How Many Autoimmune Diseases Do You Have? - My MSAA Community

My MSAA Community

6,324 members15,311 posts

How Many Autoimmune Diseases Do You Have?

SometimesCrazy
SometimesCrazy

I read that they come in pairs or more often. Left the hospital and I was told to see a rhuematologist. Just looked at all the diseases they cover. Holy Stromboli. I clicked on about twenty of them and they have the same symptoms as MS. I'm pretty sure I don't have Kawasaki disease lol but it's still early. There was one that sounded exactly like the ms hug that I think I got for the first time on the way to the hospital. Just curious though if anyone has more than just MS. Big hugs and kisses to everyone on here.

40 Replies

SometimesCrazy, I have Raynaud's too, it's a cirulatory problem, I'm told, Someone told me they were Dx'd by a Veteran Doc with Gulf-War Illness as they were a health care person (home care) for someone with Gulf-War Syndrome & they were there in the Gul-War & she said that too mimics M.S., its a mycroplasm, so yep, there's many out there Mimicing M.on.Ster...very interesting topic. Love Ya💘💐👍---Jazzy🌹💜

IFwczs
IFwczs in reply to Jazzihorsecat

The dead give-away for MS is the MRI and the lesions.

Hidden
Hidden

I only had MS Hug and that was years ago

I've read that migraines can be related, as well as IBS, both of which I've had for years. It's amazing how many diseases are categorized as autoimmune, and how many "extra" problems can be added to MS.

I’m one and done.

I only have my MS. But I'm only 34 years old right now and ALOT of immune diseases runs in both sides of my family. 👀 Only time will tell. 😕❤🌷

I have Stills Disease which is the adult form of JRA (Juvenal rheumatoid arthritis) I was dx when I 25. Then came MS at the age of 43.

IFwczs
IFwczs in reply to rjoneslaw

I was diagnosed with rheumatism back in Russia when I was 6. Here now they are saying it was Juvenile Rheumatoid Arthritis. It was the most painful thing I could imagine. My family thought I was dying and baptized me. Did your joints swell up?

My ankles. My left looked like an elephant foot.

rjoneslaw
rjoneslaw in reply to IFwczs

I had fluid around my heart n I couldn't bend my my arm. From there I had joint pains

Hashimotos, raynauds and a rheumatologist once tried to pin lupus on me. I refused 😊

IFwczs
IFwczs in reply to erash

My mom has Hashimoto's. How is that going?

erash
erash in reply to IFwczs

I take a thyroid supplement. Wish all diseases were so simple

IFwczs
IFwczs in reply to erash

My mom seems to be in denial about it. But doesn't sound as bad as MS or especially lupus. (That was irresponsible of that rheumatologist, I hope you no longer see that doctor.)

erash
erash in reply to IFwczs

No longer see him. Turned out my back pain was due to a spine problem that was corrected with surgery

IFwczs
IFwczs in reply to erash

What kind of back surgery did you have?

erash
erash in reply to IFwczs

because of osteo-arthritis, I had a cyst pressing on my spinal cord and causing paralysis Left leg. I had the cyst removed and a laminectomy.

SometimesCrazy
SometimesCrazy in reply to erash

What if you had never found the cyst! 🙏That doctors just said it was MS. I have had a few cysts removed. I have one on my pubic bone that I have had for over 30years. I felt one under my butte when I was very thin when I got very sick.

erash
erash in reply to SometimesCrazy

This was an internal cyst found on MRI because of right leg paralysis

jackiesj
jackiesj in reply to erash

oh goodness, you have been thru the wringer....

Peruzzot
Peruzzot in reply to erash

My youngest sister and one of my Dad's older brother has hoshimoto as well.

I was diagnosed with RA in my early 30's. MS came next several years ago and now I have collagenous colitis. All the above are auto immune diseases. No cause and no cure. Hit the jackpot! Just waiting for what may come next but hoping to stop at three!

I hope it stops. 😊❤🌷

Hi SometimesCrazy that sounds like me, LOL. 1st there are over 500,000. 1st cousin diseases which share so many of the same symptoms. that's why diagnosing MS is a process of elimination & for some it takes years to get a diagnoses. 2. yeah autoimmune diseases travel in 2's, 3's & more. I have MS, diabetes, arthritis & I don't listen any more.

MS, kidney disease and I could scratch my skin off with a fork! Oh, and migraines too. Almost forgot about Shingles and 6 months of hives.

Dave

Considering there are over 500,000. 1st. cousin diseases it's scary very scary that's why it takes some people so long to get a diagnoses or are missed diagnosed a few times.

I also have Type 1 diabetes.

I couldn't just stop at that,so I got MS to even it out. ;)

I have iron deficiency anaemia on top of MS. I have to get iron infusion every 6 months. Docs haven't figured out why my body won't retain it yet. I was initially tested for it to see if maybe my iron was low to see if maybe that's why I was always so tired. Docs were still trying to prove a nurse practioner wrong with her immediate jump to MS. I scored a 3.8 for iron levels. Should be a minimum of 15. It's only gone to 15 once a few weeks after an infusion but then drops to between 6 and 8 again. Just had another infusion yesterday and I get a second dosage next Thursday. Maybe it will help with at least some of the !@#$@@!@#$#@! Fatigue. 🙄

RoseySawyer
RoseySawyer in reply to Peruzzot

I hope it helps. 😊❤🌷

Hidden
Hidden in reply to Peruzzot

Pun intended:

Pray and everything will be alright!😝🤣

IFwczs
IFwczs in reply to Peruzzot

I also had iron deficiency anaemia. My doctor ordered iron supplement. I have read somewhere recently that MS patients usually have iron deficiency. I am going to ask my PCP to retest me next time.

Peruzzot
Peruzzot in reply to IFwczs

I tried the iron supplements when I was pregnant and I just vomited them within 5 minutes. So the doctor decided not to bother having me retry the supplements and just started me on the infusion. So far I haven't had a bad reaction to that.

IFwczs
IFwczs in reply to Peruzzot

Are you by any chance on Ocrevus?

Peruzzot
Peruzzot in reply to IFwczs

I'm on tecfidera so far that is working for me.

IFwczs
IFwczs in reply to Peruzzot

And forgot to ask you if the second iron infusion helped you with fatigue

Peruzzot
Peruzzot in reply to IFwczs

It helped a little but not near as much as I would like. I get tested again next week to see if my iron levels have improved any.

IFwczs
IFwczs in reply to Peruzzot

I was on it for about 4 years, but I have progressive MS, so it didn't help me, after all. (My neuro diagnosed RRMS, but I never had any relapses, just a steady decline.) How long have you had MS? And how old is your kid?

Peruzzot
Peruzzot in reply to IFwczs

I was finally given the affirmative MS diagnosis Dec 2016 but have had symptoms since maybe around 2003.

I have 4 sons. They are 28, 24, 21, and 20.

One and I am plenty satisfied with this number.

Shingles, EBV, JC,Inflamatorry, arthritis, vit D genetic defiency and counting....contstnt viral infection that leads almost always to sinus all over.After my body received more oxygen due to heart surgery some of my symtoms had strength given back.After a major antibiotic I also felt like a million bucks, for a while...wish I could piece it together.

You may also like...