I am my responsibility: I am my... - My MSAA Community

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I am my responsibility

RoyceNewton profile image
9 Replies

I am my responsibility. I have to live with every me moment of every day. At night when I lay in bed unable to sleep. My thoughts and fears are mine alone. Nobody can take them from me and the decisions that I make are mine and mine alone. I can and do take into account others, the reactions that my behavior may cause other people. That extra opiod to try and make the pain go away. That leads nowhere, but panicked emergency phone calls and a rushed trip to the emergency room.

These are my decision and mine alone. I know me and what effect this will have on others and perhaps upon myself if I make it to morning. No the decision is mine, as it is yours. I will not take that extra tablet. I will just suffer another night of no sleep and pain like “YOU” have never imagined. That is my responsibility and I do not shrink away from it. Along our long RRms life journey we are faced with a lot of decisions and choices. Learn everything that “YOU” possibly can about your condition. How it affects “YOU”, what options are available to “YOU”. Your choice is to be a helpless pill hoping blob in a dark corner crying or to be strong and brave and face what this illness throws at “YOU” with your shoulders back standing tall and looking it in the eye with a smile. Of course your smile says, ha RRms you have got nothing on me. I CAN I WILL COPE with everything that you can throw at me, because I am me and I am good.

Yes “YOU” are responsible for “YOU” This is an midset that “YOU” need to have. There is no need to ever be rude, maybe a little hidden arrogance that knows that this is possible and that “YOU” are up to the challenge. No, not possible DOABLE and “YOU” are going to DO it. Our RRms lives are very long, I expect to have this condition for forty to fifty years, there is no cure there is no miracle secret treatment. There are the Disease Modifying Therapies (DMT) which have a wide range of effectiveness but are your best option today. Always ask for proof whenever starting any type of treatment. Do not believe everything that “YOU” are told do not fear the side effects. We all are sick. Medicine as a rule is not very pleasant to take, but to remain as strong as “YOU” can perhaps “YOU” should take responsibility for your health and take the medicine if it is available. The option of not taking the medicine is that “YOU” will go downhill faster. That is the nature of our illness and we all have to face that at some point. Remember though that there is absolutely no cure. We can not cure this. DMT just slows it down not cure it, and not every DMT works for everybody. I did not find one that was easy to take until my third try, I still have support members telling me that it is not as effective as the old one, but it is my responsibility and I will accept my decision. In the mean time, knowing this I do everything I can to keep myself upright and strong. I have RRms but I am not totally silly.

Royce

Do your best for yourself, treat yourself like you actually do like you.

YOU really are better than RRms, YOU are truly worthy of a good strong and happy life

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RoyceNewton profile image
RoyceNewton
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9 Replies

I know what it's like with opioids. However, with all the pain I have...my pain management dr thinks it's a great idea to cut me off the pain killers. I know I am strong and have survived so much in my life, but these drs are not I'll with MS and all the junk that comes with it so why in their right mind can they take away my only sense of relief? I am responsible for my choices but this is not a choice I have...to stop the pain meds. I hope that you have yourself a good day! Enjoy the birds chirping...you are strong and worthy of a happy life.

RoyceNewton profile image
RoyceNewton in reply to

Thank you very much. Perhaps I was just on a very high dose of opioids among other things, but I do understand they they do not work long term. Surgery was my only option and that works for about five or so years. What does he suggest as a replacement to opioids?

is katana not a Japanese sword and a really fast motorbike?

in reply to RoyceNewton

My dr has put me on a fifth muscle relaxer and says to take 800mg of ibuprofen every 6 hours. I tell my dr every month these meds are not strong enough so every month the muscle relaxers change. I'm seriously tired of being a lab rat. 800mg of ibuprofen has already upset my stomach so I stopped that medication. Yes, katana is a sword and a motorcycle. I once owned a yellow 500E Suzuki Katana motorcycle. I loved that bike.

If you dont mind my asking, what surgery did you have that lasted only a few years?

RoyceNewton profile image
RoyceNewton in reply to

Trigeminal Neuralgia laser knife surgery three times on my face

2 left 1 right, never a problem to ask

in reply to RoyceNewton

I have TN. I have been put on Venlafaxine for the tingling and etc. Did you ever try this medicine?

RoyceNewton profile image
RoyceNewton in reply to

no, gabapentin, carbo? and several others, the4 only thing that broke it all be it temporarily was the laser surgery

Go look at phoenix cyber knife website, They have others around the country, but I am not sure where

RoyceNewton profile image
RoyceNewton in reply to

perhaps another opinion/ doctor

RoyceNewton profile image
RoyceNewton

CBD did nothing for my Trigeminal Neuralgia or my mood, though I suggest it for others if they are game

Gessika profile image
Gessika

Trigeminal issues are no joke. Ugh! My thoughts are with you.

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