How Many Autoimmune Diseases Do You Have? - My MSAA Community

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How Many Autoimmune Diseases Do You Have?

SometimesCrazy profile image
β€’40 Replies

I read that they come in pairs or more often. Left the hospital and I was told to see a rhuematologist. Just looked at all the diseases they cover. Holy Stromboli. I clicked on about twenty of them and they have the same symptoms as MS. I'm pretty sure I don't have Kawasaki disease lol but it's still early. There was one that sounded exactly like the ms hug that I think I got for the first time on the way to the hospital. Just curious though if anyone has more than just MS. Big hugs and kisses to everyone on here.

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SometimesCrazy profile image
SometimesCrazy
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40 Replies
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Jazzihorsecat profile image
Jazzihorsecat

SometimesCrazy, I have Raynaud's too, it's a cirulatory problem, I'm told, Someone told me they were Dx'd by a Veteran Doc with Gulf-War Illness as they were a health care person (home care) for someone with Gulf-War Syndrome & they were there in the Gul-War & she said that too mimics M.S., its a mycroplasm, so yep, there's many out there Mimicing M.on.Ster...very interesting topic. Love YaπŸ’˜πŸ’πŸ‘---JazzyπŸŒΉπŸ’œ

IFwczs profile image
IFwczsβ€’ in reply toJazzihorsecat

The dead give-away for MS is the MRI and the lesions.

I only had MS Hug and that was years ago

greaterexp profile image
greaterexp

I've read that migraines can be related, as well as IBS, both of which I've had for years. It's amazing how many diseases are categorized as autoimmune, and how many "extra" problems can be added to MS.

kdali profile image
kdali

I’m one and done.

RoseySawyer profile image
RoseySawyer

I only have my MS. But I'm only 34 years old right now and ALOT of immune diseases runs in both sides of my family. πŸ‘€ Only time will tell. πŸ˜•β€πŸŒ·

rjoneslaw profile image
rjoneslaw

I have Stills Disease which is the adult form of JRA (Juvenal rheumatoid arthritis) I was dx when I 25. Then came MS at the age of 43.

IFwczs profile image
IFwczsβ€’ in reply torjoneslaw

I was diagnosed with rheumatism back in Russia when I was 6. Here now they are saying it was Juvenile Rheumatoid Arthritis. It was the most painful thing I could imagine. My family thought I was dying and baptized me. Did your joints swell up?

SometimesCrazy profile image
SometimesCrazyβ€’ in reply toIFwczs

My ankles. My left looked like an elephant foot.

rjoneslaw profile image
rjoneslawβ€’ in reply toIFwczs

I had fluid around my heart n I couldn't bend my my arm. From there I had joint pains

erash profile image
erash

Hashimotos, raynauds and a rheumatologist once tried to pin lupus on me. I refused 😊

IFwczs profile image
IFwczsβ€’ in reply toerash

My mom has Hashimoto's. How is that going?

erash profile image
erashβ€’ in reply toIFwczs

I take a thyroid supplement. Wish all diseases were so simple

IFwczs profile image
IFwczsβ€’ in reply toerash

My mom seems to be in denial about it. But doesn't sound as bad as MS or especially lupus. (That was irresponsible of that rheumatologist, I hope you no longer see that doctor.)

erash profile image
erashβ€’ in reply toIFwczs

No longer see him. Turned out my back pain was due to a spine problem that was corrected with surgery

IFwczs profile image
IFwczsβ€’ in reply toerash

What kind of back surgery did you have?

erash profile image
erashβ€’ in reply toIFwczs

because of osteo-arthritis, I had a cyst pressing on my spinal cord and causing paralysis Left leg. I had the cyst removed and a laminectomy.

SometimesCrazy profile image
SometimesCrazyβ€’ in reply toerash

What if you had never found the cyst! πŸ™That doctors just said it was MS. I have had a few cysts removed. I have one on my pubic bone that I have had for over 30years. I felt one under my butte when I was very thin when I got very sick.

erash profile image
erashβ€’ in reply toSometimesCrazy

This was an internal cyst found on MRI because of right leg paralysis

jackiesj profile image
jackiesjβ€’ in reply toerash

oh goodness, you have been thru the wringer....

Peruzzot profile image
Peruzzotβ€’ in reply toerash

My youngest sister and one of my Dad's older brother has hoshimoto as well.

mrsmike9 profile image
mrsmike9

I was diagnosed with RA in my early 30's. MS came next several years ago and now I have collagenous colitis. All the above are auto immune diseases. No cause and no cure. Hit the jackpot! Just waiting for what may come next but hoping to stop at three!

RoseySawyer profile image
RoseySawyerβ€’ in reply tomrsmike9

I hope it stops. 😊❀🌷

kycmary profile image
kycmary

Hi SometimesCrazy that sounds like me, LOL. 1st there are over 500,000. 1st cousin diseases which share so many of the same symptoms. that's why diagnosing MS is a process of elimination & for some it takes years to get a diagnoses. 2. yeah autoimmune diseases travel in 2's, 3's & more. I have MS, diabetes, arthritis & I don't listen any more.

guitarguy profile image
guitarguy

MS, kidney disease and I could scratch my skin off with a fork! Oh, and migraines too. Almost forgot about Shingles and 6 months of hives.

Dave

kycmary profile image
kycmary

Considering there are over 500,000. 1st. cousin diseases it's scary very scary that's why it takes some people so long to get a diagnoses or are missed diagnosed a few times.

falalalala profile image
falalalala

I also have Type 1 diabetes.

I couldn't just stop at that,so I got MS to even it out. ;)

Peruzzot profile image
Peruzzot

I have iron deficiency anaemia on top of MS. I have to get iron infusion every 6 months. Docs haven't figured out why my body won't retain it yet. I was initially tested for it to see if maybe my iron was low to see if maybe that's why I was always so tired. Docs were still trying to prove a nurse practioner wrong with her immediate jump to MS. I scored a 3.8 for iron levels. Should be a minimum of 15. It's only gone to 15 once a few weeks after an infusion but then drops to between 6 and 8 again. Just had another infusion yesterday and I get a second dosage next Thursday. Maybe it will help with at least some of the !@#$@@!@#$#@! Fatigue. πŸ™„

RoseySawyer profile image
RoseySawyerβ€’ in reply toPeruzzot

I hope it helps. 😊❀🌷

β€’ in reply toPeruzzot

Pun intended:

Pray and everything will be alright!😝🀣

IFwczs profile image
IFwczsβ€’ in reply toPeruzzot

I also had iron deficiency anaemia. My doctor ordered iron supplement. I have read somewhere recently that MS patients usually have iron deficiency. I am going to ask my PCP to retest me next time.

Peruzzot profile image
Peruzzotβ€’ in reply toIFwczs

I tried the iron supplements when I was pregnant and I just vomited them within 5 minutes. So the doctor decided not to bother having me retry the supplements and just started me on the infusion. So far I haven't had a bad reaction to that.

IFwczs profile image
IFwczsβ€’ in reply toPeruzzot

Are you by any chance on Ocrevus?

Peruzzot profile image
Peruzzotβ€’ in reply toIFwczs

I'm on tecfidera so far that is working for me.

IFwczs profile image
IFwczsβ€’ in reply toPeruzzot

And forgot to ask you if the second iron infusion helped you with fatigue

Peruzzot profile image
Peruzzotβ€’ in reply toIFwczs

It helped a little but not near as much as I would like. I get tested again next week to see if my iron levels have improved any.

IFwczs profile image
IFwczsβ€’ in reply toPeruzzot

I was on it for about 4 years, but I have progressive MS, so it didn't help me, after all. (My neuro diagnosed RRMS, but I never had any relapses, just a steady decline.) How long have you had MS? And how old is your kid?

Peruzzot profile image
Peruzzotβ€’ in reply toIFwczs

I was finally given the affirmative MS diagnosis Dec 2016 but have had symptoms since maybe around 2003.

I have 4 sons. They are 28, 24, 21, and 20.

anaishunter profile image
anaishunter

One and I am plenty satisfied with this number.

jackiesj profile image
jackiesj

Shingles, EBV, JC,Inflamatorry, arthritis, vit D genetic defiency and counting....contstnt viral infection that leads almost always to sinus all over.After my body received more oxygen due to heart surgery some of my symtoms had strength given back.After a major antibiotic I also felt like a million bucks, for a while...wish I could piece it together.

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