G’day family. You are all well I hope as always. I guess I must be odd. I do n to understand this social distancing problem that so many people seem to have. I like “YOU” have ms. I live social distancing. I have lived it for over twenty years. This is nothing new, it is my everyday life. I avoid people as a matter of course (habit). The last thing I want to do is bump into anybody anywhere. As much as for them as for me. I do not want to lose my balance and fall down. I am told that when I walk, I look like I am drunk and people avoid me. My speech is far from the clearest so I usually stand back and speak a little louder. I detest eating in public and would rather get take out or delivery and it at home. I do not have to explain dribbling or be embarrassed by the mess I made on the floor. I just have to clean it up.
I have ms, I am disabled, people avoid me. If I want to talk to somebody, I call them. This is normal I do not go to them. I guess now evybodvy gets to live my life. I wonder if it will change them. I am pretty sure it will not change me. Perhaps it will make me stronger in my belief in me. Give me an extra incentive to believe that I have me and the very few that are close to me. Perhaps it will remind me that “YOU” and I are important and that we have to take care of ourselves, because the human being that we can truly rely on lives between our ears. If we have to rely on that person, we should do everything that we can to help that person. Give them every tool that exists to make their life as easy as we can. If “YOU” like me are going to live for years and years with this disease, should we not do everything that we can to make life easier on ourselves?
ms is not for the faint of heart, the weak. It requires a degree of strength. A belief and a caring for yourself. We all will have the illness for years. Start today and find ways that “YOU” can start helping yourself. Do not rely on others to do it all for “YOU”, because they will not. No, my Sister, Brother “YOU” have to make that decision to live well with this illness. Crying and asking why at first is okay, but eventually “YOU” have to face facts. ms will not go away. It is part of our life and it is up to us to come to terms with it and LIVE.
If, right now “YOU” can get your chosen disease Modifying Therapy (DMT), take a less effective one that “YOU” can get. Ocrevus is my suggested DMT (based on its strength), but if “YOU” can get it perhaps a weaker self administered option might be available. Go back to Ocrevus when the world gets back to normal and it is safer to go into infusion centres. Think, adapt and look after yourself. Be the ms success story that “YOU” are meant to be. This is a hiccup in everyday life. ms will give these to “YOU” in abundance over the years. This is new but “YOU” can handle this with a smile, a shrug of your shoulders and a step forward
Royce (your ms writer)
you like me have ms, we can handle this
