I am not now to ever trying to be rude or upset “YOU”. I AM without any shadow of doubt making my attempt to stretch your thinking. With our illness we live in a box. The box gets a little smaller as the years pass by. My writings are my attempt to show “YOU” that your box can be stretched a little if “YOU” open your mind to different possibilities. For all of us the walls are closing in, that is the nature of our disease. I merely suggest that there are ways to push those walls back a little sometimes. If only “YOU” allow yourself to be willing to make an effort and accept the effort that “YOU” as a person with ms have to make. Yes, without a doubt there is loss and sacrifice, but these are things that I feel that “YOU” must be prepared to do to have a happyish and fulfilling life. Do nothing and “YOU” will still live, with decay being much faster than somebody who makes an effort. I am staying in a two storey house at the moment. The computer is upstairs so of course when I frequently need to urinate(ms bladder) I go downstairs use the toilet(bathroom) then come back up the stairs to the computer. Effort my family effort. Only once so far have I waited to long and the floor suffered a wash it did not beed. This is\maybe a way to look at your life everyday. I will make an effort to do something a little more than I\”YOU” have to, so tomorrow I\we have a memory of accomplishment and strength. Give yourself every opportunity to see how great “YOU” really are.
I like that idea much more than sitting in a dark, cold corner whimpering. Give yourself memories that build “YOU” up not tear “YOU” down.
Royce
relax I am not trying to be mean, just showing you that there is a different way
Written by
RoyceNewton
To view profiles and participate in discussions please or .
I think it is always good to expand your own little box. Just curious why you always use "YOU" instead of you? An inquiring mind wants to know. Hope your floor doesn't experience any more washes. 😉
Only because in a group setting and with my attempt to write in such a way that I am speaking to you as an individual, not so much you as a group of thousands. Also to remind you that I care about you and I hope my writing express that.
Your fervent note is interesting and thoughtful. Since I have not read a "poor pitiful me" comment in here (but then again I am a newbie") I wonder to whom you are addressing it?
I would think those of us without family support might on occasion slip into melancholy or even suicidal ideation. However, so do people without MS. I do think we reflect human behavior when considering our incurable plight. And I doubt any one of us can avoid not wondering "what IS the point of this?" and just shaking our heads or just sharing that with someone else.
MS is living with loss that continues, period. Furthermore we know it may actually increase. Grief due to loss can be in the most difficult circumstances very hard to mitigate. ..especially if no family or loved ones are near. Then it is guts to glory. That's it. Meditation on all manner of life's aspects is incredibly helpful.
It is wonderful to talk with someone who is sympathetic but not antagonistic or pitying., especially if what they say is helpful or inspiring. Most people in similar circumstances do find other things to think about and finally resolve that, indeed, none of us survive life. For example, let's talk music. Playing and listening to music can be an exploration of every aspect our individual lives. Those who play can beat the keyboard into melodies that lift our hearts allowing us to see a broader picture and our place in that picture. Some people become philanthropic and give their time and money and often possessions to others in greater need.
Laughter is used by many to increase their enjoyment of the moment. I search for laughter on the internet (and laughing at myself!). Laughter can be found. We contain laughter and sometimes we are the funniest group yet! Looking at beautiful and awesome photographs is another pleasure. Listening to people and understanding what they are actually saying v what I think I hear...a challenge!
Uncontrollable bladder function is always a challenge. I have no real answers to that except acceptance and do the best we can.
I hope you are well and happy, Royce, just as I wish we all are. I know you wish us all well.
uncontrollable bladder, hey it happens basically just laugh at it. and wear your protective underwear and clean the floor if need be, certainly not the first time and I am sure it will not be the last
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
