Depression and MS I'm struggling - My MSAA Community

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Depression and MS I'm struggling

doveflyfree profile image
31 Replies

I don't have much support in my life. The Depression has gotten worse and I'm struggling to Keep walking and keeping a positive attitude. I triggered myself into an episode due to stress and over doing it physically. I used to be an advocate against violence. I am good helping others but not taking such good care of myself. It's a huge battle dealing with health care and all the stuff that goes along with it!! Thank you for listening and talking to me!!!

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doveflyfree profile image
doveflyfree
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31 Replies

Hello with this MS it is easy too get depressed because it seems know one thinks you have a disease but we do I was diagnosed in 2004 but I knew I had it way before that. Do you have any one that you can talk to a friend, a family member some one from church. Just anyone who will listen and is sincere. There was a time I was really depressed I was taking Lyrica that medicine has on big thing about it you can get depression well I never thought I would get depressed. HA the joke was on me I got depressed my son brought me to his Priest I spoke with him and it did help and I stopped taking the Lyrica I will never take that again.

What I am trying to say is you need to find someone who will truly listen to you. If you haven’t you might want to talk to your doctor.

Good luck to you

ssdw1958

Sandrawood

doveflyfree profile image
doveflyfree in reply to

Thanks ALOT!! Yes I had severe problems with lyrica and it almost killed me!! I will try to get someone to talk to Its hard to deal with. I try hard to be positive but It's Soooooooo hard with the ms. Thank you very much for sharing with me!!

in reply todoveflyfree

😀😊

jimeka profile image
jimeka

You know that you can talk to us at any time, we are here for you. Depression is a horrible illness in itself without the ms. It is so easy to slip into that dark place. Do you belong to a church? Have things got any better with your family? Quite a few forum members live on their own and have the same difficulty, I hope you can connect with someone and get the emotional as well as the physical help that you need. Try and stay strong, practise smiling in a mirror, that’s a laugh in itself. I think that we should start our own laughter club, laughter is good medicine and it’s free. Blessings Jimeka 🤗

doveflyfree profile image
doveflyfree in reply tojimeka

Thank you very much!! Yes I love laughing and it feels so good!! I will join the laughter club!!!

txcg152 profile image
txcg152

I understand what you are saying (well I can’t say that I understand) we all hate when someone says they understand what we are talking about because they ‘DON’T’ in a way know exactly what’s going on! The depression hits everyone in different ways, my feelings change it seems in different ways almost everyday to be honest with you & I hope you start to feel better with everything that you are going through & having to deal with!

janetb1968 profile image
janetb1968

Big hugs to u honey and I understand about depression - that’s plagued me on + off for about 10 years and then MS came along as well so double trouble! 🤭🤭🤭🤭🤭🤭🙄🙄🙄🙄🙄🙄🙄🙄🙄 xxxxxxxxxx

doveflyfree profile image
doveflyfree in reply tojanetb1968

Thank you very much!! Big hugs to you too!! I Also had depression first Then diagnosed with ms and other physical problems and psychological issues . I pray for you and everyone!!!

janetb1968 profile image
janetb1968 in reply todoveflyfree

Thank u and u too xxxxxxxx ❤️

RoseySawyer profile image
RoseySawyer

I'm sorry your feeling down. I have depression and it sucks. I try to think positive and try to stay busy. Just do you and try your best to think on a positive side of things. 😊❤🌷

leking1 profile image
leking1

Hi doveflyfree! I am so sorry that you are having to deal with this all alone. I live alone, have no family left, except for my son who lives 150 miles away. It can get very lonely, and I know you can feel very alone. Are you taking any meds for your depression? If not, please talk to your Neurologist ASAP about this. You may need to try more than one before you find one that helps you. If I can help you in any way, or if you just need to talk or vent, please let me know. Linda

doveflyfree profile image
doveflyfree in reply toleking1

I am on ALOT of medicine . I definitely will talk to my doctor!! Thanks ALOT!!

pamgarner profile image
pamgarner

I think a lot of us fight depression, I know I do,I can go from glad to sad in a nano second.my dr suggests talking with a MS psychiatrist.he said we all could use talk therapy including himself,but it is really hard dealing with this disease.not only do we have many adjustments and there is not a "CURE" I really wish we could all wake up without this,just take a pill huh?Have you thought of reaching out to a local ms group for support>

Weldon60 profile image
Weldon60

Thanks for your advocacy. It is sometimes hard. When I was diagnosed, after spending 5 days in the hospital for what was originally diagnosed as a stroke, I had to deal with all the feelings that I had. I had been a helper, not a helpee. It was hard to be on the other side, but I grew to appreciate it. Seek counseling, they can give you tools to help with the depression and also give you someone to vent to. We are also here for you.

doveflyfree profile image
doveflyfree in reply toWeldon60

Thank you very much!! Yes I love giving to others not the receiver. I will Keep praying!!

Momjules profile image
Momjules

Hi!

I remember you and wished we lived close as I understand some of what you say!

Please take care and remain as calm as you can .

Someone is thinking of you! Good luck!

doveflyfree profile image
doveflyfree in reply toMomjules

Thank you very much!! I appreciate you and remember you too!! I do have in home care now and I appreciate that deeply!! I can't stop trying!! I wish we lived closer too!!!

Jazzihorsecat profile image
Jazzihorsecat

A very warm welcome to you doveflyfree, our many Prayers🙏💐 go up for you, and don't forget now you're family too here! We'll always be here for you too!💗 Instead of being a human pin cushion💉💊& guinea pig for the Harm-U-Psuetical Co., get the inexpensive e'book by Ann Boroch, "Healing Mutiple Sclerosis", this book has changed my & many other's lives, it's about candida overgrowth, & our guts & brains are connected; whenever 1 is clogged w/ toxins, everything gets clogged w/toxins, & all the many 70 auto-immune's happen to us, she has an awesome remedy & recipes! So, does

Thecandidadiet.com

So, Welcome & Many, Many Blessings!💐🎁 Our Father Luvs ya! & HE's always inside of our secret Storms!⚡⚡☁ But there's always a beautiful 🌈🌈Double Rainbow when the sun comes out! Start that diet & the Sun will Come Out For ya! Just like it has for many of us who've done that awesome diet too.🌞☀⛅🌈 Oh Happy Day!

Jazzy🌹💜

Bodega1939 profile image
Bodega1939

Yes, Doveflyfree, it is a problem in this house, too. I am seeing some VA person about it this week. I think everyone has "normal" ups and downs. Right now I can't seem to shake it. I am hoping this column will be eye opening for you and for me and for any of us who aren't coping too well this week or next.

Before I read your note I was wondering if there was an old column on depression (I didn't find it). Then I got to wondering if I could identify the source of the depression. I got to No. 4 and decided there might be too many to address in reality. Then I thought I ought to find one major problem linking the 4 problems... even trees start with one root, right?

For us with MS or any one with a chronic disease I think it has to do with losing normal healthy self control. Maybe that is the big lesson, at least for me, that is, to ask and then accept the help of others graciously and whole heartedly especially with personal issues..and especially if the person is not familiar or maybe especially if he or she is familiar. I am finding, I used to be really self sufficient. It is a hard habit or self appraisal to accept when capability shatters. Then I wonder if I was so prideful it abrogated a buddhist teaching? Then I wonder if I was prideful at all. (She shakes her head, rolls her eyes and gives up on this thought throughput.)

Thank you for writing about this. Tell me what you think? I appreciate what you wrote so much!

Nemaste, Bodega

Mjcarbo profile image
Mjcarbo

I feel for you! I’m in a similar position to yours. All family and good friends are hours away (and driving is becoming more difficult). Depression and anxiety really get me down sometimes. If it wasn’t for my photography and art gallery folks, I would be a basket case! Luckily, the days are getting longer and there are more festivals, special events and other activities here in eastern North Carolina.

Beckylp54 profile image
Beckylp54

Hi doveflyfree

I too deal with depression. From MS ,bad or no support. But I had to learn to reach out and ask for help. I see my therapist and also get help from a heath coach from my specialty pharmacy. And it's free. Who would have thought. I've also done cognitive behavioral health. Tried meds. Some didn't work some have though. You just keep trying til you find what works for you. But depression seems to always be there with living with MS. For me it gets bad but so far I've been able to feel better but it's always with me.

My prayers are with you in praying you find help and relief in dealing with your depression. God bless

doveflyfree profile image
doveflyfree in reply toBeckylp54

Thank you very much!! Yes I will Keep trying to get better and not stop trying!!*

It's hard asking for help!!! I was always the helpful person!!

mrsmike9 profile image
mrsmike9

Even those of us that are married with kids and family around don't necessarily have "support" so don't think you're alone! My (grown) kids said I blamed "everything" on MS so I shut up about everything. The only appointment my husband went with me to, because I forced him, was my spinal tap. So yes, I sure understand the alone feeling. I have finally wrapped my mind around this and made up my mind to support myself and talk to understanding people here on this site. At least people here "get me"! So we're here for you, sister!

doveflyfree profile image
doveflyfree in reply tomrsmike9

Thanks for sharing with me!!! So I Guess family support is not the answer. I was the strongest person with helping my family and now that I need help my family pulls away from me. I am sorry your husband is not more understanding about your Ms. I'm sending hugs to you and praying for you!!!! This site is a life saver for us and I need the support!!! I tell people about ms whenever possible!!! It's like being conscious and our bodies are degenerating and we don't have control over it!!!! I'm here for you!!!Thank you for sharing with me and helping me!!!!

guitarguy profile image
guitarguy

I deleted my post because no matter the topic I tend to make my reply all about me and tell my life story, I will do my best to stay on topic and be brief n my future comments. If you read my original reply I feel for you!

Anyway the key take-away from that post seemed to be lost in the history of Dave.

My comment was and still is that the combination of Wellbutrin combined with the relatively recent addition of Duloxetine 20mg once a day has been what I’d call nothing short of miraculous.

This really worked for me but obviously may not be the right way to help your depression but it may useful to discuss this with your health care professionals.

If at any time you want to talk with someone about anything I’m available and willing. Just PM me.

I hope you find a solution that works for you. Please don’t ignore or leave depression untreated. The results of doing that can be devastating.

Best of luck in your quest and I sincerely hope that you are able to find one or more paths that provide relief.

Best,

Dave

doveflyfree profile image
doveflyfree in reply toguitarguy

Please post your comments and life story!!! I love when you open up and share What you are experiencing!!! I am trying hard with the counseling and psychiatrist to lift my Depression. One big problem is that I don't have much family support and I moved into my Dad's house already diagnosed with ms. It's all on me to get health care and find doctors and manage Everything!!!!!! Please PM me and we can talk more Please!!! Thank you very much for sharing your story!!!!

guitarguy profile image
guitarguy

Picture me scratching me head. No one has ever asked me add more about me and I have to exert some control there as it isn’t (all about me). Will PM you shortly.

Dave

mrsmike9 profile image
mrsmike9 in reply toguitarguy

Come on. We learn from each other and your story may help someone else! All we know really well is what we've experienced!

kycmary profile image
kycmary

Hi dove it's good to be able to get things of your chest & this is a good place to do just that so any time you need to rant or just need some one to chat with there's usually some one around here. Mary

doveflyfree profile image
doveflyfree in reply tokycmary

Thank you very much!! I sure appreciate your understanding!!

kycmary profile image
kycmary

We all suffer the symptoms of MS in 1 degree or another & believe it or not this is one place when someone says "I understand" they actually do!! you are welcome with open arms & lots of love!!

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