Does anybody know this?: Is there anybody... - My MSAA Community

My MSAA Community

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Does anybody know this?

RoyceNewton profile image
β€’17 Replies

Is there anybody out there that knows the answer to this question. Do we get people who are brand new, newly diagnosed (newbies) joining our family or are they mostly people who have been travelling a while that join us? I remembered my experience was that I found this family after many years on this journey. Maybe you were not around so much back then. Anyway I am curious so if anybody can help I would appreciate it.

Royce

Have a nice 4th and enjoy the parade.

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RoyceNewton profile image
RoyceNewton
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17 Replies
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Kenu profile image
Kenu

I was the same as you Royce. I found this site after twenty two years. Sure glad I did πŸ‘πŸ™πŸ˜‰ Ken 🐾🐾

carolek572 profile image
carolek572CommunityAmbassador

I found this site after a dozen years or so of my journey with 'ms'. It is nice to be with other members who know what this 'ms' can be like. I have found a lot of support here. Thank you :-D

falalalala profile image
falalalala

I found this site 10 years after being diagnosed.

I wonder what I would've thought had I found it within the first year? Things were different (as in better) for me in terms of gait, jumping hurdles, skipping rope and tap dancing.;)

Lilith08 profile image
Lilith08

From reading introductory posts I’d say it’s a mixture. This MSAA group has only been around a few years. I imagine there have been other venues before that, though.

Petunilla profile image
Petunilla

Yes, I’m recently diagnosed (two months ago). I’ve found a lot of useful information here, and am so glad for everyone who has contributed or commented.

RoyceNewton profile image
RoyceNewtonβ€’ in reply toPetunilla

Welcome to the family my dear

Petunilla profile image
Petunillaβ€’ in reply toRoyceNewton

Thank you!

Frances_B profile image
Frances_Bβ€’ in reply toPetunilla

If you are newly diagnosed then you'll find it incredibly useful to do this free on-line course when it's run again in September. (I found that I didn't need two hours a week for it - apart from the first module it took less than two hours)

ms.mooc.utas.edu.au/index.php

Petunilla profile image
Petunillaβ€’ in reply toFrances_B

Thank you - that's really helpful.

RoyceNewton profile image
RoyceNewtonβ€’ in reply toPetunilla

look up dr Aaron Boster ohio me clinic I believe, he is very helpfulpful

RoyceNewton profile image
RoyceNewtonβ€’ in reply toFrances_B

good advice everywhere

MSnWV profile image
MSnWV

I found this 10 years in, a couple months ago. I finally decided I should find a place with people dealing with the same problems, more or less, that I have been dealing with. With that being said this is only my second reply post.

RoyceNewton profile image
RoyceNewtonβ€’ in reply toMSnWV

well thank you that is nice to be number two, you really should drop in and sau G'day more often

sashaming1 profile image
sashaming1

From what I read on this website, some people state their diagnosis date/year if they are a newbie. Isn't that information collected when someone creates an account here?

RoyceNewton profile image
RoyceNewtonβ€’ in reply tosashaming1

that does sound right but I am not sure

jackiesj profile image
jackiesj

It took me a while to find home, yes, this IS home.I do think some advertisement is needed a link from MSoc but so many groups they cant do it.I feel very blessed.

RoyceNewton profile image
RoyceNewtonβ€’ in reply tojackiesj

hmm I understand your point how do we stay personal yet still reach more people that need tp be with us, interesting question

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