Lonely

[nicoly3467]

Does anyone feel lonely having MS? I sure do sometimes even though I’m married, I have a son and friends I see sometimes.

The last two weeks I’ve been recovering from a UTI, and still not out of the woods yet. I was placed on a stronger antibiotic since first antibiotic was not strong enough to fight infection. I’ve been lying down a lot and haven’t been able to do much around the house or hang out or do something with my family. I began to run out of patience the past few days and feeling sad and frustrated. When I feel crappy and emotional, I think I don’t have any friends and everyone else has an exciting life except me. I know realistically this is not true and I’m just being hard on myself. Even my regular MS fatigue is the biggest setback in my daily life and affects what I “want” to do. Anyway, I think I’m having my own pity party tonight, but it helped to vent.

Thank you for listening friends.

Nikki

[jimeka]

Hi Nikki, being on antibiotics can run you down and affect you emotionally. Pity parties are good for us now and again, but don’t stay in that place too long. Look at your photos and how you have uplifted us here, by sharing them. They are so inspirational maybe they will inspire you alittle and help you smile. Let us know how you are, blessings Jimeka 🤗

[nicoly3467 in reply to jimeka]

Thanks Jimeka! That makes sense-I didn’t know antibiotics could that. I’m glad I’ve uplifted people with my photos. I surely enjoy bird photography. It’s my passion. I’ve been looking at bird pics a lot and reading bird books, but still have felt emotionally crummy lately.

[rjoneslaw]

All the time even though I have people around me

[nicoly3467 in reply to rjoneslaw]

Yes, I think it’s the disease that feels isolating at times.

[falalalala]

Once you get past the UTI,try to get out and take some more photos.

I'd love to see them!

[nicoly3467 in reply to falalalala]

Thanks Falalala-I will do that!

[bxrmom]

UTIs or any infection can bring us down. Once the infection is gone, you will hopefully start to feel better and more like yourself. It's ok to have a pitty party, just stay at it for too long

Have a great day!

[carolek572 CommunityAmbassador]

Sending you vSmiles and gentle vHugs, and hoping that you will be better ~ soon! You have a friend in me.

[nicoly3467 in reply to carolek572]

Thanks so much!

[nicoly3467]

Thank you everyone for your help last night. I feel better today just that I vented to you and the fact that all of you understand and are so kind. Also, I appreciate the “encouragement” to post more bird pics and happy to hear that you enjoy seeing them. I’ve always LOVED to help people and now, if I can put a smile on one person’s face or more with my pics, this is rewarding to me and I feel happy. Today, I posted a pic of my cat Moby, lol.

Enjoy! Nikki

[greaterexp in reply to nicoly3467]

I'm so glad you are feeling better today. Illness sure can take a toll on our otherwise sunny dispositions, but on top of MS, it can wreak havoc. I'm glad to hear this was a temporary "blues," and not lasting depression. Isn't is marvelous how therapeutic it is to feel as though we've helped someone else?

Keep posting your great photos!

[nicoly3467 in reply to greaterexp]

Thanks so much! It sure is.

[twooldcrows]

we all go thru days like this....plus sometimes it is just life ...talk to friends and husband maybe they just haven't noticed how sad you are ...love and much happiness ...talk to someone even if you talk to the doctor maybe some of your meds are causing also just talk to the doctor ...don't know how to help except you need to talk to someone and i don't mind the venting i understand ...my daughter do this off and of ...lot just to doing about what we could or use to do but can't do for we are married and have a family ...we love being married it is just life ...it is perfect and this venting keeps us from being grumpy to the husband and the kids ....good luck but just remember it is common to feel this for life isn't always what we want it to be or being able to do what we want ....venting is good to do ...take care and know there are a lot of us on here.... be happy ,smile and have a good laugh it really helps and it really gets others to wonder what is funny....it is fun...

[janetb1968]

Remember that people love u and value u all the time but I know MS is crummy and if u feel lousy, no wonder u feel alone xxxxxxx hugs are free ❤️❤️❤️❤️💞💞💞💕💕💕💕💕💕❤️❤️❤️❤️

[goatgal]

MS is a very isolating disease. It takes a rare friend to totally understand how limiting it can be at times. You are not alone in struggling to maintain a positive outlook.

[pamgarner]

you certainly are NOT alone,I think we all feel like this from time to time.What helps me I think back on the days before ms,my family still acted this way but I Know we think different now.In the words of Scarlett O'Hare,I can't think about this today,I will think of this tomorrow.everyday is different,,,,,,thank goodness,,,,, we will be here,just vent!

[greaterexp in reply to pamgarner]

I say, "Fiddle-dee-dee" a lot!

[pamgarner in reply to greaterexp]

[nicoly3467 in reply to greaterexp]

Lol

[luvhair]

Yes PRAYERS..feel like tht all the time xo

[rfbossbabe]

Sometimes I feel like a stranger on the outside looking in. Don't get me wrong, my family is awesome, attentive, compassionate! That's just me. There are a lot of things this disease has taken from me...balance, energy, ability to walk unassisted, so many times I'm not able to participate in simple day to day activities. I have to rely on my faith, and lean on The Lord to help me deal. With that said, when we have any type of infection or illness, our emotions can get the better of us.

[nicoly3467 in reply to rfbossbabe]

I can relate a lot to what you said. Thanks for sharing!

[victory37]

Yes! I feel that way quite often...feeling like life is just passing me by when I can't participate in fun family activities, either because of my disabilities or because I'm feeling crappy. But the Lord gets me through those times and I know I'm never really alone. I've taken up paining and find it's relaxing and a good mood elevater. I'd love to come over and spend the whole afternoon with you, but I live in Seattle and I'm guessing you're nowhere near??

[nicoly3467 in reply to victory37]

Hi Victory37-thanks for your uplifting comment. I live in Arizona so unfortunately not close enough but I appreciate the sweet offer.

Nikki

[Juliew19673]

You are certainly not alone Nicoly, but it is so easy to feel lonely with MS... I quit my job a month ago and it's hard to find enough to fill my time with meaningful life stuff. But I realize I must go and find it for myself... eeewww/yuk!

[mm1527mm]

I think its normal to feel that way at times. This group has been great because people can relate and have ms too. Hang in there, blessings

[anaishunter]

I guess it comes too from having a disease that many people around you don't have and can't fully understand. While they can relate to your pain or predicament, they can't relate to it 100%. Like I get my husband's issues with diabetes, but I'm not sure I can understand 100% how he feels about it because I don't have it, I don't have to poke myself with needles everyday. I know he feels like he is alone sometimes. Just like I do. This is why this forum is great.

Sending you a big hug, you're not alone.

[nicoly3467 in reply to anaishunter]

Thanks so much! What you said is so true, how no one can relate 💯 percent unless they have the illness.

[anaishunter in reply to nicoly3467]

but you can still get support from them and connect.

Hope you fell better.

[jackiesj]

Just saw this and now i dont feel so alone...see how this works...sometimes its ok not to feel ok...now in saying that do get assistance where needed of course. sometimes no matter who you are aloneness is there...i think people in general cant be perky pleasant all the time.. there is just stuff.....