Easier said than done: Easier said than... - My MSAA Community

My MSAA Community

9,169 members20,906 posts

Easier said than done

RoyceNewton profile image
2 Replies

Easier said than done. Easily said but in my opinion they most certainly were not talking about Relapsing Remitting ms (RRms) any ms I think but I can only speak for RRms because that is what I have. No, pretty much everything about this illness is very easily said, but somewhat harder to do. Do not get me wrong I am not saying that “YOU” are doomed, to a dark corner with lots of pitiful crying that is not your lot in life. NO, most certainly very far from it. Tears are okay, and to shed them on occasion is quite okay. I remember shedding a tear around my nineteenth anniversary over something so silly that I do not even remember what it was. I just remember doing it. I think I was looking at the stars and realised that I did not see them as clearly as I once could. Thank you very much ms I appreciate that. At least it makes it a little harder to see my grey hairs. “YOU” can always find a silver lining if “YOU” look closely enough.

No, this is not easy but most certainly “YOU” do not have to make it harder. A constant uphill battle filled with disappointment and loss. NO. RRms can be lived with , lived well with for a very long time. I plan on living with mine for between thirty and forty more years. Twenty down so far so I am making a good start I think.

On a completely different train of thought have “YOU” by chance thought of what your future may hold. No, not ms wise we all know what that holds, progression a little or a lot nothing much that we can do about that. We are taking our Disease Modifying Therapy (DMT), eating right drinking less not smoking exercising and wearing our Protective Underwear. No I mean what will be your story. What tale will your family tell about “YOU” at gatherings in the years to come? Seriously that bears serious thinking about. Will “YOU” just be forgotten in a generation or two, or will “YOU” be in somebodies ancestral memory. A beacon of hope strength and perseverance for those who come after “YOU” That really does give “YOU” a little to think about. RRms can not take that away from “YOU”. Government can not take it and waste it somewhere. It would be a very good thing to leave for the future a legacy of strength and determination. A willingness to face fears and keep moving forward. Maybe with a beautiful garden or painting\picture. Dare I say it in your writing. Your story is far from over, leave us one day with a great story to tell. Let us talk of “YOU” by a fire at night, sing your praises and raise a glass to your name.

Royce

That would be very nice indeed

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
2 Replies
carolek572 profile image
carolek572CommunityAmbassador

Good post, Royce. It reminds my of something called "The Dash Between the Dates" which refers to your date that you were born and date that you died on your 'headstone'. Live your dash! :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

I do like that

You may also like...

Relapsing Remitting ms, the MOST important thing, maybe

with \\"YOU\\" for all your many years. No matter what RRms may and will do to your body...

Just to clarify, nobody said anything.

does not mean that you can not wish me the best. how you do it and what you say is okay. I...

I am going on holiday for two weeks or so

condition. \\"YOU CAN; YOU WILL, YOU DO Relapsing Remitting ms(RRms)\\" I say it to \\"YOU\\",...

Yes, I really can walk backwards

I do not want to know what You can not do but what YOU CAN do. If you face an obstacle find a way...

I, too, am new but older than dirt!!

Then the scepticism began, to wit, \\"Are you sure that's what happened\\". And that, problem...