All these symptoms and the doctor thinks it’s stress. She isn’t gonna order any exams unless my symptoms get worse then she said in two weeks if it doesn’t improve my hand tremors she will give me a medication to calm them down and then if that doesn’t work then she will order mri. What a waste of my life. She did a few physical tests on me and then said because my tremor improved when I did a hand game that it was stress. I feel so discouraged I don’t even want to go to the follow up appointment in two weeks.
I made a post a couple days ago about my symptoms but if you missed it here they are :
Started feeling run down on 11/3 then at 6pm had Numbness in entire right side of body including face left leg to knee, since 11/3 have experienced numbness in both arms including hands and fingers, hips, vagina, butt, both legs feet and toes
Sometimes pins and needles
Deep aches in both upper arms forearms right hand thighs right foot
Migraine auras and pain behind the eyes
Right side of chest squeezing and aches under ribs
Jaw aches and feeling uncomfortable after the aches
Varying levels of fatigue including days where it’s hard to walk and move/ hands feeling weak
Tingling/itching of face
Muscle spasms in thighs and arms face and anus
Hands shakier than usual
Body tremors/shaking
Hard to walk feel clumsy movements
Under right rib stitch
Slight incontinence
Felt an electric shock go through my body while I was walking felt like it jolted me lost vision for a moment
Thought it was stress but for a few weeks tried to eat but couldn’t swallow the food lost 20 pounds in a 30 day period sept to oct
Had a day where spasms were like every 3-4 minutes then got exposed to cold air after opening patio door and spasms became constant
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ylstacy
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OK; I do not want you to have MS, but I could have written that post. If it's at all possible, between your insurance and your income, find another neurologist! And keeping going until you find one who is willing to run tests.
I've heard it all. Mine was "just stress" for years. I was "too young", "too fat", "a smoker". The only one on my side was a wonderful GP who recognized all of it as being neurological but wasn't able to diagnose me.
I won't discourage you by telling you how many years I spent waiting for acknowledgement, but do not give up! Maybe it's not MS, but there are too many consistencies for it to be "stress".
I too had a great PC who said she thought I had MS and then sent me to a neuro who brushed me off. I went back to her and over several months she ran every test she could to rule out other possibilities. When she was out of tests to run, I saw a different neuro who at first thought transverse myelitis, ordered a new mri and then diagnosed MS.
Oh, wow, I really feel for you. There's nothing like being basically told "It's in your head." Ugh. I know you must be so discouraged, but don't give up. There are official criteria (called the McDonald criteria) for diagnosing MS; I don't think a peg test is one of them. I think those are normally used later on to see if your dexterity has suffered.
Where are you located? Do you live in the US? If so, you can find the contact number for MSAA at MSAA.org. Call them. They might be able to point you to other resources.
Kudos for coming back for support. One of the most important lessons to learn as a patient is, unfortunately, how to advocate for yourself when doctors or insurance companies let you down. Good luck!
Your primary care might be willing to get things started by ordering bloodwork and MRIs. I would keep the appt with neuro but in the meantime go back to your primary care and ask. Then ask for a referral to a different neuro. That is what I had to do.
i'm not a docctor!!! BUT i read lhermitte's, spasticity, ms hug, incontinence, fatigue and tremor, with possible dystonia. do you know how i recognised all of that? i have all of these, plus ataxia. *sigh i hate doctors. i was recently dx'd with mcas. i remember looking up this one thing that kept happening to me and seeing mcas every time. i looked it up and it fit this pattern of symptoms i was having. i watched a youtube vid where a woman said it took her 10 months to get a dx. i remember thinking, how did it take so long? i kept seeing "specialists" who didn't actually diagnose or treat it, but had it listed under their specialities. i saw one doctor who told me it wasn't real!! this was an allergist, mind. ridiculous. my primary care doctor is a star. she asked what tests i needed, i told her and she went to look up ways to code it for my insurance to cover it. i got 3 positive mcas results...and only then did i get a diagnosis! and guess what? it took 10 months, lmao.
don't give up; 2nd opinions exist for a reason, too. i mean, how is all of what you described stress? i can't.
I hate that give a pill for symptoms thing when you don't know underlying diagnosis. Agree a 2nd opinion better since she want interested. Will your pcp order MRI sounds like you have enough symptoms to justify. My internist ordered for me when I had optic neuritis (6 wks later I went and no active symptoms) ? Stay strong and prayers for your journey
I understand why the neurologist told you that. You have WAY too many symptoms which last varying short lengths of time, all during a very short time period. This is not MS. Any of these symptoms could be MS not not all at the same time. You almost undoubtedly have Functional Neurological Syndrome (FNS) which can be caused by stress.
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Ms symptoms?
Pain & Problems Sleeping
Possible MS ??? About see 3rd neurologist...steady decline since Feb 2019
I’m I in the clear
