Hello, my name is Royce. You might see me every now and again on this site. I write pretty rarely, okay, most days. My sense of humour. I am going to say things to "YOU" that I wish somebody had said to me long ago, so try not to be upset. What I say is never personal, personal is not for a public forum, so if I upset "YOU" please be polite and say it privately. We are all family here.
I am not a doctor or any kind of therapist. I am not trying to sell "YOU" anything, nor am I in the pay of any organization. Having said that if anybody wants to pay me, we can talk, I am open to offers.
Phew, legal stuff out of the way. I say that because I do not want anybody claiming that I told them to do something, I will, but I can deny it now. "YOU" my sister or brother are totally responsible for "YOU".
This is a very big disease, there is lots of uncertainty and some pain, embarrassment, humiliation and abandonment, BUT and it is a very big BUT. "YOU" can live with RRms and live quiet well. There is no need to curl up in a cold dark corner for the rest of your very long life. I was diagnosed (Dx'd) at twenty-nine years of age. I expect to make it to seventy or eighty, so I will have had a very long life with my RRms, and so will "YOU" , I am fifty now.
Children may also be an option. Sadly people do not keep there word so much anymore so divorce might be in your future. It was in mine, thankfully. I honestly doubt that I would be where I am today with the ex-wife. So do not despair my friend, who knows love might be out there for "YOU". Maybe not somebody else, so it is a good idea to start loving yourself. Tears will slow, they do gradually slow down, but experience shows me that at the most unexpected times they come back albeit briefly. I recommend watching touching movies in the dark because of this. I am also HUGE believer in protective underwear. DEPENDS ,aremy brand of choice,I use them whenever I leave the house. They have saved me many times over the years.
After your Protective underwear, we must mention the elephant in the room. Maybe that is a poor choice of words, I will think more on that. I am referring to Disease-Modifying Therapy (DMT), not Disease Curing Therapy (DCT) there, is NOT one, Modifying Therapy. Remember "YOU" still get worse, "YOU" still have exacerbations (attacks) but maybe one or two less and less frequently. This, is the goal for us today, not DCT but DMT.
msAA will help "YOU" with medical information. I will tell "YOU" right now that "YOU" want the strongest that "YOU" can lay your hands on. I believe that it is Ocrevus and M? (something for YOU to lookup). Any less than the strongest warrants a change of Neurologist (Neuro) Do not be afraid "YOU" will screw it up. I am on DMT number three. Amusingly she who must be obeyed is on number two but has not had an attack in years. We are all different. Get the picture DMT is your best option, take it. There are side effects, but mostly they can be lived with. There are injection techniques, icing etcetera, into fat instead of muscles, histamines before infusions. There are side effects, but this is a very liveable disease. there are a lot of choices that "YOU" are going to have to make. Perhaps your first one might be to wipe away your tears, straighten your shoulders, stand up straight and tall, then decide that "YOU" are going to do what has to be done to live this condition .
Royce (the ms writer)
what you do now is your choice nobody elses, yours, choose wisely
