Set the alarm clock for the time every day. Get out of bed, no snoozing. Get out of bed, have an important reason to get up. Now get up and stay up no going back for an extra couple hours of nap time. I may very well be retired, but that is no excuse for sleeping my life away. By the way, I am retired, that is always said with a knowing smile. The average man on the street does not need to know I am chronically disabled unless I want him to know. Let him wonder, it amuses me and I need the amusement.
These are little things that "YOU" will pick up over time. This does not have to be a doom and gloom event in your life. There are many ways for "YOU" to adjust your behaviour and others perceptions of "YOU" to your advantage. Find them and use them. There is no need to be a poor pitiful victim. That is for other people. "YOU" have an inner flame burning brighter each day, a strength that is always there that tells "YOU, YES I CAN, YES I WILL I AM NOT BEATEN MERELY BRUISED", say it and BELIEVE it. Whenever "YOU" have doubts, which trust me "YOU" will have. Reach back into your memory vault and find success. "YOU" did it once "YOU" can do it again. No memory vault, borrow one of mine if it helps "YOU" to get through I am glad I could help.
This is a very long and confusing illness, take help where "YOU" can and when "YOU" can. One day when "YOU" are able, give back to somebody else. This is a life long journey that we travel, make it as worthwhile to yourself and others as much as "YOU" possibly can. It may take a few days, years, decades to develop this attitude, just have it there in the back of your mind. One day "YOU" will be ready and "YOU" will light up the cold dark night for somebody else. In my opinion, this is very good, it makes it all a little more worthwhile. A little less painful and pointless.
Royce
Every time I help you I help me and you help somebody else. The wheel turns, and we are all connected.