How the world looks at me is neither my concern or my problem. I am not in control of their thoughts or of there biases and past histories. I do not have to met somebodies notions of what a person with ms (PWms) is like or how I should be. I am forever told that I have an incredibly variable and unpredictable illness. What is here today might begone tomorrow and back again a week later. If I have to live with that uncertainty, how can a random stranger or even a family member make a judgement of me. How can I react to this? Perhaps it is best if I do not. My concern must be me, at all times, me. I am “NOT” suggesting rudeness and callousness, there is still this little thing called manners. I am suggesting that before “YOU” or I take any action we think three times about any repercussions and how they may eventually may affect us.
Do not take your Disease Modifying Therapy (DMT) for whatever reason and ask me in twenty years how well that worked out for “YOU”. Ignore my constant nagging about protective underwear and explain to me what it is like to walk out of somewhere in public, soiled or wet. Was that a good feeling? Are “YOU” mentally strong enough to do that. I know I am after twenty years but are “YOU”? If “YOU” are, feel free to ignore me, it is just advice based on experience.
Once “you are comfortable with these things perhaps “YOU” could start researching some other things to make you very long ms life easier. Your diet, there is no ms diet but there are ones for diabetes, heart health etcetera. Maybe “YOU” might look into them. Exercise, great fun and it helps with endorphins. Endorphins help “YOU” feel good and that is what we want to do. Succeed as much as “YOU” can and at everything “YOU” can. Take the little victories and build on them. Give yourself a good solid base to build the pyramid of your ms life. Pyramids are not built from the top down they start with a solid base. Build your own base strong and large. Over the years “YOU” can build a huge strong pyramid that will last. There will be hiccups, DMT that just does not agree with “YOU” That is NEVER a reason to stop, merely a change of direction on your ever forward move along you ms life journey.
Now, “YOU” have a few of the early steps to take, there is much more so keep learning and studying our illness. NEVER EVER expect to sit back and say “I have it now, i am okay” ms is ever-changing expect change, because will it happen.
Royce
ms is a liveable but changing condition Ready yourself for its changes and keep moving forward. This is a journey not so much a battle I think.
What you see, it is not me?!
