Post 544 I need to try harder 16 Oct 2019

[RoyceNewton]

Okay just because I turned up at the gym at the appropriate time, does not mean that I worked hard enough. Just because I stumbled out of the gym kind of does make me feel a little better, but I am pretty sure five months in Australia did me no favours. I can lie in bed and do situps, and I can put my legs over the couch and do core exercises. I have no excuses, I was just a lazy bastard. Now, of course, I am suffering for it, and I deserve it. There are repercussion in ms. Do not take your Disease-Modifying Therapy (DMT) per instructions do not exercise like "YOU" should and guess what happens? "YOU" No, not your overpriced doctor not that cute Man or woman next door "YOU" it does suck like that.

I and "YOU" have ms in some form, and we are responsible for living it until one day we die. How well we choose to live it is up to us. The disease will progress as it wants to. We can not control that. We merely have to deal with it the best way we can. It is our choice as to how we deal with it. I am not going to get into an argument, but your choice is simple. DMT and slow down your disease progression. Not cure it just slow it down. Do nothing and suffer the consequences whatever they may be, your guess is as good as mine. It truly is that simple. "YOU" do nothing and "YOU" suffer the consequences. "YOU" suck it up, take the DMT and we get to see how "YOU" end up doing in Forty years. As best as I have learned, nobody can predict very much in this disease. "YOU" like me may change your DMT, but do it slowly and give your DMT time to work. Get proof of failure. Magnetic Resonance Imaging (MRI) is the source I have used over the years, that may work for "YOU". I keep a diary, so that I know of any changes are helping or hurting. I pay attention to my ms so I can try to limit the dumb things that I do. Naturally, I still do dumb things, but I know what they are and the consequences. It does not stop me doing them, and I just know what is probably going to happen. It allows me to find soft floor to fall on.

Because I and "YOU" have a chronic, progressive illness is no reason not to push ourselves to failure. Do it with the awareness of the consequences, do not let yourself be frightened into doing nothing and living a coddled sedentary life. Get out there and live. Live to the best of your abilities. One day "YOU" can look back and say I did that, nobody else but me, and by golly I am proud.

Royce (the ms writer)

ms is no reason not to live and be happy

[carolek572 CommunityAmbassador]

But you try, and that is all that matters, Royce

[RoyceNewton in reply to carolek572]

yes good point

[carolek572 CommunityAmbassador in reply to RoyceNewton]

[twooldcrows]

hurrah you did it again...your stuff is so wonderful ...saying what it is that you want to say and have it come across so beautiful...not that some may not agree but if they really think about what you are saying it is for the better good of all of us that have this monster MS...no fun but we still can do things that we want to do just maybe in a different way...just love your writing saying just what i like to see on here ....keep it up...

[RoyceNewton in reply to twooldcrows]

Thank you very much it is a goal to keep writing as long as I can

[1180Hope]

Wonderful acknowledgement of REALITY!! I really don't care which disease is changing/ destroying/ or otherwise inhibiting your life, it is very good advice. My sister has been diagnosed with MS, then UNDIAGNOSED with MS, then diagnosed with another medical book's worth of diseases. In other words, nobody has ever figured out what's wrong. All that has ever happened is ANOTHER prescription for ANOTHER medication. And to make matters worse, none of the doctors has ever, not once, looked at her other medications to see if any conflict/combination is harming her.

But that's another subject for another time. The point is, YOUR advice is just as applicable to her situation as any other. Thank you for writing. I am sending her your advice.

Hope

[RoyceNewton in reply to 1180Hope]

Good luck to your sister on finding out what is wrong, I hope an answer is quicker rather than slower

[hairbrain4]

Royce is right about this. You only get out what you put in. If you don't put any effort into taking care of yourself your body will rebel and do what it wants to do rather than what you want it to do. Without a DMT the disease will progress faster. Without exercise, your muscles will deteriorate at a faster pace. If you don't eat healthy your cells will break down faster. This is just common sense because this can happen even if you don't have MS, but with MS the rate of deterioration can be faster. Good post Royce.

[RoyceNewton in reply to hairbrain4]

You are right merely common sense, sadly it is not all that common