Freezing Feet: Does anyone else have... - My MSAA Community

My MSAA Community

8,967 members20,688 posts

Freezing Feet

Katypadiddle profile image
27 Replies

Does anyone else have freezing feet? Since my relapse earlier this year my feet have been freezing. I wear 2 pairs of socks, have a small heater at work and heating pads at home and they are still freezing. I just can’t get them warm. And then the rest of me is burning up 🥵.

Written by
Katypadiddle profile image
Katypadiddle
To view profiles and participate in discussions please or .
27 Replies
Doubled51 profile image
Doubled51

I’ve had freezing feet ever since my dx 3 years ago. The only time I get them warm is when the weather gets warm I can sit in the sun and get them warm and it feels so good. Go inside and in just a few minutes they are cold again. I wish you good luck luck because it’s miserable I know.

Donnie

Brindisi1 profile image
Brindisi1

I wear2 pairs of socks and cant wear sandels inside as feet get cold. Please burns pins and needles at night

2littletime profile image
2littletime

My feet are always cold. Most always my hands too. I was diagnosed 20 years ago, but the cold feet & hands has only been about a year. Hi figure...😖

2littletime profile image
2littletime

Oops...that was supposed to say "go figure" lol

greaterexp profile image
greaterexp

Is your doctor aware of this? If it’s from the MS, there may be something than can help.

I have had the feeling of cold feet, often followed by a burning sensation for some time. I know how annoying and downright distressing it can be, especially when trying to sleep.

jimeka profile image
jimeka

I have a cold foot, it extends upto my knee. My right leg from my knee down is always cold. The doc says that it is poor circulation, maybe due to plaque pressing on a nerve that feeds the leg. It’s not nice when you get into bed and the cold leg touches the warm leg, it’s a shock 😂

kdali profile image
kdali

Sometimes. It also happens to the back of my head, neck and shoulders. The skin isn’t cold though, but when it all feels icy, sometimes I shiver. It happened for 2 months straight while pregnant 😑

Sometimes I’ll hop into a warm bath, but that’s also a slippery slope with my heat intolerance 🤦‍♀️

Kenu profile image
Kenu

My feet are always cold 🥶. I can feel them with my hand and they feel warm by touch. Yes they can be covered and socks and they feel cold 🙏😉 Ken 🐾🐾

Iona60 profile image
Iona60

During my first exacerbation, my right leg from my knee to my toes felt like it had been submerged in ice water. After I was put on a DMT, it cleared up. There is hope that your situation will get better.

erash profile image
erash

I’m told it’s dysesthesia related to MS. I use stick on heat pads that you would use for camping on my socks and it helps when intolerable.

MSnWV profile image
MSnWV

My feet feel like blocks of ice all the time. My hands not much better. I believe it is called Raynaud's phenomenon.

In Raynaud's phenomenon, smaller arteries that supply blood to the skin constrict excessively in response to cold,

MSnWV profile image
MSnWV in reply to MSnWV

I have read that soaking them in warm water with peppermint oil helps ease the constricted arteries and restore better blood flow.

goatgal profile image
goatgal

My feet feel are often cold, and they are sometimes cold to the touch. I wear wool socks at night year round. Since I have Raynaud's, the same thing happens to my hands ...but I don't put wool socks on my hands though I do stash cotton gloves in the car. Since Raynaud's affects the extremities, I suspect that's what this is in my case. With my feet I am more bothered by stiffness that comes and goes, sometimes even as I am walking.

Peruzzot profile image
Peruzzot

I'm very sensitive to cold temperatures. I've had frostbite on my hands and feet followed by pneumonia 24 hours later. I'm comfortable at temps most people think is too hot. That being said my feet almost always feel cold, sometimes freezing. I wear thick cotton socks all the time, even in bed. Wearing socks to bed drives my husband nuts, but he's learned to live with it. Now if I could just get my feet to warm up and stay that way.

Katypadiddle profile image
Katypadiddle

Thank you for all the replies. I think my cold feet is due to nerve endings being damaged by the MS and not sending correct info to my brain. I can put my feet in a tub of HOT 🥵 water and in just a few minutes they are cold, though the water is still warm. I was thinking of “inventing “ heated socks and then found some on Amazon. I think I’ll try the stick on heat pads erash mentioned. Do I get them in the camping section?

My feet and ankles are almost always cold, and hands off and on. I often ask my husband to feel them, and 99% of the time he says they are fine. Not cold at all. That's why I wear thick socks to bed all the time. No matter what time of the year.

mrsmike9 profile image
mrsmike9

My feet are always cold unless in the very middle of summer. But even then they feel cold at night but when I touch them the feel fine. I have just learned to live with it.

Katypadiddle profile image
Katypadiddle in reply to mrsmike9

Yes I know that I have to live with it, darn it! I was hoping for a fix, but at least I know I am not alone. 😊

MarkUpnorth profile image
MarkUpnorth

Can I trade you for burning feet? I can give you my old snowmobile boots!

carolek572 profile image
carolek572CommunityAmbassador

That happens to me as well! The only way to warm my tootsies is to soak them in a warm/hot bucket of water for about 1/2 hour, then to dry them and put on warm socks. A hot water bottle sometimes help. And, like you, I just don't understand when I am having a 'hot' flash, that my feet are solid as ice. Too bad that I am not a contortionist because my feet would be placed behind my neck! They would be so warm and comfy there! Keep Smiling, Katypadiddle

JTZES profile image
JTZES

My feet are always cold almost to the point of severe burning. When I lay down they almost immediately go to pins and needles.

By accident I found something that has helped me during the daytime. For Christmas my wife got me a pair of Crocks that would be easy to put on and take off to walk the dog.

These are not the originals. These have a regular shoe fit and the whole insole has a bubble texture that seems to generate a better blood flow reducing a good part of the cold feeling.

Midnight-Blue profile image
Midnight-Blue

My hands & feet are always cold. I wear socks to bed (Larger than my feet so my feet don’t hurt. I also found a foot warmer that helps quite a bit.) & my hands just started hurting from being cold - when I’m indoor!

(For my hands I found gloves specifically for this problem.)

As a diagnosis from 3 different sources;

Poor circulation!

Sandydemop profile image
Sandydemop

I didn’t know how common this is! I also have cold feet no matter what time of year. I can tell you that they are better after acupuncture. Also helps my walking and sometimes even helps dexterity in my hand. My acupuncture doc thanks this is an issue that can be healed with a combination of acupuncture, Chinese herbs, cupping, etc. I’ll let you know if it works on the Reynou syndrome but definitely Helps my walking which the DMTs are not doing.

in reply to Sandydemop

Please let us all know how it works for you

It sounds interesting

CrazyCatWom profile image
CrazyCatWom

Oh, yeah. y right foot is either a size 10 ice cube, or on fire.

falalalala profile image
falalalala

Yep, unless I wear my slippers.They're surprisingly warm and I have yet to wipe out while wearing them

minnetonkamoccasin.com/wome...

Katypadiddle profile image
Katypadiddle

I made myself rice buddies and got toe warmers from Bass Pro. It helps a little I guess. If I don’t walk on my laminate floor my feet aren’t as cold 🥶 but that’s pretty impossible. I should wear shoes, but for years as soon as I get home I take them off. I think I’ll also try the foot warmers.

You may also like...

What can I do about feet pain?

take, I can feel pain travel from my feet to my legs. Has anyone have this and what treatment you...

Leg freeze?

Has anyone ever experienced what I can only describe as \\"leg freeze\\"? There are moments when I...

Flash Freeze!

looking forward to this storm! I dont think anyone else is either, so please stay safe!! It went...

\"My feet are too smooth.\"

stairs. ᴴᵉ'ˢ ᶠᶦⁿᵉTurns out his feet are too smooth.😅 Usually, socks cause this problem for...

Swollen feet

I have a question does anybody have swollen feet because my left foot is so swollen it hurts to...