I do not have MS: I have IBSC..... maybe I... - My MSAA Community

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I do not have MS

Mallory3757 profile image
12 Replies

I have IBSC..... maybe I shouldn't be on this blog.....?? interested in talking about Linzess and Amitiza, etc....

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Mallory3757 profile image
Mallory3757
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12 Replies
greaterexp profile image
greaterexp

Could you relate more about your interest in these?

Mallory3757 profile image
Mallory3757 in reply to greaterexp

Interest in these what?

greaterexp profile image
greaterexp in reply to Mallory3757

I'm just curious about how you found your way to this particular forum. I'm glad erash had some answers for you. I'm sure there is an IBS forum which has a large number of people with experience with these meds. There sure are enough folks who suffer from it. Good luck with your search. I hope you find some answers and support.

Mallory3757 profile image
Mallory3757 in reply to greaterexp

Have you heard of Trulance? New drug for CIC. I am going to try to get a script for it.

Mallory3757 profile image
Mallory3757 in reply to greaterexp

So sorry about you having MS..... I have nothing to complain about..... I hope you are ok and can manage your symptoms.

erash profile image
erash

Mallory3757

I've found Linzess to be too strong for me because of severe cramping. I've prescribed both to pts and both can work but patients sometimes had more side effects from Linzess. Nice that I believe both work locally in the gut and aren't absorbed systemically.

I wonder how f there's an IBS forum on here for you?

Good luck!

Mallory3757 profile image
Mallory3757 in reply to erash

thanks for comments. I wonder too.... NO real side effects from Linzess. 290 mcg even....

Mallory3757 profile image
Mallory3757 in reply to erash

Too bad you got severe cramping! BUMER. It DOES help my gut FEEL better....calms the nerves or something......?

Mallory3757 profile image
Mallory3757 in reply to erash

Have you heard of TRULANCE? For CIC.....

erash profile image
erash in reply to Mallory3757

@Mallory3757

Yes but have never prescribed it

Mallory3757 profile image
Mallory3757 in reply to erash

I am going to try it. I think it's pretty new.... will let you know...

I prefer the amitiza I've been on it for years after my stomach was herniated through my diaphragm and left there like a twisted balloon that was going to pop I ended up with mechanical dysfunction because of pushing to go to bathroom was pushing upwards out my mouth as well. The amitiza works great. Earlier this year my doctor had me try linzess. The linzess caused incontinence at first then more pain and then not able to empty as well. I was on it three weeks before requesting I switch back to amitiza. Good luck

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