After another round of blood tests, change of insurance, etc..., the neuro finally gave me the green light to schedule the next Ocrevus infusion. It's set for Nov 2.
It will be 11 months since the last one. Now I know I can last that long in-between infusion. I'm doing well despite being highly stressed (just lost my job). It's good to know that I don't have to stress at 6 months on scheduling.
Written by
anaishunter
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I'm glad to hear you made it 11 months between doses. I have been on it for 3 years and I notice that I don't feel as well during my 5th month. I haven't had any exacerbations during that time period so I know it is working. I have one scheduled for early as well, but based on my pre dose blood work my neurologist may take me off of it. It really messes with your lymphocytes and I am just coming off a week of heart attacks. Had a stint put in and I am doing fine. I was placed on several new medications due to that. I have no idea what my blood test will look like.
Thanks for letting me vent when I meant to tell you congratulations.
for me, it messes up with my T-cells that why the neuro always delays. It's good to get used to what schedule works for you over a couple of years, then you can avoid stress on when, what, why.
I truly wish you to get well. It looks like you're in good hands.
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