Prep'ing for visit to neuro later today

[anaishunter]

I have my first appt with the neuro later today after DX and first round of Ocrevus treatment 3 months ago. I'm fortunate that my heathcare center accepts email between patients and doctor, and i've sent a recap of where I'm at to the doctor with status of symptoms.

I also sent a list of questions to him. Here they are:

- how/when do I know that Ocrevus work for me?

- can existing active or non-active lesions still create new symptoms?

- any upcoming trials for re-myelination treatment?

- any suggestion for muscle stiffness and flexibility

I thought the email would help me make sure I don't forget anything and that I'd be clear about what I want to say.

Will let you know what I hear from the doctor.

[erash]

I’d love to know the answers u get. ESP. When will you know Ocrevus is working? 🌈

[Juliew19673]

Great questions and would love to hear the answers as well.

[anaishunter]

Here is what came out of my appt with the neurologist yesterday:

- good news: neurological test is almost perfect

Answers to my questions and more:

- how/when do I know that Ocrevus work for me?

Next MRI (Dec/Jan) should show no new lesions (at the last MRI in June, I had 20+ lesions throughout the brain and spine). I should also not experience any relapse.

- can existing active or non-active lesions still create new symptoms?

They should not. Current symptoms could still appear.

- any upcoming trials for re-myelination treatment?

He mentioned one for optic nerve remyelination. But I actually signed-up for one for fatigue.

- any suggestion for muscle stiffness and flexibility?

He suggested that I keep exercising as I currently do and that we will revisit in Dec/ Jan.

I wish I had asked more questions about cognitive symptoms, which is my case is what I'm worried about - memory, slow thinking,...

Hope this helps.

[kdali in reply to anaishunter]

Thank you! 🤗

[greaterexp]

Thank you for the update!