Question: Does anybody remember their... - My MSAA Community

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Jackjosh profile image
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Does anybody remember their exact date they were diagnosed. I don't know it's just something I cant forget. I was diagnosed May 4th 2011

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Jackjosh profile image
Jackjosh
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17 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

March, '16

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Jesmcd2

I don't know the exact date tho. 😂🤣

greaterexp profile image
greaterexp

It’s funny how I can’t remember much else, but I remember that clearly.

Jackjosh profile image
Jackjosh

I know I forget stuff all the time but I can never forget that for some reason

kdali profile image
kdali

I celebrate a diagnosis anniversary, so it’s in my calendar as a recurring event...but it’s not the day I was officially diagnosed. It’s the day I had the MRI. We brought the CD home and my husband read it while he waited for me to get home in the rain (we had to take separate cars and he met me after work).

I came in the door and knew, though his back was turned to me and he said nothing. It’s a moment I’ll never forget. It’s also when WE got diagnosed, and I try not to forget that either.

Aug 26 2016

sunshinY12 profile image
sunshinY12

Absolutely April 22, 1990

Jackjosh profile image
Jackjosh

Its crazy how we dont forget that

anaishunter profile image
anaishunter

I think I'll always remember the year: 2018. The first time I felt something was awfully wrong - mid Jan 2018- when I started to see double in the middle of the night while reading one of my favorite books.

From then until actual diagnosis, it is a blur where little by little, words that led to MS started to show up in doctors' reports. An initial eye MRI that was fine but showed some brain demylienation that are not supposed to happen at my age. The eye doctor recommending I see a neuro. The neuro testing my reflex but saying nothing and asking for a full MRI. The MRI report commenting on "demylienation typical of MS". This is the first time the word MS showed up. I was sitting in an important but boring work meeting when I opened tre MRI report - that I'll remember.

When I saw the neuro the following time, she took her time to go around the MRI, until I said: I received the report, I know. This must have been end of April. She sent me right away to a MS specialist and did everything in her power to get in front of the line. I saw the MS neuro 5 days later.

First Ocrevus treatment was end of June.

A year and a half later, I'm somewhat grateful for the DX because with treatment, fatigue & brain fog are gone so I feel I'm starting a new life.

Peruzzot profile image
Peruzzot

16 December 2016 is the day it was official after being jerked around with it for almost 5 years. March 2011 was the first time I heard multiple sclerosis as a possible reason for my extreme vertigo and uncontrolled hand movement. A nurse practitioner jumped to that immediately even though I didn't know I knew anyone with it and as far as I know I'm the only one in my family with it. Why she jumped to that I don't know. I never got a chance to ask her. She moved back to the United States before I could ask. Doctors tried hard to prove her wrong butt only proved het more right with each exam.

The same day I got that definitive diagnosis I submitted my retirement packet from the US Army as a soldier. It took months for that to finish processing it and by then I had over 30 years in.

rjoneslaw profile image
rjoneslaw

I would say I have 2 dates. I had an mri done by my ra dr and he told me I had ms then he sent me to a neuro who confirmed it

rfbossbabe profile image
rfbossbabe

June 2000

Juleigh21 profile image
Juleigh21

10/10/14

RoyceNewton profile image
RoyceNewton

No, I think it was in 1990 when exactly your guess is as good as mine

twooldcrows profile image
twooldcrows

for years was told nothing wrong or it was in my head but in November of 2004 was diagnosed ...so glad for i really did think i had a brain tumor for no one had believed me so i figured it had to be that but no one checked ..just kept going to new doctors and doctors ...like ya said was so glad to finally be told what it was...not that i am glad to have it but just didn't want someone cutting on my head to look around ....so all is good i guess hahahahah..

Jackjosh profile image
Jackjosh

Isn't that bull crap the doctors tell us it's all in our head and it really is all in our head 😆. I was told that for years and I was told I was a hypochondriac also.

mrsmike9 profile image
mrsmike9

9/9/14...Easy.

Juliew19673 profile image
Juliew19673

5/15/18

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