Update for my friends here: The... - My MSAA Community

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Update for my friends here

20 Replies

The neurologist said I don’t have MS. Says it is “degenerative spine disease”

He says the inflammation is causing so much pressure on my spinal cord, it is causing all of my problems.

They are holding me here overnight, so I can be seen by the neurosurgeon tomorrow. ASAP.

I tried to put it off till Friday, so I could travel home on the shuttle today and return on the shuttle on Friday. They didn’t like that idea, so I am staying in a hospital wing tonight, without a toothbrush or phone charger.

Thanks everyone.

I will see what tomorrow brings.

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20 Replies
jimeka profile image
jimeka

That’s good news that you don’t have ms but I am sorry about your spine. Please stay in touch, you are part of our family with or without ms, big hug, Blessings Jimeka 🤗

greaterexp profile image
greaterexp

Great news about no MS. I’m sorry about the need for surgery, but am praying for an easy and quick recovery.

Please let us know how it goes.

kdali profile image
kdali

They have toothbrushes in the welcome bucket. Your nurse may charge your phone for you if you ask. It sounds like you are fixable and I’m so glad for that!! Let us know how it goes, we will be thinking about you!!

rjoneslaw profile image
rjoneslaw

That’s good news

I hope you get news tomorrow bout your spine

Timeflies5 profile image
Timeflies5

Happy for you that you were medically cleared from having MS, Redhead!!...I have DDD, as well...it can mimic MS...I saw three neurosurgeons...and did the research...for me, surgery was always a last resort...as the trade off was said to be risk for chronic pain...physical therapy helped...after learning from PT, I joined a gym...I do not do any heavy lifting or use any equipment that causes me to twist my spine and I’m careful with bending at the waist too much, as well...hope you have success with your treatment, whatever you decide...never give up...blessings! 🕊

in reply toTimeflies5

Good morning time flies

I have read and heard how it can mimic ms.

I asked about doing a spinal tap, but he said no.

But then, I think they also rush through the appointment. Thanks.

goatgal profile image
goatgal

Nurses will bring you a toothbrush, just ask. Hospitals are used to unplanned stays. When I broke my ankle, friends took care of everything: the dogs, the hens, cleaned out the refrigerator, did the dishes in the sink, brought me my phone, charger, laptop, and eventually snuck bread and cheese into skilled nursing. I hope your neurosurgeon consult is positive. Do let us know.

pamgarner profile image
pamgarner

so glad no ms.sounds like you may have something fixable!best to you still scary

Glad you have an answer with hope for a viable solution. The MS club is not one where a lifetime membership is desirable so glad you dodged that!

Best wishes with your appt w the neurosurgeon and recovery thereafter.

And yes, please let us know how it all goes.

MysticalJannie profile image
MysticalJannie

Anyone who has really bad back pain (inflammation pressing on nerves) knows how you are feelilng. I have both for over 40 years. Do NOT go for surgery unless it is causing you to be incontinent. Surgeons do surgery! I was told 2x to have back surgery and chose PT, Acupuncture (instant relief) and chiropractor. I get better and exercise, stretch to keep my functioning!!

Keep us informed. I was told probably MS, then NO, you don't have MS to next neuro saying, I think it IS MS. I have both now!

Healing hugs, Jan

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toMysticalJannie

OMG, I was just in terrible back pain today😞😞😪

Know how ya feel

God bless

Lisa ❤

Thanks Jan

Wanna trust doctors.

But back of my brain says don’t.

Or at least second opinion

sashaming1 profile image
sashaming1

I hope that something can be done for your situation.

Tazmanian profile image
Tazmanian

Congratulations on not joining the club.

hairbrain4 profile image
hairbrain4

Glad its not MS. Hopefully you will be able to fix the spine problem. Best wishes to you!

I'm really glad it's not MS!!!

At least you have something "fixable" and don't have to "😱" the unknown every day..

Please, keep us updated.

I'll keep you in my prayers on Friday&always.

God bless

Lisa❤

MarkUpnorth profile image
MarkUpnorth

That's a really good thing! The other's not fun, but, sounds like with some work, some worries, it is a doable situation that can be overcome! Good Luck, Lucky! Okay, maybe nervewracking, but doable! The good thing about surgery, besides if all goes well you get fixed, during it, you get to sleep through it.

mrsmike9 profile image
mrsmike9

Goodness! I hope it can be fixed! Do let us know how things go. (Gads, they can't give you a toothbrush!!!)

Thanks again. I got a toothbrush but no toothpaste or baking soda. Lol

bxrmom profile image
bxrmom

They usually give you a toothbrush and toothpaste if you are admitted to the hospital. Hopefully you are able to get some toothpaste by now! Hope everything is okay and that you have found out more info about what is going on. I would do pt, excercise, anything before I had my back operated on. I have a bulging disk and sciatica issues that pop up randomly.

Keep us updated,

Jessie

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