Good mourningly much loved Sisters and Brothers. I hope as always that “YOU” are well, oh much loved Sisters and Brothers is “YOU” in case that was not obvious. Yes, I do love “YOU” all, some more than others but that is because I know them better. Rest assured “YOU” are still loved either way.
TIME, had “YOU” thought of it? What it may mean for “YOU.” More importantly what “YOU” are going to do with yours. Because “YOU” have ms certainly does not mean that “YOU” do not have time ahead oF “YOU” Might I say a future. What are “YOU” going to do with your future? What are your plans? Accept that whatever plans that “YOU” have today are very likely to change. The only certainty that I have ever had is that my joint dog loves me. Of course there is she who must be obeyed is a certainty, but I do push her often, and thereis my Mother. So as “YOU” can see not many. “YOU” may have more, “YOU” may have less. It is not up to me to quibble about this. It is up to me to accept, make the absolute best that I can with the time I have with those I love. Like “YOU” i live each moment with uncertainty. We have a chronic incurable illness. Why live for the next moment and its uncertainties. Live now with what “YOU” have. Be grateful and enjoy. Plan for tomorrow, I most certainly do, but over time many things will become second nature.
I will not leave the house without Protective underwear, a bag with spares and my own wipes. These are things that twenty plus years ago I would never have thought of. Today, with experience I know to have these items on hand. When I was taking Interferon Beta Ib I had it set out when to take it so I made sure I was home in time and fed before my injection. My life was far from limited, it was ordered. It had a pattern, it had security, it had a method, habits. I might say that it had certainty. We all have an up and down, topsy turvy condition but I gave it control and so can “YOU”. It took me time, but today “YOU” can do it much quicker. There are people in this family who can help “YOU”. Today, in May of 2020 the answers are there. Here there are people who will give “YOU” an idea of where to start and what “YOU” might expect. “YOU” may be well served by asking.
With time, there are uncertainties. Even if “YOU” have taken every precaution, Done everything by the book (whatever book that is?). Things WILL still go astray. WILL not MIGHT. With our disease there are no certainties only consequences. No more devil may care attitude, think, then think again. It is very possible to live your next forty, fifty, sixty years comfortably but “YOU” must make an effort to do it. Do not just blunder from one exacerbation to the next, plan for yourself. Plan every decision every move. Make your time worthwhile, for yourself and others that “YOU” may influence.
Royce ( your ms writer)
Use your time wisely. on yourself and others
