Living & Loving Life the best I can - My MSAA Community

My MSAA Community

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Living & Loving Life the best I can

skeeter2 profile image
13 Replies

Hello I am new to this so if I do or say anything wrong just let me know. I was diagnosed three years ago with MS not sure what it is. I was never told. I'm sure I could have asked but I didn't know there was several kinds at the time. I take Aubagio for it.. My hair is falling out in strands. And I go into Surgery on the 18th to get my teeth taken out because they are weak and crumbly from the meds?? not sure if it's MS related or medication related. But I'm enjoying my life so far. I work a full-time Permanent job and love my job!! I love to ride my horse Peso' he's short and fat like me so I don't have far to fall lol!! Just living my life the best I can!!

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skeeter2
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13 Replies
greaterexp profile image
greaterexp

Hurrah for you! Welcome to the group! You'll find lots of support and information, and you'll find lots of horse lovers, too! I'm so glad you joined us.

mymsaa.org/

MSAA offers a lot of information and help.

RoyceNewton profile image
RoyceNewton

hey that is the best that you can do ms or not. Personally I would say whatever you want buy do try to be polite and remember we all have ms and can be a little moody but no big deal. Never the less hello and welcome to the family.

falalalala profile image
falalalala

Welcome!

Timeflies5 profile image
Timeflies5

Hello and welcome skeeter2.

Peruzzot profile image
Peruzzot

Welcome to the group!

Beckylp54 profile image
Beckylp54

Welcome skeeter2

This is a wonderful group of people. I screw up ALL the time in talking writing thinking you name it! In the beginning of my exacerbation I couldn't/wouldn't talk because I couldn't get my thoughts out correctly. Still can't talk right at times. My MS nurse reassured me I DIDN'T have dementia etc at the time because I didn't understand what was going on with me. Anyways I deal with mood swings depression it's hard at times living with MS and I choose Love and try not to be angry. Blessings to you becky

goatgal profile image
goatgal

Okay, I'll bite - skeet shooter or mosquito?

skeeter2 profile image
skeeter2 in reply togoatgal

Actually it's my nickname lol My twin sister is Scooter but my real name is Sylvia and her name is Sydne

Lilith08 profile image
Lilith08

Welcome aboard. I hope you’ll find this group beneficial. I, too, was diagnosed three years ago and I’m still learning, and often it’s from reading other people’s experiences and insights right here. Knowledge is power!

IFwczs profile image
IFwczs

skeeter2, these medications side effects would worry me. The current trend is towards Ocrevus, it is well-tolerated. A couple of people here have reported hair loss as a side effect, otherwise people are showing great promising results. I was diagnosed 5 years ago. MS is a journey and will change your life. But you have to become proactive and not let it progress. You have to decide on the doctor, medications, diet and exercise. This is a great place to ask questions. Welcome!

Rick1968 profile image
Rick1968

Sorry to hear of your trouble with Aubagio. I have been on it about 2 years and other than some thinning of my hair that was temporary, I have had no complications. It seems that the difficulty with most prescription medications is that there are so many complications but they don't affect everyone the same way. I know that there are a number of other MS medications, so I would talk to your neurologist about what meds his patients have had the best experience with. I wish you the best of luck and it is was good to hear about your story. Have a great day!

skeeter2 profile image
skeeter2 in reply toRick1968

Thanks so much I will do that and see if anything other than this will help!!

6092177588 profile image
6092177588

Welcome, I wish I could ride a horse, they can be therapeutic. I also was told three years ago but symptoms over fifteen. Research, good specialists help. I also need much dental work. On disability and find my muscles are weak and cannot sit long. Ask questions, explore options. Good luck peace

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