I have this, do you?

[Jesmcd2]

Mine is just in both feet tho. Anyone else?

Jes🌠🦈

TY Positive Living. positivelivingwithms.com

[luvhair]

Yes mine comes n goes..ive had it happen crzy lips n half face idk..

[Jesmcd2 CommunityAmbassador in reply to luvhair]

That doesn't sound good luvhair d does your Dr know? 🤗💕🌠

[luvhair in reply to Jesmcd2]

Yes I've told her..nothin really they can do..they think im doin good when really living is real crappy..and no meds can help. Me.the risk with the jcv compared to side effects she said just isnt worth the risk seein her nx month..

[JTZES]

This is an accurate account for many of us. I enjoyed seeing it in this format.

Thanks!🤗😁😁

[Jesmcd2 CommunityAmbassador in reply to JTZES]

Thanks! I can't take credit tho! 🤣🤗💕🌠

[falalalala]

Feet and hands to varying degrees on any given day.

I could probably drop a piano on my feet and still be smiling.

Always look on the bright side of life ...

[Jesmcd2 CommunityAmbassador in reply to falalalala]

Try a Tonka truck. 😭🤣😔 I didn't feel a thing! 🤣🤗💕🌠

[falalalala in reply to Jesmcd2]

Yikes! I remember those.Now that was a sturdy toy!

So is your foot.

[Kenu]

Both legs pins and needles and arms😠. Has gotten a little worse over twenty four years! My pain pump does help 👍. Just part of ms, move forward 👍😊😉🙏😁. Ken 🐾🐾

[Jesmcd2 CommunityAmbassador in reply to Kenu]

One step at a time! Kenu 🤗💕🌠

[Iona60]

Comes and goes with fatigue and stress.

[carolek572 CommunityAmbassador]

Both legs up to my knees, both hands up to my elbows. They are constantly in a state of 'pins and needles', and I visually check to see what they are doing because I get dropsies in both hands, and my legs don't always work the way that they are suppose to. But I get on with life.

[Jesmcd2 CommunityAmbassador in reply to carolek572]

Dropsies! 😭😭🤣😂🤗💕🌠

[carolek572 CommunityAmbassador in reply to Jesmcd2]

Watch out below!

[LissaH]

I have it in my both arms. Mines happen when I'm sleeping. I have to wake up and shake my arms out and open and close my hands to get the blood or feelings back to their normal self. It happens several times during the night.

I get scared that I will wake up one day and both of my arms will no longer work for lack of blood flow.

[Kenu in reply to LissaH]

My left hand is that way, wake up and have to shake it and move it around till feeling comes back 🤬 Yes, kinda scary as I don’t have use of right hand. Ken 👍😉🐾🐾

[greaterexp in reply to LissaH]

Has your doctor evaluated you for things like stenosis or other issues in your cervical spine, which can, at times, cause issues with hands and arms? It's interesting that your symptoms seem related to positioning of your body.

[LissaH in reply to greaterexp]

I have an appt with my doctor in August, I will bring it up too him and we will see what he says about it. I do have MS damage in my brain and spine.

[ahrogers]

This was the symptom that got me to the doctor for diagnosis. Started in my feet then moved up my legs. About 6 months later my face then a year after that my hands. It is not completely without feeling (except my feet) but significantly decreased.

I was actually happy when my feet went totally numb because leading up to that I had the pins and needles and feeling that a string was tied tight around my toes. Numb is much better 😁

[Mjcarbo]

I have it in both feet also. Sometimes it triEs to creep up my legs. Quite disconcerting...

[Jesmcd2 CommunityAmbassador in reply to Mjcarbo]

Just my feet for me. Which is enough. 😔🤗💕

J🌠

[goatgal]

Numbness is more or less permanent in forefoot of both feet, sometimes briefly on the top front of my thighs, and occasionally in my arms or hands at night. Permanent decreased sensation in my fingers.

[6092177588 in reply to goatgal]

What has helped you? Feel same

[Kompany]

Mine started in my right big toe. My leg felt sunburnt- hurt to touch & it radiated heat. By the time morning rolled around , it was all numb, waist down. My first hospital stay was in my 30’s

[Jesmcd2 CommunityAmbassador in reply to Kompany]

Did it stay that way Kompany ? Or did steroids help? 🤗💕

J🌠

[Kompany in reply to Jesmcd2]

Steroids made it go away for the most part. When they did the spinal tap they struck a nerve & I lost a sensation on the bottom of my feet. They are still ticklish & they get cold, but they don’t feel things crunch under them, they don’t warm up quickly. I can’t put a finger on the lack of sensation but something is missing 🧐

[Horse714]

left foot 🦶 numb.

[CraigS]

It is a strange feeling. Mine start d with my left leg. I had to walk with a cane to get around. Later, it jumped to my right foot and then crawled up to my knee. The funny thing is that I no longer needed a cane because my brain balanced the condition. That lasted several years until three years ago when my right arm and leg just gave up. One is a boat anchor and the other is just there. That was when I was finally diagnosed with MS. Every once in a while I get pain in my toes, but other than that, I don’t really feel much.

Ahh the joy of MS and all it’s crazy symptoms!

[6092177588]

Yes, both feet and hands. I read inflammation is a silent killer. Looking for new research.

[Beckylp54]

Hi Jesmcd2

Numbness started in feet went up my legs lasted a year then kept going up body then had a severe exacerbation. That's when I went paralized in legs. Took 9 rounds of high dose steriods intervenious. Steriods helped. But went numb chest down for three nights. That was very scarey! Good thing I was also on pain pills whacked out for awhile. I had tingling throughout my body for probably 3 years or more. Just about drove me nuts! I dealt with thyroid cancer also at the time surgery radiation and recd more intervenious steriods during surgery. That helped again in the healing process. Since dx fromm 2009 have always experienced tingling numbness but it's better. Comes and goes depending on stress or over doing it with my body. This MS life is sure a trip! And I DON'T always like it. But I always remind myself how bad it can be and tell myself you made it through before you can survive this.

Blessings to you becky

[kycmary]

I went numb from my underarms down that was July of 94 from top of shoulders up was fine. That lasted for several months & Dr. gave me a positive Dx of MS. It did eventually return to normal but was in degrees over several months. Now it happens when I get over heated or very tired. When I get rested or cooled down it gets better & disappears.

[Supportgroup1]

Yes all of the time! Dr. said it’s not unusual! It drives me crazy, my hands feel like I have pins and needles all of the time also! Same answer from Dr.

Not unusual with MS!