This is Me.

[cookie12669]

I am a 73 year old woman who has SPMS. Got diagnosed 3 years ago but I think I have had this for a long long time. The docs in the small town I lived in were just to dumb to read the MRIs correctly. I took them to Mayo Clinic and got the diagnosis. Resentful no but angry. Could have been treated for atleast 20 years if not more! I am on Aubagio now. I have a great MS doc in St Louis Mo.

[CraigS]

Welcome to the forum. You are among caring people all suffering with some form of this damn disease. I also was misdiagnosed for many years, not because the doctors were dumb, but because the symptoms weren’t “text book”. Knowing didn’t really give me any comfort, but I’m being treated for PPMS and having marginal results. There’s lots of knowledge here and soft shoulders to cry on if you need it.

Craig

[jimeka in reply to CraigS]

Any recent pictures to show us Craig? Blessings Jimeka 🤗

[CraigS in reply to jimeka]

I’ve been drawing lately.

I’ll post a picture of my wife and me.

[Royjr]

Welcome to the family. Small town doctors are not the only ones who miss read MRIs but some large city doctors can’t read them properly. I’m glad you have a good MS doctor now.

[jimeka]

Hi Cookie, welcome to the family. Join in at any time, if you do any crafts we would love to see them, also if you can still exercise please share. If you want to vent, we are all ears, any time, or laugh, cry, just go ahead. Blessings Jimeka 🤗

[Peruzzot]

Welcome to the group! Sorry it took so long for you to finally get diagnosed. Feel free to vent here. We all get it here. How are you doing now?

[greaterexp]

We have at least one other member who was undiagnosed until age 70. I’m glad you are being well taken care of now.

I’m glad you’ve joined the group of lovely people here who really understand MS, and who share challenges and victories.

[pamgarner]

I was misdiagnosed for 10 years and have been diagnosed for 8,I think part of the problem is ms. can mimic so many other things.I was thinking menopause, back problems,just need to exersize my legs,e,I got past the anger,can't go backwards etc. and so my dr.was either too lazy to figure it out,or just because I was working 8/10 hours a day didn't consider it,again patient heal thyself urgghhh!

[bxrmom]

Welcome to this wonderful group of caring people that 'get it'! Sorry, it took so long to get your dx. I hope you are doing well now and that your rx is working well for you. Looking forward to getting to know you!

Jessie

[carolek572 CommunityAmbassador]

Welcome to this forum cookie12669 I am looking forward to hearing more from you. I was diagnosed in m2006 after almost 10 years. Thankful of diagnosis but resentful, like you, at the time. This forum helps because you realize that you are not alone with this 'ms'. Again, welcome, and Together, we are all Stronger. Keep Smiling

[RBrowne]

Aubagio did nothing for me. Had another relapse not long after I started it. I'm on Gilenya now, and have been for about 4 years. If I ever have to change again, it will be to Ocrevus. I'm hearing a lot of good things about it.

[kandykone1 in reply to RBrowne]

How’s Gilenya?

[RBrowne in reply to kandykone1]

I haven't had any side affects at all. It's been doing its job

[mrsmike9]

Welcome! I'm on Aubagio and love it. The only relapse I've had was during the "every January" issue of getting the MS One-to-One and my insurance talking and I went 2 weeks without meds. (I found out much later they have samples at the dr.s office.) I sure hope it agrees with you and helps you.

[zamanip]

hi

i hope you are feeling better now.how long have you been on aubagio till now?

[rjoneslaw]

welcome.

At least u had a good dr at the mayo clinic.

I didn't the neuro dr I had was into self promotion and misdiagnosis but told me to stay on the meds I was on. Which wasn't 4 what he said I had. Plus he never listened to me anyway so I would've never listened to him to begin with.

[cookie12669]

Wow I went to Mayo Clinic Jacksonville FL for 2 different things and got great results. I am so sorry you were not pleased. Good Luck to you G-d spee.

[Timeflies5]

Welcome new friend...we’re here 4U! 🤗

[agate]

Hi! I'm in my 70s too and have noticed that it's hard sometimes to know whether a medical problem is due to aging or to the MS. I no longer care much which it is just so long as there's a way to make it go away. I was diagnosed with SPMS 40 years ago. I tried Avonex (3 years) and Copaxone (3 years) but gave up on the MS drugs and am hoping to toddle along into old age without more of them. I hope you'll do well on Aubagio!