Okay, it is a juggling act and some of us have only one hand to juggle with. I am metaphorically speaking, not literally. We have Relapsing-Remitting ms (RRMS), there is so much to do so many decisions to make. Slow down for a minute, take your time. I have been living this life for over twenty years. I have time and so do "YOU". Little bit of sharing here, which of course I will deny. From my diagnosis (DX) to my first Beta 1b injection was many months. Various reasons, a divorce no insurance, not knowing what to do, the usual stuff. Quite possibly, what "YOU" are going through. It took time but eventually, I got myself started on my long ms journey.
ms in all its forms is a very long journey, there are ups and downs, generally downs, but there is no need to panic. Search for and find yourself, role models, heroes, supermen. Or women as the case may be. I have my hero, a person that I can look up to as a role model. Actually, when I look around, I can see several people that I feel have been a realy strong and their behaviours gives me something to aspire to. The old adage, "if they can, I can as well". Look back at the old ms magazines, that lady sitting in her wheelchair smiling. I am sure she really wasn't, she did not have any form of medicine that slowed her disease progression. She was going to get worse at whatever rate her ms decided.
Today, "YOU" and I have Disease-Modifying Therapy (DMT), not by any stretch of the imagination a cure, but it does slow ms down in some cases. I think I am one, and "YOU" might be as well. Far better in my opinion than that guaranteed wheelchair and various aids. A life of real disability. Do not misinterpret me. Hats off to them, they did the best they could with very little. I did not have to and "YOU", today, most certainly do not have to either.
It is okay to slow things down a little. Have a good long cry, let people abandon "YOU" Start your research on what to do next find out what probably will not lay in wait for "YOU". "YOU" are going to start taking the strongest medicine available to "YOU" very soon. I accept that the conventional wisdom is that your Neurologist (neuro) makes a recommendation or tells "YOU" what to take. I will argue this, remember I am not your doctor or a trained anything, but pilot, and that was long ago. "YOU" find out what medicines are available to "YOU", make a list of what "YOU" may feel are the pros and cons of each. Got it, good. Now ignore it. The strongest I believe is called Ocrevus, it involves an infusion every six months. Take it and state loudly that is what "YOU" want. This is your life, your disease manage it the best way that "YOU" can to your advantage.
I wrote once that somebody is watching "YOU", seeing your every move. Perhaps not every move but some. Set a strong, resilient example for them. Be superwoman for somebody, they may thank you one day, they may not. But be that example not the quivering crying image of weakness. No, somebody that tried, tried and failed sometimes. But, never the less keep on trying and smiling while doing it.
Royce (the ms writer)
You are somebodies superhero, maybe even your own. Take your time, learn what you ned to, change if you must but always keep moving forward on your ms life path
