you :-D

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply tocarolek572

I have to get the Senior flu shot and something called TPap (Tetanus-whooping cough and something else).

carolek572 profile image
carolek572CommunityAmbassador in reply toCalfeeChick

Yes, the senior flu shot it is for me as well :-D

greaterexp profile image
greaterexp

I think I just have weekly dental appointments for adjustment of this mouth piece. I have to wear it all the time, so I lisp, sound like I'm talking with my mouth full (I am), and collect large amounts of food in my cheeks while eating, which is so attractive. I guess the squirrel joke is on me.

Of course, there are the appointments I have forgotten to put on my calendar and about which I will be very surprised when I get the reminder calls.

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

Too many appointments just to let you know that you're still around! :-D

kdali profile image
kdali in reply togreaterexp

Ahhh, reminds me of my retainer. I had to cover my mouth when I talked.

greaterexp profile image
greaterexp in reply tokdali

At my age, it feels really silly. Now all l need is acne.

kdali profile image
kdali in reply togreaterexp

🤣🤣🤣🤣🤣

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply togreaterexp

Maybe you're getting younger!

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

I have that! Want some? :-D

greaterexp profile image
greaterexp in reply tocarolek572

Acne or getting younger?

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

Acne, but you can have both! :-D

greaterexp profile image
greaterexp in reply tocarolek572

You're too kind!

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

I don't think so, and you are the one that is too kind :-D

greaterexp profile image
greaterexp in reply tocarolek572

Aw, shucks.

carolek572 profile image
carolek572CommunityAmbassador in reply togreaterexp

:-D

twooldcrows profile image
twooldcrows

my husband laughs if we don't both have appointments in one week we just so enjoy it ...yes it is like a job for we both have many ...years ago and of course this year we both have had one a week but not both it was terrible we couldn't go anywhere it was like having a job ....use to be just me and he would complain ...it was we had to work around them...if we were going out of town i would try to work them for before or after we got back...it was terrible but i did have to have them ...they have slowed down now but at first where really heavy....but we need that good doctor to take care of us and to make it all better...everyone have a great and wonderful day ....love and happiness to enjoy our lives in what ever we want to do or want to try ....it is still loving ....

mm1527mm profile image
mm1527mm

I agree! Im going for my first round of bloodwork and follow up after my first two half dose ocrevus infusions next week. It definitely feels like a job. I feel like doctors are like my second home. 😔

bxrmom profile image
bxrmom

I have my chiro appt next Wednesday (I go every 2 weeks). On the 11th, I have an appt with ANOTHER new Neuro since the one I seen 6 months ago said he was only there 'temporarily'. Guessing it was in his contract to not say something until he was going to be leaving...ugh. Will post an updated on how that new meeting goes.

greaterexp profile image
greaterexp in reply tobxrmom

I sure hope the next neuro gives you more information than the last one.

janetb1968 profile image
janetb1968

Hi honey, the only appt I have is for Tysabri in November xxxxx ❤️

greaterexp profile image
greaterexp in reply tojanetb1968

Hurrah for only one appointment!

janetb1968 profile image
janetb1968 in reply togreaterexp

I forgot about the flu vaccine! Xxxxxx 😳😳😳😳

Raingrrl profile image
Raingrrl

I have several this month courtesy of my little episode a couple of weeks ago. Another primary care visit, my 6 month neuro checkup which was advanced a month, ophthalmologist, full MRI’s ( also advanced a month), and multiple blood tests. I had my flu vaccine last week and am going to ask for the first Shingrex vaccine at my doctor appointment. It’s the optimum time for it since I’m in the 4-6 week window from my next Ocrevus infusion.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toRaingrrl

You are a very busy girl! Hope all goes well!!

PT Tues, Ocrevus infusion #6 Wed, mammogram Thurs.

greaterexp profile image
greaterexp in reply toGoldilockssearching

Busy, busy. I hope all goes well.

CalfeeChick profile image
CalfeeChickCommunityAmbassador

I've an appt on Nov. 11 with my Orthopedic Surgeon. Had one with the gp on Nov.3. Trying to get Medical clearances that I'm "Healthy Enough" to have my left him replacement. Ortho's office needs Clearances from my GP, Neuro, and dentist. I already had the Ekg, will go Monday for chest x ray & blood tests. Having clearance forms faxed to Neuro & dentist to be ok'd and faxed back to Ortho. Haven't set a date for surgery. It will have to be after Nov. 24 and before Christmas.

Nov. 24 is our 30th wedding Anniversary.. I can't believe how ridiculous I feel having to get all these clearances. They all know about my OA, MS and prior surgeries.

greaterexp profile image
greaterexp in reply toCalfeeChick

The process sounds exhausting. You’re in my prayers for things to get approved and for great results from the surgery. Keep us posted.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply togreaterexp

I have to go get blood drawn tomorrow & senior flu shot. I forgot those when I went for chest x-rays. Neuro’s Office called this morning & will fax letter to Ortho doc tomorrow 😊

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