Post 538 My opinion on research 9 O... - My MSAA Community

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Post 538 My opinion on research 9 Oct 2019

RoyceNewton profile image
3 Replies

Wow, we had an interesting article headline today. Naturally, I am guilty and did not read the whole article. It broke the one-page rule, and very quickly they mentioned fundraising so my somewhat cynical and poor nature stepped in. I remember twenty plus years ago I was told it is okay they will be out with a tablet very soon. That very soon was a lot of needles later. Knowing my dislike of needles, everybody knows how I felt about this.

There is lots to learn about ms and the process of bringing treatments to market, to US, the consumer. There is animal testing, stage one two and three trials at least before there is a marketable product. With all this, funds need to be raised, very large sums of money. Then there is the insurance issues. Why should this expensive medicine be given to "YOU"? Are "YOU" worth the cost being spent on"YOU"?. Not really what anybody wants to think about I am sorry, but this is a reality that we must face. Perhaps some young lady or man Diagnosed (DX'd) in a decade might be a good candidate for treatment but will "YOU" be? I am most certainly sure that I will not be. My lot in life is to die with this condition. I accept that and can live with that.

It did not take me twenty years to get to that position. I asked myself "what causes ms, why did I get it and not somebody" . There was no answer, and there is still not one that I see today. Does that make any sense to "YOU"? Nobody can say why we have ms, how can they fix it, cure it before they can even say that?

This is never a reason or excuse to run away to that dark corner and cry. This is a reason for "YOU" to find and make use of every tool available, to make your life enjoyable, might I suggest GREAT. This is our lot in life do whatever "YOU" can to manipulate, cajole, force it into a life that "YOU" can be satisfied with. Neither "YOU" nor I can make it go away we have to live with it.

Royce (the ms writer)

It is a beautiful day today, and the sun is shining, I am breathing. I think today I will be happy, life is good, regardless of ms

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RoyceNewton
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3 Replies
Juliew19673 profile image
Juliew19673

Thanks Royce!

RoyceNewton profile image
RoyceNewton in reply toJuliew19673

thought I might clear it up a little for my (Newly Diagnosed) Newbies

twooldcrows profile image
twooldcrows

another great one to say ...thank you for a great one again really makes my day to read that someone else feels the same way as me ...nothing we can make it go away but so i just keep loving life and anything in it ....have a great day and enjoy life....

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