Good morning my ms family. As always I hope that “YOU” are good, well-rested and not in very much pain. YES, no matter what doctors say there is pain in ms. neurologic pain, physical pain. We did not get a free pass on that one. I am not sure that “YOU” will read that, but a strong mental attitude and will, and “YOU” will cope with ms.
Theme, what is the theme for your life? Have “YOU”, thought about it? With all that we have lost a theme I feel is very important. I was a pilot, not a very good one if I am honest, but a pilot never the less. That was my purpose my point in life, or so I thought. That got me up in the morning, got me through the day. THEN I got or was diagnosed (Dx’d) with Relapsing-Remitting ms (RRms). I did not know where I was, what I was and where I was going. I did know that I did not want to want to live with my Mother (sorry Mum)forever I had to think about my circumstances and make some changes. I am far from the easiest person to live with. I had to make a new theme for this strange life I was living, and “YOU” might as well.
I found a song and made it my plan for then. Bob the builder, theme song. I had to fix me, a mega silly song but every time that needle went into me I thought that I was fixing me like Bob. Perhaps not fixing me, at least doing what I had to do as much as I may have hated it, not to let me break at a rapid rate. Let me say again that I dislike needles so every little bit of help I could get, I used. Today I have learned more about ms, what it means to my life, where it might take me, what it is. An incurable chronic, progressive illness. I accept this and my theme has changed. Bob Marley, three little birds. “Everything is going to be alright”. It will be, I have adapted and changed myself to make that happen. I have come to terms with what that may mean too maybe. What is possible but not very likely to happen. I am at ease with my lot in life. I do not battle, I am not a warrior waiting for the next assault on my body. When it comes, which it will, I have prepared myself. Decided what I am willing to lose and made myself ready to continue on.
These are things that as “YOU’ steady yourself and get on your ms path “YOU” will want to find for yourself. ms is a physical condition but most importantly it is a mental\psychological game. Do not look at it as the end, merely as a very complicated game with no rules that now “YOU” must play. “YOU” have no choice, quitting is against the rules. The only rule that “YOU” need to know is that “YOU” can not deliberately cause harm to yourself. Everything else is fair game, and a really good theme song can be a great support
Royce (your ms writer)
So what is your theme? Make it bright, make it hopeful, make it beautiful.
